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Ahhh! Diagnosed Celiac In June. Now...how Do I Know Hwich One?


tka

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tka Apprentice

Feeling pretty helpless/hopeless today. I was diagnosed with celiac disease in June. Then had to have an ultrasound because my liver levels were also high. That came back as a possible fatty liver. But they also found lots of gallstones. How do I tell the difference between what's a celiac symptom/possible gluten issue and what's being caused by the food I eat and gallstones/gallbladder flaring up? I have a whole new set of foods I have to try to figure out now. When I looked up the symptoms for the gallstones, several of them were what I thought were related to the celiac. At least now I know why I have the burning pain in my stomach so often after eating. Maybe I'm getting bet than I thought on the gluten free diet. I thought I was still glutening myself somehow and couldn't figure it all out. I still have the fatigue, but some day that's better now. I am encouraged by the fact that the fatigue is not everyday, all day though. Has anybody else had both of these together? Any suggestions? I know I'll be ok, but for a little while I was pretty down. Between the two lists, I was thinking, "Where is it going to stop? Will I be able to eat anything?" Sorry, I'm just venting a bit I guess.


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mamaw Community Regular

Many of us  have  had  gallbladder surgery before  or  after  a celiac  dx's..... Do  they  want  to  remove  your gallbladder?

Healing  the  intestinal  tract  from  celiac  can  take  months  to  a few  years...so be  patient & try   clean  eating  , no  processed  foods,  going  dairy free  may help(  that  is also broken  down  at the  tips  of the  villi) no  nightshades,  no  junk  food  unless  you get to  craving  something.. Plain basic  food... corn  can  also  be  a problem  for many  & also  with  gallbladder issues....

I  would  add  digestive  enzymes, and  probiotics to help  digest  and  break  down  proteins, sugars,  &  so on.... 

tka Apprentice

Thanks. I know it will take time. I just didn't expect the gallbladder stuff on top of the celiac so soon. I have been doing pretty well with the gluten free diet I think. At least now with the gallbladder diagnosis that makes more sense as I couldn't figure out why I was still having tummy problems regularly. I thought I was doing well on the diet and didn't understand where the contamination was coming from...I almost thought my husband was doing something to cc thing:)...not really, he's been pretty good. I think he didn't understand how serious cross-contamination could be in the beginning, but I had him read some things on this forum and he has been much better.

Doctor wants to see if I can control the gallbladder stuff with my diet, but says if I have a major outbreak he will recommend removal. He's going to monitor for now. Were your symptoms for gallstones different than the celiac? Is there a way to tell them apart? I'm assuming the gallbladder is what causes the burning pain in my stomach area right under my ribs a little to the right side, followed by gas. It can happen during a meal or right after, but I can also get it two to three ours later. It gets worse then. Diarrhea can come later too. It can be accompanied by belching and acid reflux. I can also have most of those symptoms with a glutening I think, but the glutening seems to be magnified...more gas, extreme diarrhea, bloating and weight gain, achy joints and muscles, headache, and exhaustion...and is more prolonged. Does that make sense? I should buy stock in GasX and Pepcid Complete and Imodium!

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      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
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