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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Having Problems At Work?
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7 posts in this topic

hi,

 

didnt know where to put this thread- so hope its in the right one!.

 

im having big problems at work. disciplinary,s because im not " performing"

 

the thing is out of all the testing ive had done everything has been negative. not celiac, no allergies, no lupus. im at the end of my tether , what can i say to that?. ive got no comeback as to why i cant think straight and my heads in a mess.

 

the only thing thats been found is vitamin b12 deficiency - level was 138. im stressed out enough without all this added stress.

 

has anyone else had this problem, if so how have you dealt with it?

 

 

 

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Yes. I have not been called out directly (yet) but I can tell that my employers are getting frustrated with my less than stellar performance some days. I just keep getting hit by something, so I'll have one GREAT day, and then one so/so, and then two or three where I'm walking through molasses tired, or I have a migraine, or I'm extremely down and emotional. 

 

I'm so sorry you have to deal with this. One of the greatest difficulties I've had as I've become a "grown up" (heh, I'm 25, so I only count partially thus far)  :D is having to force my body to do something (like going in to work) when I'm physically ill. It's terrible, and it's something that I really struggle with in our society. I think that if you are ill...you should be permitted to heal. :( 

 

How open is your employer to your explanations concerning your health? You don't have to be diagnosed for gluten to be making you really sick. You could be NCGI. Could you share some information about that with your employer? Are there little short cuts that you can take to make your workload easier on yourself? I think it was IrishHeart who wrote that when she gets glutened, she makes lists of things she needs to do, which help to create focus while in the grip of a foggy brain. 

 

I hope you find a solution soon, and that your employer is understanding. 

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thanks for your reply

 

my employer is absolutely not understanding. i go in for the results of the disciplinary on friday. i do have the union to help and ive got an appointment with the doc,s. i was thinking of asking her if she could write a letter explaining whats going on. not sure if it would help though  :mellow:

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My employer is more understanding than yours, but yes I have experienced the same thing whilst at work; the fatigue, the inability to think straight, unable to make conversation and an overwhelming feeling of not wanting to do much. This is on top of good old STRESS.

 

I too have tested negative on all of the tests, left it too late to do a gluten challenge for biopsy so I will never know whether I am full blown celiac or a NGCI sufferer. So I couldn't say I have xyz disease so treat me accordingly.

 

What I did do though, was explain to my employer how I USED to be before I got ill. And I described to them the effect of what is happening to me NOW. I described the challenges that the medical community has in diagnosing this thing and that, if I really wanted to do a Gluten Challenge, it would mean at least 6 weeks off work extremely ill. They took it seriously thankfully, I was in my 6 month probation period so I would have been screwed if they didn't take it seriously.  

 

5 months later and I am much better, and my employer has seen the improvment. I too had B12 deficiency, I tackled that one with Lacto-Free milk (full of natural, liquid B12) and digestive enzymes.  in time, you will pull through. Hope you can win them round. Maybe get your Doc to write a letter.

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Do get some sublingual B12 as that will help bring those levels up and help with the fatigue as well as your nervous system. I found it helpful even before diagnosis.

My last job was hell on earth for me as far as Celiac goes. I wasn't allowed to use a rest room if there was anyone in the store despite the fact that there were two others registars and no reason why a manager couldn't hop on one to check someone out if I was the only cashier on duty. I was told the main office wouldn't allow it. I suspect it was more they were too lazy to count it in. One manager even walked up to customers one day and asked how long they would be shopping because I needed to use a rest room. Extremely embarrassing. My solution was quietly start looking to find another job. Wasn't easy but I now have a job where my health issues are easier to deal with.  Should I have reported them to OSHA, probably but I was just glad to be out of there.

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Yes but it's not gluten related.  In fact, I don't know which is better for my health, my manager or wheat bread. Ha!

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I'm having this problem. I was diagnosed with Celiac disease 3 months ago and I'm not feeling any better. I work a very physical job and struggle to get through each day because of fatigue and joint and muscle pain I asked today if I could use 2 of my vacation days next week and they said no.I've been in tears all day and still am because I do so much around there and the one time I ask for something they tell me no.

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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