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Advise On Range Of Symptoms

CR5442

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CR5442 Contributor
CR5442
Posted

Hi all, this is about my Dad, not me.  I am not biopsy diagnosed but have Celiac (ataxia, stomach problems, migraines, weight loss etc when eating gluten - worse after two years avoidance).  My Dad has been admitted to hospital with severe prostatitis, liver stones, kidney stones, renal failure and bleeding gut (alternating const/diarr).  Does anyone recognise these as celiac symptoms?  He also has MS, and has had digestive problems his entire life...particularly in adulthood.  Any advise on what to ask the doctors?  He is very stubborn and proud and wants to do everything himself but I'm sure he'll think the celiac connection is lala unless I can come up with some peer reviewed medical articles to show him.  He has been treated shockingly by his GP surgery and I think is honestly expecting to die some time soon. Any help will be welcome.

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GF Lover Rising Star
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Posted

Hi Caroline.  I'm so very sorry to hear about your Dad.  I will pray for him.

 

As far as your questions are concerned.   The prostatitis, if bacterial should be able to be cleared up, if not bacterial then I don't know.  The renal failure does have a connection to celiac.  Here is the information about that. Open Original Shared Link. Since the stones and the bleeding gut are also digestive issues they may have a connection but I'm not personally aware of it.  

 

I do think it is worth mentioning it to the doctor even if not to your Dad.  I do hope they can get him stable.   Don't hesitate to ask more questions if you would like.  We are not doctors here but we have a wealth of experience.

 

All the best to you and your Dad.

 

Colleen 

CR5442 Contributor
CR5442
Posted
  • Author

Thanks so much Colleen.  I haven't had a chance to talk to the doctors as visiting is out of daylight hours.  He is now out of hospital so that his kidneys can recover enough for them to do the barium meal contrast scan... but he is still very poorly.  I'll see if I can mention to his wife this weekend about the celiac.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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