Can It Be Celiac? Abdominal Muscle Cramps When Exercising And Lactose Intolerance

[felps89]

I did the blood test and the biopsy and both came back negative. Well Im gonna tell my history here to see if someone can help me, here it goes::

 

 

When I was a kid I had a lot of infections in the throat, it was out of normal, in a year I would get sick 6-9 times and I had a very nasty tingling in my hands, that was ackward and made me not having a good motor coordination, since my hands were very shaken. When I was in the beginning of school, as a child, my school used to give us small breads in the end of school (brazilian thing, dont ask haha) and by that time I started having a really bad fog mind, that I couldnt think properly and a really nasty itch on my nose. As soon as I changed the school the symptons disappear, I could think properly and the itchness was gone, since I wasnt used to eat gluten stuff in my home. By this time, the throat infection got better too. But everytime my mom used to make home pizza or I ate white bread i felt sick, with nausea and headache (I notice that white bread is worse for me than bread roll), but I didnt mind much. When I was on 4th grade, I went to a school in the mornings and then I came back eating bread regularly and I even used to take white bread to eat between classes, and it was in this year that my gut problems started::: I started to have a really nasty problem with lactose, I couldnt eat anything with milk and even foods that contain milk, I went to the doctor and he said it was lactose intolerance that it was commom and i should avoid it (I never heard about gluten in my life and I didnt do any tests by this time). This year, my throat infections came back very strong and I had to undergo a surgery to take my tonsils out. I moved again from school in the afternoons and then I stopped eating bread (I only used to eat bread because of school in the morning). Then I started college, in another state very distance from my home, and as a college student that doesnt know how to cook well, I starting to consume a lot of products with gluten, breads, pasta, cakes. In my first term, I felt a little bit of bloating, I felt fatigued all the time, and my hair started to fall out, a lot. I started to have sinus infections, one after another, and I did a lot of surgeries in the nose to avoid further sinus infections, cause it was one after another. By this time, my fatigued was getting worse and I just wanted to sleep, I have to strengh to do anything, when I went to the gym (something that I used to do since 14yo) I notice that EVERYTIME i tried to started doing sit-ups, my abdominal muscles started to cramping, and it was terrible because of the pain of the muscle cramps. I let it go, and got out of the gym. On my 4th term, I had a huge nasal polyp, that the doctor said I had to undergo surgery, but then, my dad went to visit me to take care of me, and he started cooking and I stopped eating gluten (now I understand this) and the polyp got out, just like magic, 1 week before my surgery), i thought that very strange, but I didnt understand and the doctors didnt have any answers. When I started my 6th term, I ate a lot of breads, 5 to 6 in a day, because I didnt have any time to cook (my major in college is insane) and by the end of that semester, I started to having again those muscle cramps, hipotension, I 3 throat infections, one after another (the nightmare was back) and even the little tonsile tissue left from the surgery had hypertrophiate. the situation got worse and worse, I started to feel my belly stiff, indigestion, bloating, and a lot of pain in my belly. I did every possible test to try to diagnose it and during a trip to my college from vacation, I was fasting and I stopped in the gas station and ate a flour croissant, by the time I got in my college town, I had to be admitted to the hospital because of the pain and nausea. I did a lot of tests, and nothing. I started taking medicines for the IBS, but the pain got even worse and I started losing a LOT of weight, 15 kg in 2 weeks, even though I was eating very well. I started doing a gluten-free diet on my own, and in the 3rd day, My hands stopped shaking for the first time in my life. The nausea stopped and I felt a lot better. In a week of gluten free, i did the blood test and the biopsy and both came back negative. The doctor said I Didnt have celiacs and I could eat bread back, but I didnt. In 3 months my lactose intolerance was completely gone. I started though having malnutrition problems with my eyes, dry eyes, photophobia, dermatitis because of dry skin, foliculitis, joint pains that got a lot better when I started taking supplements and eating milk again.  I got better the weight I had lost too. The problem is, my family has got this problem too. My sister has always complained of pain in the abdomen, she has to be adimitted in the hospital when she eats lots of gluten food and she had 3 miscarriages. My niece and nephew both have lactose intolerance, just like I had when I was a child, but they did the celiac panel and came back negative. I had an uncle that died from intestinal cancer. My question is:: CAN NON CELIAC GLUTEN SENSITIVITY cause lactose intolerance and malnourishment, because both, mine and my family panel came back negative?? my bypsy came with an inespecific inflammation that the doctor said "it was nothing", it had no atrophy or anything. Sorry for the big post. thank you guys so much for the help and sorry if I wrote something wrong, english is not my first language. Felps.

[GFinDC]

Hi Felps,

 

I already responded to your question in the other thread, but now that your thread is moved I'll paste it in this thread.

 

https://www.celiac.com/forums/topic/105380-strugle-abdominal-muscle-cramps-lactose-intolerance/

 

Hi Felps,

 

I used to have gut spasms when I first went gluten-free.  I also had muscles twitching at times.  It wasn't a direct reaction to exercize though.  Just because you didn't get  a positive on a test, doesn't mean you don't have celiac disease.  The testing process is not perfect.

 

Your intestines may be inflamed and irritated.  That might cause muscles cramps.  Or you could be low in some vitamins or minerals.  Or you might have a blood sugar issue.  It is possible for a gluten reaction to cause many different symptoms, including muscle cramps.  So that seems the most likely cause to me.

[1desperateladysaved]

I think you may be on the right track with considering a gluten problem.  I hope you get it defined and can be gluten free soon.  As soon as all the testing is done, go totally gluten free and then you can see if your symptoms subside.  That would be the final test.