Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ahhh! Diagnosed Celiac In June. Now...how Do I Know Hwich One?


tka

Recommended Posts

tka Apprentice

Feeling pretty helpless/hopeless today. I was diagnosed with celiac disease in June. Then had to have an ultrasound because my liver levels were also high. That came back as a possible fatty liver. But they also found lots of gallstones. How do I tell the difference between what's a celiac symptom/possible gluten issue and what's being caused by the food I eat and gallstones/gallbladder flaring up? I have a whole new set of foods I have to try to figure out now. When I looked up the symptoms for the gallstones, several of them were what I thought were related to the celiac. At least now I know why I have the burning pain in my stomach so often after eating. Maybe I'm getting bet than I thought on the gluten free diet. I thought I was still glutening myself somehow and couldn't figure it all out. I still have the fatigue, but some day that's better now. I am encouraged by the fact that the fatigue is not everyday, all day though. Has anybody else had both of these together? Any suggestions? I know I'll be ok, but for a little while I was pretty down. Between the two lists, I was thinking, "Where is it going to stop? Will I be able to eat anything?" Sorry, I'm just venting a bit I guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

Many of us  have  had  gallbladder surgery before  or  after  a celiac  dx's..... Do  they  want  to  remove  your gallbladder?

Healing  the  intestinal  tract  from  celiac  can  take  months  to  a few  years...so be  patient & try   clean  eating  , no  processed  foods,  going  dairy free  may help(  that  is also broken  down  at the  tips  of the  villi) no  nightshades,  no  junk  food  unless  you get to  craving  something.. Plain basic  food... corn  can  also  be  a problem  for many  & also  with  gallbladder issues....

I  would  add  digestive  enzymes, and  probiotics to help  digest  and  break  down  proteins, sugars,  &  so on.... 

tka Apprentice

Thanks. I know it will take time. I just didn't expect the gallbladder stuff on top of the celiac so soon. I have been doing pretty well with the gluten free diet I think. At least now with the gallbladder diagnosis that makes more sense as I couldn't figure out why I was still having tummy problems regularly. I thought I was doing well on the diet and didn't understand where the contamination was coming from...I almost thought my husband was doing something to cc thing:)...not really, he's been pretty good. I think he didn't understand how serious cross-contamination could be in the beginning, but I had him read some things on this forum and he has been much better.

Doctor wants to see if I can control the gallbladder stuff with my diet, but says if I have a major outbreak he will recommend removal. He's going to monitor for now. Were your symptoms for gallstones different than the celiac? Is there a way to tell them apart? I'm assuming the gallbladder is what causes the burning pain in my stomach area right under my ribs a little to the right side, followed by gas. It can happen during a meal or right after, but I can also get it two to three ours later. It gets worse then. Diarrhea can come later too. It can be accompanied by belching and acid reflux. I can also have most of those symptoms with a glutening I think, but the glutening seems to be magnified...more gas, extreme diarrhea, bloating and weight gain, achy joints and muscles, headache, and exhaustion...and is more prolonged. Does that make sense? I should buy stock in GasX and Pepcid Complete and Imodium!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

    2. - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

    4. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,604
    • Most Online (within 30 mins)
      7,748

    JV2026
    Newest Member
    JV2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your   health and keep healthy. 
    • julie falco
      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.