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Feet Problems...


BBrien

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BBrien Newbie

I was diagnosed with Celiac's a year and two weeks ago. The diagnosis of this disease was linked with my severe lactose intolerance, as well. Since then, I've sworn off gluten and dairy. Now, one year and two weeks into this new life, some of my old symptoms are back, except their worse this time around. 

 

Before I was diagnosed, my feet would fall asleep. Eventually, it wasn't just my feet. My whole leg would fall asleep, even when I was driving! I would be sitting in class, taking notes and my hands and forearms would fall asleep and my pencil would drop out of my hand and roll off my desk. Now, I'm suffering from that same symptom. This time, it feels like someone is pushing hard on the insteps of my feet. It's not all that painful, but I just CANNOT walk. This has been going on for two weeks now. I've checked all the foods that I've been eating for the last month, because some gluten-free brands start changing their ingredients and I had to make sure that I wasn't being too trusting of these companies. All of my food is cleared of gluten and/or dairy. So why am I having such neuropathic issues with my body???

 

Also, my migraines have intensified. Tylenol with codeine just doesn't seem to cut it anymore. Any suggestions for these migraines?

 

In regards to my skin, I've got random rashes throughout my body. There's no rhyme or reason as to where they are placed. And, if I lightly scratch my skin, whether it be over the rash or not, my skin puckers and swells. That lasts for about a day.

 

What is going on? Why have some of my gluten-related symptoms gotten worse?

 

If this helps in anyway, I am 17 years old, I am 5'8" and weigh 140 lbs.

 

Thanks for taking time to read this!! Hope for some insight! 


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tarnalberry Community Regular

Have you seen a chiropractor?  What you describe seems like it could also be nerve related.

shadowicewolf Proficient

That is nerve related.

 

Have you tried removing soy? Some celiacs find that it can cause the same type of issues with them as gluten does.

captaincrab55 Collaborator

First,   Find a Dermatologist that understands Dermatitis Herpetiformis and get that rash checked out while it's active.      Are you anemic?     Sounds like you'll need some blood labs too!!!

GFinDC Veteran

Those could be symptoms of Lyme disease also.

 

Open Original Shared Link

 

Open Original Shared Link
  • Open Original Shared Link
  • Open Original Shared Link
  • Open Original Shared Link

Lyme disease is caused by the bacterium Borrelia burgdorferi and is Open Original Shared Link to humans through the bite of infected blacklegged ticks. Typical Open Original Shared Link include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system. Lyme disease is Open Original Shared Link based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks; laboratory testing is helpful if used correctly and performed with validated methods. Most cases of Lyme disease can be Open Original Shared Link successfully with a few weeks of antibiotics. Steps to Open Original Shared Link Lyme disease include using insect repellent, removing ticks promptly, applying pesticides, and reducing tick habitat. The ticks that transmit Lyme disease can occasionally transmit Open Original Shared Link as well.

 

ravenwoodglass Mentor

Sounds like you were doing well for a while before the symptoms came back. Is there anything that has changed? A new restaurant you are going to? A new significant other who may wear lipstick or gloss or kissing after they have eaten or drank gluten items? Any new food items that may be produced in a shared facility? Any new medications or supplements you are taking?

It sounds to me like you may be getting cross contaminated somewhere.

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    • trents
      @nataliallano, whatever else can be said, you need to get serious about eating gluten free. Lots of people with celiac disease are like you. We call them "silent celiacs". They have few or no GI symptoms and falsely assume no damage is being done to their body by continuing to consume gluten. Neurological damage is one of them.
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      Good day, From browsing this forum, I've come to find out that even on a gluten-free diet, many people seem to take years for their antibodies to go down to normal levels, and also that hidden gluten could keep the levels from going down to normal indefinitely. Shouldn't that mean that a celiac person would have a high possibility of testing positive given that they had gone gluten free for less than 2 years or so, and especially if they had not been careful about cross-contamination or had cheat days? The criteria for the gluten challenge makes it seems like the possibility of false negative is high in general.
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      Thanks Kitty for your guidance. I will do the test to see if I have nutrients deficiencies and at the same time re organize my diet to see if that helps with my vertigo and other symptoms.   
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      Yes, Vitamin D is frequently low in Celiac Disease and Meniere's both.  Ask for an Erythrocyte Transketolace test to check for thiamine insufficiency.  Diuretics can cause excess thiamine loss.  Benfotiamine is a form of thiamine that improves intestinal health.  Thiamine in the form TTFD (Tetrahydrofurfuryl Disulfide) helped improve my Meniere's syndrome.
    • nataliallano
      Kitty, to correct the anemia I got IV iron and B complex for 30 days. Then my next step will be test for nutritional deficiencies.   
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