Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

They Are Refusing To Test For This Based On My Ana, What Do I Do?

CrimsonRegret

Recommended Posts

CrimsonRegret Newbie
CrimsonRegret
Posted

They say my ANA is fine so they aren't going to do the test. 

 

Meanwhile I'm sitting here, looking like death warmed over, having a lot of issues now. If you were to look at me I look like skin and bones. I've been sick for 3 days now, barely been able to get food in me. I need this test done. If I go to the ER at this point they won't run the test cause they'll just tell me to follow up with my GI doc or something, the GI doc I haven't been able to get ahold of for 5 days. I don't think that's going to change. 

 

How do I convince them to do this test? I did ask if they ran the specific test for it and they said no, cause due to my other tests they are saying I don't have it. 

 

I guess they could be right but a blood test will be faster at this point than waiting almost a week to get the GI scopes I will not make it a week with how I am. I am tempted to just go off all gluten and forget all of it since none of them are cooperating with me anyway. 

 

What's the big deal here? Why won't they test me? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ollie's Mom Apprentice
Ollie's Mom
Posted

I wish we could answer those questions for you. I already replied to your other thread so I won't repeat myself too much. But if you don't need an official diagnosis, going gluten free now without testing is a viable option.

shadowicewolf Proficient
shadowicewolf
Posted

Honestly at this point if they won't test you can either A. Find a new doctor or B. Do a gluten free trial...

nvsmom Community Regular
nvsmom
Posted

Can you go to a wlak in clinic or see a family doctor to request the test?

 

Biocard sells home tests for ttg IgA but it would take some time to get to you.

 

Hang in there.

GottaSki Mentor
GottaSki
Posted

What were your other tests?  Are you certain you have had a complete antibody profile for Celiac Disease?  Nutrient testing?

 

Sorry..I'm not sure I read your post correctly -- are you wanting an endoscopy or more blood tests?

 

Hang in there - diagnosis of Celiac Disease is often very frustrating and unfortunately may necessitate a change of doctors.

mushroom Proficient
mushroom
Posted

They say my ANA is fine so they aren't going to do the test. 

 

Are you saying they won't test for celiac because your ANA is fine?  This is a nonsense if so.  ANA does not test for celiac.  While it is a general autoimmune screen, it is designed to detect connective tissue AI disorders like SLE, RA, Sjogren's, etc.  It tells you nothing about celiac disease.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      13

      My only proof

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in...
    2. marion wheaton
      - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    3. Dorothy O.
      - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Even though my brother almost died in his 40s because of coeliac disease, no one ever told family members that we should be tested. As a result, I was almost 70 years old when an orthopaedic doctor suggested that I be tested for coeliac disease. My count was greater than 250. I had loved my bread, baking, especially pies and was never sick, but did not absorb...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast.
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Publications & Publicity
      1

      Coeliac UK Research Conference 2025

      Thanks for sharing this!
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,400
    • Most Online (within 30 mins)
      7,748
    Chopper1
    Newest Member
    Chopper1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.