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Ahhh! Diagnosed Celiac In June. Now...how Do I Know Hwich One?


tka

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tka Apprentice

Feeling pretty helpless/hopeless today. I was diagnosed with celiac disease in June. Then had to have an ultrasound because my liver levels were also high. That came back as a possible fatty liver. But they also found lots of gallstones. How do I tell the difference between what's a celiac symptom/possible gluten issue and what's being caused by the food I eat and gallstones/gallbladder flaring up? I have a whole new set of foods I have to try to figure out now. When I looked up the symptoms for the gallstones, several of them were what I thought were related to the celiac. At least now I know why I have the burning pain in my stomach so often after eating. Maybe I'm getting bet than I thought on the gluten free diet. I thought I was still glutening myself somehow and couldn't figure it all out. I still have the fatigue, but some day that's better now. I am encouraged by the fact that the fatigue is not everyday, all day though. Has anybody else had both of these together? Any suggestions? I know I'll be ok, but for a little while I was pretty down. Between the two lists, I was thinking, "Where is it going to stop? Will I be able to eat anything?" Sorry, I'm just venting a bit I guess.


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mamaw Community Regular

Many of us  have  had  gallbladder surgery before  or  after  a celiac  dx's..... Do  they  want  to  remove  your gallbladder?

Healing  the  intestinal  tract  from  celiac  can  take  months  to  a few  years...so be  patient & try   clean  eating  , no  processed  foods,  going  dairy free  may help(  that  is also broken  down  at the  tips  of the  villi) no  nightshades,  no  junk  food  unless  you get to  craving  something.. Plain basic  food... corn  can  also  be  a problem  for many  & also  with  gallbladder issues....

I  would  add  digestive  enzymes, and  probiotics to help  digest  and  break  down  proteins, sugars,  &  so on.... 

tka Apprentice

Thanks. I know it will take time. I just didn't expect the gallbladder stuff on top of the celiac so soon. I have been doing pretty well with the gluten free diet I think. At least now with the gallbladder diagnosis that makes more sense as I couldn't figure out why I was still having tummy problems regularly. I thought I was doing well on the diet and didn't understand where the contamination was coming from...I almost thought my husband was doing something to cc thing:)...not really, he's been pretty good. I think he didn't understand how serious cross-contamination could be in the beginning, but I had him read some things on this forum and he has been much better.

Doctor wants to see if I can control the gallbladder stuff with my diet, but says if I have a major outbreak he will recommend removal. He's going to monitor for now. Were your symptoms for gallstones different than the celiac? Is there a way to tell them apart? I'm assuming the gallbladder is what causes the burning pain in my stomach area right under my ribs a little to the right side, followed by gas. It can happen during a meal or right after, but I can also get it two to three ours later. It gets worse then. Diarrhea can come later too. It can be accompanied by belching and acid reflux. I can also have most of those symptoms with a glutening I think, but the glutening seems to be magnified...more gas, extreme diarrhea, bloating and weight gain, achy joints and muscles, headache, and exhaustion...and is more prolonged. Does that make sense? I should buy stock in GasX and Pepcid Complete and Imodium!

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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