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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can Dairy Cause Joint Pain? I Have Been Lactose-Intolerant For 13 Years
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Hi everyone!

I've noticed a strange symptom: the last few times I have had dairy, I get joint pain. Normally I avoid dairy as I am lactose-intolerant, but have the occasional slip-up. I noticed when I had dessert with some ice-cream the other day, my knees were very sore. And then last night, I had to have a pill to induce bowel movements for my colonoscopy and it was 33mg of lactose. I had knee pain as well, then. I've never had these symptoms before. Usually it is gas, diarrhea, etc. I'm pretty sure joint pain is tied to inflammation though... after contracting measles, I started having blood in my stool - and everytime I would have blood, I would get a fever and joint pain. This has been on/off for the last 3 years but it is getting better. My gut has been incredibly strange over the last year, though. I find things are just "sitting" in there, causing constipation even when it's something like dairy - which is supposed to pass right through my system! My colonoscopy is this morning to figure out at least part of the puzzle, so here is crossing my fingers!

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Hi everyone!

I've noticed a strange symptom: the last few times I have had dairy, I get joint pain. Normally I avoid dairy as I am lactose-intolerant, but have the occasional slip-up. I noticed when I had dessert with some ice-cream the other day, my knees were very sore. And then last night, I had to have a pill to induce bowel movements for my colonoscopy and it was 33mg of lactose. I had knee pain as well, then. I've never had these symptoms before. Usually it is gas, diarrhea, etc. I'm pretty sure joint pain is tied to inflammation though... after contracting measles, I started having blood in my stool - and everytime I would have blood, I would get a fever and joint pain. This has been on/off for the last 3 years but it is getting better. My gut has been incredibly strange over the last year, though. I find things are just "sitting" in there, causing constipation even when it's something like dairy - which is supposed to pass right through my system! My colonoscopy is this morning to figure out at least part of the puzzle, so here is crossing my fingers!

In the United States, cows and chickens are fed grains rather than grass, resulting in the production of fats which are rich in omega-6 fatty acids, which in excess can cause significant inflammation.  Whereas 100% grass fed chickens lay eggs with a balanced omega-6 to omega-3 fatty acid ratio of about 1:1, grain fed chickens lay eggs with an omega-6 to omega-3 fatty acid ratio of about 20-30:1.  Similar results are found with grain-fed cows (beef), cow milk, chickens, and grain-fed ("farm-raised") fish such as tilapia.  An excellent book with literature references for these findings was written by a physician with brain cancer who used his knowledge of nutrition to keep his cancer at bay for many years:  "Anti-Cancer:  A New Way of LIfe" by David Servan-Schreiber, MD, PhD.  Just Google the title and you'll find the book with lots of people recommending it.  I also highly recommend it.  You will more than likely get a lot of information about the foods and food derivatives you are consuming which may be adding to the problems that you are now having. 

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I get pain when I have dairy although I can have heavy whipped cream with my coffee (no additives just cream, I use Organic Meadows). But if I have milk with my coffee I get extreme upper neck pain and a foul mood. My son gets neck pain from dairy too. My knee only swells from fresh tomatoes. This food journey is just so bizarre.

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Hi orange,

I was lactose intolerant too for many years, but after a year on the Gluten free diet I have now been able to introduce dairy again

I find I am ok with Greek yoghurt,

but if I have milk and other dairy products I also get lots of joint pains like you do

including restless legs, and for some strange reason a very painful tail bone along with sciatica pain and very stiff fingers too

I also get very cold feet and then I get very hot and the sweats spreading over me too ,

I also get insomnia if I have too much dairy ,

I had the same problem as you with dairy going straight through,

it sounds like your lactose intolerance may have changed too ,

I definitely think there could be a link with joint stiffness and eating dairy products

It seems like eating certain foods can cause all sorts of strange things especially when we are fighting digestive illness

Good luck Orange with your tests ,

Ps ... Here is an interesting link about a GP who cured her aches and pains by giving up certain fruits and veg

http://www.dailymail.co.uk/health/article-2174474/The-GP-gave-fruit-veg-cure-aches-pains.html

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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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