Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Joining Your Group...
0

5 posts in this topic

Hello all.  I'm a regular old midwestern mom that is joining in for help and support.  Last week I found out why my 1.5 year old dropped from 25% weight to 3% weight at 12 months...and hasn't really grown since.  The Ped ran bloodwork *again* and she was 100+ for her celiac test.  I am taking her to the dietician tomorrow and my husband and I take her to the GI on Monday.  Due to her age it sounds as if they won't do a biopsy, but I'll find out next week.

 

There has been so much to read and digest in the last week - and I can only imagine so much more to learn!

 

First, I'm so, so grateful to have a diagnosis.  How cool that my baby girl is finally going to grow (!!).

 

Second, I'm mentally putting together a list of working through this with my family (we also have a 7 y/o girl and 3.5 y/o boy).  After meeting with the dietician and GI we're going 100% on the diet.  The whole house is going to be gluten-free.  I think I know what to take out, what to buy new, how to keep the house gluten-free, but there are a few other things that I'm already mulling over:

1. Do I keep my car (which also carries other peoples' kids regularly) gluten-free?

2. Do I make sure that nobody ever brings food into our house?  We are the "entertaining" house and do a ton of pot-lucks, shared snacks, etc.  Providing all the food/drink for so many all the time sounds remarkably scary!

3. Do you have your older kids wash hands upon entering the house every single time?

4. She is still nursing so I'll obviously be on the diet, too, but will things like my beauty products harm her via my milk?  If so, suggestions on products to use would be highly appreciated.

 

Also:

5. What do you wish you would have known then when dealing with your little kid?

6. How did you bill this to your older kids so they don't feel "slighted" by the changes?

7. Did you also get tested, along with the other members of the family?

8. Something hit me earlier today - it would be so easy to fall into this weird disordered eating issue.  How to avoid this?

 

So many questions. :)  Thanks for any help you can give.  Just reading this particular forum has been so incredibly helpful to get my thoughts focused.

 

Angela

0

Share this post


Link to post
Share on other sites


Ads by Google:

Because Celiac disease is genetic and you must be eating gluten to get a positive result - get all the kids and you and the dad tested before eliminating gluten.  Good to know right now how many of you actually have Celiac at this point. 

1

Share this post


Link to post
Share on other sites

Yes, thank you for that.  We haven't altered our diets yet - waiting to see the doctors first to see about additional testing.

0

Share this post


Link to post
Share on other sites

Hi, I have celiac disease and my husband has been gluten free for 12 years (no formal diagnosis).  

 

Here's a few answers to some of your questions.  I'm sure others will follow!

 

  • Gluten free cars
  • Daughter (not gluten free) must wash her hands when entering the house (gets rid of the germs too!)
  • All playdate snacks are gluten free (homemade popcorn (cheap), fruit, potato/corn chips, ice cream, yogurt, gluten-free cookies (they don't even notice)
  • I'm the cook, so most family parties have always been  at our house.  I made most everything but have them bring drinks, potato and corn chips, gluten-free salsa, uncut fruit like grapes or I cut up when they arrive, salad fixings that I throw together, paper goods.  They  admit that they like lettuce wrapped burgers!

 

I don't think my daughter has ever felt slighted by our going gluten free.  I pack up her lunch with pre-packaged gluten foods (e.g. goldfish, cookies, frozen P & B sandwiches).  She's learned to eat a BLT on gluten-free bread and spaghetti on gluten-free pasta and as long as I bake homemade gluten-free baked goods, she's happy.   Our dinners have always been gluten-free her entire life!  

 

She does eat Cheerios but she uses her own bowl and I pour the cereal and be sure to clean the counter (we use a separate area).  She like rice porridge and eats Rice or Corn Chex.  My friends bake gluten goodies for her and I freeze them for her lunches.  

 

She goes out for meals with family and friends -- a nice time to bond. 

 

I would be more diligent about keeping gluten safely away from your baby.  They put everything in their mouths!  

 

Hope this helps!

0

Share this post


Link to post
Share on other sites

Thanks for your reply!  I'm going to start keeping lists of appropriate snacks - love your suggestions!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,906
    • Total Posts
      919,573
  • Topics

  • Posts

    • Most New Celiac Patients Show Normal Bone Density
      Some doctors recommend that patients with newly diagnosed celiac disease get scanned for bone density. Several researchers recently set out to assess the bone density results in a cohort of patients with celiac disease. View the full article
    • Kidney disease question
      Hi all,   I don't know whether kidney disease is celiac related or not but hopefully someone here can advise.
      I recently had a general blood test as I'd been feeling unwell. I think I've been glutened tbh but I also felt lethargic and out of sorts. I asked for thyroid and other levels to be checked. Frustratingly they didnt run the TTG - something I'm really down about. Anyway, The doctor looked at my test results and told me (via the receptionist) there was nothing to worry about. Given past experiences I requested a paper copy of the results and I found the following under the renal profile section:

      Renal profile 142 (135-145)
      Serum Sodium 4.7 (3.5 5.3)
      Serum potassium 5.5 (2.5 - 7.5)
      Serum urea 93 (62 - 120)
      Serum creatinine 93 (62 - 120)
      GFR 77ml/min/1.73m^2 - STAGE 2: CKD only if other evidence of renal damage

      The doctor is presumably happy with this but I'm a little concerned. Should I ask for a doctors appointment and perhaps a urine test? Is the GFR result on its own not sufficient reason to investigate further? 
      Many thanks for any advice you can offer

      Matt 
    • Test Results
      Thank you, guys. I will let you know how it goes sometime after 8 a.m. on Tuesday morning. 
    • New to this gluten-free life
      This site has a lot of good info.  And you can get a free " care package"  which is fun. http://www.cureceliacdisease.org   this thread has some useful info -       
    • New to this gluten-free life
      So I just got diagnosed with celiacs and I felt like after all the testing and stuff I would finally get the information my fiancé and I so badly needed about what is wrong with me, but the doctor came in the room at our appt and spent about 15 minutes with us talking a little bit about cross contamination, then said I need to avoid gluten like i would arsenic then sent us on our way! So I guess I am looking for some good tips and information about what is really wrong with me! I know own it's an auto immune disease. I just feel scares because I am so uneducated about it and it's such a big change. I just want to know what to do and do it right so I feel better! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,951
    • Most Online
      1,763

    Newest Member
    lfoisy
    Joined