Hello all. I'm a regular old midwestern mom that is joining in for help and support. Last week I found out why my 1.5 year old dropped from 25% weight to 3% weight at 12 months...and hasn't really grown since. The Ped ran bloodwork *again* and she was 100+ for her celiac test. I am taking her to the dietician tomorrow and my husband and I take her to the GI on Monday. Due to her age it sounds as if they won't do a biopsy, but I'll find out next week.
There has been so much to read and digest in the last week - and I can only imagine so much more to learn!
First, I'm so, so grateful to have a diagnosis. How cool that my baby girl is finally going to grow (!!).
Second, I'm mentally putting together a list of working through this with my family (we also have a 7 y/o girl and 3.5 y/o boy). After meeting with the dietician and GI we're going 100% on the diet. The whole house is going to be gluten-free. I think I know what to take out, what to buy new, how to keep the house gluten-free, but there are a few other things that I'm already mulling over:
1. Do I keep my car (which also carries other peoples' kids regularly) gluten-free?
2. Do I make sure that nobody ever brings food into our house? We are the "entertaining" house and do a ton of pot-lucks, shared snacks, etc. Providing all the food/drink for so many all the time sounds remarkably scary!
3. Do you have your older kids wash hands upon entering the house every single time?
4. She is still nursing so I'll obviously be on the diet, too, but will things like my beauty products harm her via my milk? If so, suggestions on products to use would be highly appreciated.
5. What do you wish you would have known then when dealing with your little kid?
6. How did you bill this to your older kids so they don't feel "slighted" by the changes?
7. Did you also get tested, along with the other members of the family?
8. Something hit me earlier today - it would be so easy to fall into this weird disordered eating issue. How to avoid this?
So many questions. Thanks for any help you can give. Just reading this particular forum has been so incredibly helpful to get my thoughts focused.