Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ahhh! Diagnosed Celiac In June. Now...how Do I Know Hwich One?

tka

Recommended Posts

tka Apprentice
tka
Posted

Feeling pretty helpless/hopeless today. I was diagnosed with celiac disease in June. Then had to have an ultrasound because my liver levels were also high. That came back as a possible fatty liver. But they also found lots of gallstones. How do I tell the difference between what's a celiac symptom/possible gluten issue and what's being caused by the food I eat and gallstones/gallbladder flaring up? I have a whole new set of foods I have to try to figure out now. When I looked up the symptoms for the gallstones, several of them were what I thought were related to the celiac. At least now I know why I have the burning pain in my stomach so often after eating. Maybe I'm getting bet than I thought on the gluten free diet. I thought I was still glutening myself somehow and couldn't figure it all out. I still have the fatigue, but some day that's better now. I am encouraged by the fact that the fatigue is not everyday, all day though. Has anybody else had both of these together? Any suggestions? I know I'll be ok, but for a little while I was pretty down. Between the two lists, I was thinking, "Where is it going to stop? Will I be able to eat anything?" Sorry, I'm just venting a bit I guess.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

Many of us  have  had  gallbladder surgery before  or  after  a celiac  dx's..... Do  they  want  to  remove  your gallbladder?

Healing  the  intestinal  tract  from  celiac  can  take  months  to  a few  years...so be  patient & try   clean  eating  , no  processed  foods,  going  dairy free  may help(  that  is also broken  down  at the  tips  of the  villi) no  nightshades,  no  junk  food  unless  you get to  craving  something.. Plain basic  food... corn  can  also  be  a problem  for many  & also  with  gallbladder issues....

I  would  add  digestive  enzymes, and  probiotics to help  digest  and  break  down  proteins, sugars,  &  so on.... 

tka Apprentice
tka
Posted
  • Author

Thanks. I know it will take time. I just didn't expect the gallbladder stuff on top of the celiac so soon. I have been doing pretty well with the gluten free diet I think. At least now with the gallbladder diagnosis that makes more sense as I couldn't figure out why I was still having tummy problems regularly. I thought I was doing well on the diet and didn't understand where the contamination was coming from...I almost thought my husband was doing something to cc thing:)...not really, he's been pretty good. I think he didn't understand how serious cross-contamination could be in the beginning, but I had him read some things on this forum and he has been much better.

Doctor wants to see if I can control the gallbladder stuff with my diet, but says if I have a major outbreak he will recommend removal. He's going to monitor for now. Were your symptoms for gallstones different than the celiac? Is there a way to tell them apart? I'm assuming the gallbladder is what causes the burning pain in my stomach area right under my ribs a little to the right side, followed by gas. It can happen during a meal or right after, but I can also get it two to three ours later. It gets worse then. Diarrhea can come later too. It can be accompanied by belching and acid reflux. I can also have most of those symptoms with a glutening I think, but the glutening seems to be magnified...more gas, extreme diarrhea, bloating and weight gain, achy joints and muscles, headache, and exhaustion...and is more prolonged. Does that make sense? I should buy stock in GasX and Pepcid Complete and Imodium!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess...
    2. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    3. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    4. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    5. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748
    Kelly Hannon
    Newest Member
    Kelly Hannon
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.