I've only really heard of Leaky Gut Syndrom for about a year. Before that I thought it was some kind of slang term used when someone had diarrhea.
I am seriously considering this as a possibility to all my suffering but I'm not sure where to find a doctor who is knowledgable with Leaky Gut.
I've dealth with GI problems most of my life. 7 years ago I had 1 blood test + the rest - for celiac disease but biopsies were negative. During that same time I was DXed with rheumatoid arthritis (actual DX is pauciarticular juvenile rheumatoid arthritis - I had symptoms dating back to my early teens that all my Drs missed). I've been back and forth between gluten-free and gluten-light over the years. A few months ago I had a couple of back to back sinus infections and the walk-in med care center suggested I do allergy testing (which they just started doing in their office). I have some environmental allergies I am getting weekly shots for (none are really too bad though) and my IgG food allergies came back with several foods I am "allergic" to. Severe level: Flaxseed; High level: wheat, gluten (no surprise to me), rye, rice, soybean, carrots, cows milk, peanuts; and Moderate level: beef, scallops. I had some in the mild range as well. My GI problems include alternating D and C, severe cramping (near the point of passing out), narrow stool with frequent change in consistency and color, gas, bloating, gurgling, fluttering, burping, flatulence, acid reflux, indigestion and burning in the stomach, inability to wipe clean, fecal incontinence, a LOT of mucus and sometimes bile (or that thick dark yellow liquidy stuff), hemorrhoids. Other problems: nail fungus on both big toes, brittle/thin nails, yellowish teeth, hair loss, itchy scalp and skin all over (but no rash), foggy brain, terrible memory, can't focus, fatigue, anxiety, depression, headaches, occasional migranes, joint stiffness and pain.
I just recently went on a heavy gluten challenge to do another celiac disease panel. But I was gluten-light for a long time and then gluten-free for about 3 weeks, gluten-light for about another 3 weeks and then went gluten-heavy for 2 weeks before doing bloodwork. BW came back negative, but with a low IgA ("minimally low, no clinical significance").
I'm not sure if I want to bother with another GI doctor to go foward with more celiac disease testing or find someone who specializes in Leaky Gut. I did a quick search in my area on leaky gut and pulled up a few chiropracters/wellness practitioners that test/treat for it. What kind of "doctor" should I be looking for?