Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Days After Endoscopy -- Very Sick

kyss

Recommended Posts

kyss Rookie
kyss
Posted

I am just wondering if anyone else has had this experience after their endoscopy. I had mine done on Monday afternoon...and I haven't been able to eat anything, just keep drinking Gatorade. My abdomen feels like it was pulled out and I have a fever. I called my GI doc and he thinks it may be the flu...I have felt like I had the flu off and on forever so I can't say what it is. I am sooooo tired and unable to consentrate. My GI doc said my small intestine looks pretty bad and he has no doubt it is celiac disease...however he took 3-4 biopsies of different areas and tested me for a bacteria in the stomach that can cause ulcers....that test was negative. I just feel awful and I missed work today and will have to go in on Saturday to catch up on my work....what a mess!

Kelly :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


j9n Contributor
j9n
Posted

I had mine on Thursday. I am pretty sick too but I think it has more to do with being untreated for whatever undiagnosed problem I have. I am trying the low residue diet to see if it helps. Potatoes and rice are a staple for me as well as jello and yogurt. I, too, am missing work. Of course it waits for me so when I do stay home I can not relax because now I am getting more stressed about how much work I have which makes me sicker.

I am sorry I don't have any answers for you but I do know how you feel!!

kyss Rookie
kyss
Posted
  • Author

Thank you for your response. I think my intestines feel bad because they are a mess. The GI doc said he hadn't seen blood test results as high as mine, and the small bowel matched it. I talked to his office today and I am going to be sick for awhile because he irritated an already irritated part of my GI tract. I also am sicking with clear liquids, rice and potatoes I was able to get mashed potatoes to stay down at lunch. I am feeling very frustrated and overwhelmed too I think. I have known now for over a month that I would have to become gluten-free eventually but I guess I wanted a miracle and the GI doc to say...oh no it isn't celiac disease so I wouldn't have to change my entire life and eating habbits. But I guess I need to start looking at what I can eat instead of being upset at what I can't eat. Thanks again for your reply. I will try work tomorrow and see what happens.

Thanks again!

Kelly

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about HLA-DQ Celiac gene test result

      Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
    2. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      THANKS again!!!
    3. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    4. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago. The gluten will be my 4th autoimmune disease. Thanks so much for all your input!!!
    5. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about HLA-DQ Celiac gene test result

      @ainsleydale1700, the additional test information you provided is very significant! Here is the important part: "This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG." It looks to me...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,439
    • Most Online (within 30 mins)
      7,748
    Birdgeek
    Newest Member
    Birdgeek
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Why now?

      By heart390 · Posted

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      @ainsleydale1700, the additional test information you provided is very significant! Here is the important part: "This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG." It looks to me that you may be a "seronegative" celiac. The frontline diagnostic tests for celiac disease are IGA tests, especially the tTG-IGA. However, another IGA test ("total IGA") was done to check you for IGA deficiency and you were found to be deficient. That means that the usual IGA tests done to diagnose celiac disease, such as the tTG-IGA, would not be reliable. That is why the IGG testing was done "reflexively" (which means in response to the results of a previous test, i.e., the total IGA test.). The IGG tests are not quite as reliable as the IGA tests for diagnosing celiac disease, meaning, there are more "other" possible causes for elevated IGG test scores. The IGG test did give a borderline positive result, however, so the physician ordered the endoscopy with biopsy to check for damage to the small bowel lining that would be caused by untreated (continuing to consume gluten) celiac disease. The biopsy showed no damage so the doc concluded you do not have celiac disease. However, the monkey wrench in the gears of the doc's conclusion is that he gave you permission to proceed with the gluten free diet which would have allowed for healing of the small bowel lining to commence. How long were you gluten free before the biopsy was taken? And how much damage to the small bowel lining was there to begin with? If the damage was minimal, it might have been fully healed by the time the biopsy was done. And the symptoms you describe involving vitamin and mineral deficiencies, tooth enamel loss, cessation of menses, neuropathy, constipation alternating with diarrhea . . . IMO all scream of celiac disease as opposed to NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.