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Feet Problems...
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6 posts in this topic

I was diagnosed with Celiac's a year and two weeks ago. The diagnosis of this disease was linked with my severe lactose intolerance, as well. Since then, I've sworn off gluten and dairy. Now, one year and two weeks into this new life, some of my old symptoms are back, except their worse this time around. 

 

Before I was diagnosed, my feet would fall asleep. Eventually, it wasn't just my feet. My whole leg would fall asleep, even when I was driving! I would be sitting in class, taking notes and my hands and forearms would fall asleep and my pencil would drop out of my hand and roll off my desk. Now, I'm suffering from that same symptom. This time, it feels like someone is pushing hard on the insteps of my feet. It's not all that painful, but I just CANNOT walk. This has been going on for two weeks now. I've checked all the foods that I've been eating for the last month, because some gluten-free brands start changing their ingredients and I had to make sure that I wasn't being too trusting of these companies. All of my food is cleared of gluten and/or dairy. So why am I having such neuropathic issues with my body???

 

Also, my migraines have intensified. Tylenol with codeine just doesn't seem to cut it anymore. Any suggestions for these migraines?

 

In regards to my skin, I've got random rashes throughout my body. There's no rhyme or reason as to where they are placed. And, if I lightly scratch my skin, whether it be over the rash or not, my skin puckers and swells. That lasts for about a day.

 

What is going on? Why have some of my gluten-related symptoms gotten worse?

 

If this helps in anyway, I am 17 years old, I am 5'8" and weigh 140 lbs.

 

Thanks for taking time to read this!! Hope for some insight! 

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Have you seen a chiropractor?  What you describe seems like it could also be nerve related.

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That is nerve related.

 

Have you tried removing soy? Some celiacs find that it can cause the same type of issues with them as gluten does.

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First,   Find a Dermatologist that understands Dermatitis Herpetiformis and get that rash checked out while it's active.      Are you anemic?     Sounds like you'll need some blood labs too!!!

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Those could be symptoms of Lyme disease also.

 

http://www.cdc.gov/lyme/

 

Lyme Disease

Lyme disease is caused by the bacterium Borrelia burgdorferi and is transmitted to humans through the bite of infected blacklegged ticks. Typical symptoms include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system. Lyme disease is diagnosed based on symptoms, physical findings (e.g., rash), and the possibility of exposure to infected ticks; laboratory testing is helpful if used correctly and performed with validated methods. Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics. Steps to prevent Lyme disease include using insect repellent, removing ticks promptly, applying pesticides, and reducing tick habitat. The ticks that transmit Lyme disease can occasionally transmit other tickborne diseases as well.

 

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Sounds like you were doing well for a while before the symptoms came back. Is there anything that has changed? A new restaurant you are going to? A new significant other who may wear lipstick or gloss or kissing after they have eaten or drank gluten items? Any new food items that may be produced in a shared facility? Any new medications or supplements you are taking?

It sounds to me like you may be getting cross contaminated somewhere.

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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