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They Are Refusing To Test For This Based On My Ana, What Do I Do?

CrimsonRegret

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CrimsonRegret Newbie
CrimsonRegret
Posted

They say my ANA is fine so they aren't going to do the test. 

 

Meanwhile I'm sitting here, looking like death warmed over, having a lot of issues now. If you were to look at me I look like skin and bones. I've been sick for 3 days now, barely been able to get food in me. I need this test done. If I go to the ER at this point they won't run the test cause they'll just tell me to follow up with my GI doc or something, the GI doc I haven't been able to get ahold of for 5 days. I don't think that's going to change. 

 

How do I convince them to do this test? I did ask if they ran the specific test for it and they said no, cause due to my other tests they are saying I don't have it. 

 

I guess they could be right but a blood test will be faster at this point than waiting almost a week to get the GI scopes I will not make it a week with how I am. I am tempted to just go off all gluten and forget all of it since none of them are cooperating with me anyway. 

 

What's the big deal here? Why won't they test me? 

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Ollie's Mom Apprentice
Ollie's Mom
Posted

I wish we could answer those questions for you. I already replied to your other thread so I won't repeat myself too much. But if you don't need an official diagnosis, going gluten free now without testing is a viable option.

shadowicewolf Proficient
shadowicewolf
Posted

Honestly at this point if they won't test you can either A. Find a new doctor or B. Do a gluten free trial...

nvsmom Community Regular
nvsmom
Posted

Can you go to a wlak in clinic or see a family doctor to request the test?

 

Biocard sells home tests for ttg IgA but it would take some time to get to you.

 

Hang in there.

GottaSki Mentor
GottaSki
Posted

What were your other tests?  Are you certain you have had a complete antibody profile for Celiac Disease?  Nutrient testing?

 

Sorry..I'm not sure I read your post correctly -- are you wanting an endoscopy or more blood tests?

 

Hang in there - diagnosis of Celiac Disease is often very frustrating and unfortunately may necessitate a change of doctors.

mushroom Proficient
mushroom
Posted

They say my ANA is fine so they aren't going to do the test. 

 

Are you saying they won't test for celiac because your ANA is fine?  This is a nonsense if so.  ANA does not test for celiac.  While it is a general autoimmune screen, it is designed to detect connective tissue AI disorders like SLE, RA, Sjogren's, etc.  It tells you nothing about celiac disease.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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