Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Find What I Have


booknerd

Recommended Posts

booknerd Newbie

Hi everyone! I was wondering if maybe you beautiful people can help me? But first let me tell you my story.

My problems began at the very young age of 3 months. I would hold my breath and only let go after awhile. My mom doesn't know the precise amount of time because to her it felt forever. I continued to do this for the next few months. Only be diagnosed with "She's a stubborn child, that's all. She'll be fine." Keep in mind this was 1991 and in South Texas.

I went through the next few years okay, with the exception of fluctuating weight. At the age of 12 during an all star softball game I began to feel as if I would faint. Cold sweats drenched my body and I tried to wipe the dizziness away. After my at bat (which I struck out) I told my coach I could not go back in, I wasn't feeling good. My mom came over to take a look at me and saw that I was pale with color also leaving my lips. People began giving me candy and Gatorade, thinking I had low blood sugar. I began to feel somewhat better just now with a stomach ache. By the next day I was good as new.

Then at 13, I began to feel a slight burning in my chest. My mom took me to the doctor and I was diagnosed with heartburn. With that appointment I also was told to see in a cup. It came back that I had a bladder infection and I needed to lay off the soda. After two weeks with minimal soda I came back for another and was given the same results. I decided I would give it up completely. I was proud of myself, I went one month without soda! I had only consumed water. I went back and same results again! I was tired, I didn't want to go back. That was that.

During high school I would complain to my mom that I sometimes felt like I was in a dream.Like in a fog or a daze. Other than that I was fine.

I approached college, and I began to get stomach pains. I went to the doctor and had many scans done and the next thing I knew I woke up with no gallbladder. Till this day the doctor has never explained why he took it out.

The pain continued on and gradually got worse. My sophomore year of college I found another doctor who wanted to check out my blood level, see how I was doing. She called me the day after with a worried tone telling me my atlases and liaise enzymes were through the roof. Along with low b12 and D. She asked me how I was feeling and I told her besides some stomach pain,I was alright. She began to check me every 3 months getting the same results. Only a few times were the pains in my stomach so unbearable I cried, almost calling the ambulance. I decided to stretch out on my floor and focus on breathing. I fell asleep.

My senior year of college my left eye began to hurt. Next thing I knew my vision began to blur, this was my first migraine. Went back to the doctor, where she told me I was under a lot of stress with graduation coming up and all. I was like, "Yeah she's right, she's the doctor." I left it at that. Meanwhile I had another check up for blood work. Again the next morning a nurse called me with the results worried cause my levels were high. By this time this call was normal for me. They would be high but no doctor could explain it. They would also tell me while my pancreatic enzymes were high, my b12 and D were getting lower, upping my dosages. Though I would stop taking them because I would get sick.

This leads me up to now, same blood results high atlases and liaise and low b12 and D. But this last visit a new one occurred, low iron. I have always had cold hands and feet, yet now I feel cold all the time even when outside sometimes (and I live in TX).

I hope you all can help me, please? Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I hope they are testing your thyroid?  I think you should ask for the Celiac blood panel.  

 

 

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.