Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

Gluten Free Cruise

Gluten Free Poll   25 members have voted

  1. 1. Which Cruise Line would you Prefer? (prices on page 2)

    • Celebrity
    • Holland
  2. 2. Which Logo do you like best? (URL on page 2)

    • Blue Lagoon
    • Blue Yacht
    • Brighter Days
    • Sea Decor
    • Wave Splash
    • Celiac C's
    • Airy Blue Splash
    • Two Celiac C's and sun or moon
    • Natural in Green
    • Arch and Star like a ships bridge

Please sign in or register to vote in this poll.

60 posts in this topic

Armeta, your husband can talk golf, over beer, with my husband in the sports bar! That would make them both happy. I think but am not certain that this ship has virtural golf.

Also, I purchased the domain name What I have completed so far is on that site. I loaded some stuff up last night to it, but it is far from complete.

Do me a favor and don't share this domain, I know many of us are sooooo excited to share it, but it isn't ready for the world to see and most unprofessional at the moment. I will load up the community forum when I get a chance, later tonight is the hope once the website resolves to our hosts servers. The site that is there now, is green and filled with google ads. This is NOT our website, this is a dynamic generated site from the domain name registration. When you see the CC (Celiac Cruise) logo, that is our site, again, don't share it, it will give the wrong impression.

I am going snowmobiling today and won't be doing much. If it resolves today while I am gone, I will code the forum tonight so that we can carry on our conversations in there as far as the website goes and for those helping out with this projects.

I have a Volunteer already to head up the Kids activities and gave her an email address to the site These individuals will be listed on the Contact Us page of the website.

I will need volunteers for several other things to include:

State representatives (though most general cruise questions can be filtered through the travel agent, that is her job and what she is experienced in). The state representative will become that states "go to" person on the cruise.

Dining or food and beverages - This person will mainly answer questions about the gluten-free menu that Celebrity has to offer. Yes, they offer breads, pastries, pastas, cakes and so mush more. They will also provide us with an electronic copy of the gluten-free menu options that this person could send out to those wanting to know more.

I would like international representatives if at all possible, though our travel agent can answer most of these questions as well. I simply think have this person while waiting for the cruise to get here and then giving them the "go to" person on the cruise would be nice.

If individual support groups are going to be speaking with their members about this cruise, it would be nice to have one "go to" person in the planning phase and the actual cruise.

If there are any other kinds of volunteers you think we might need, please let me know. I spent several hours designing the website with a volunteer working on the main page. We chatted on msn messenger, I made changes and she would hit refresh and tell me what she thought. It is a difficult task and I certainly can't do it all. By the time I work out the code and graphics for each page, my creativity is shot so text ends up sounding more like prattle. It really helps having others assist.

This is all of our cruise and I would like to make sure we represent it correctly and in a professional manner.

Anyhow, again, if the website resolves today while I am gone snowmobiling, when I get home I will code the forum on the website tonight so we can move our conversations about this to the forum where I have the ability to remove the posts once we have taken care of the items :-)

With your help, I hope to have this fully completed in a week or so (depending upon how much information our Travel Agent is able to get).


Do I have more volunteers?


Share this post

Link to post
Share on other sites

Ads by Google:

The site has now resolved to our server, you can visit to view what is there so far.

I have made the community board where we can move the cruise topics into there. There is a thread where you can indicate if you would like to attend at:

Until we have the final quote from the cruise line, I can't really complete the site, though I do have the prices they have given thus far (our travel agen is negotiation a better price, or at least trying).

I mainly have a forum for bugs, text changes/suggestions and or typos. There is also the volunteer section for those of you that would like to help out in some way.

I have yet to complete the "contact us" page which will have the contact information to those of you that are willing to take a specific segment to field questions. As well as the sponsor section which will take through the weekend to complete.

I really didn't know what you guys would like to see in the Freedom Community, which once the quote comes in will turn into a general chat and meet your shipmates section. This will be (I hope) where people ask their questions. Anyhow, details on everything are on the site.



Share this post

Link to post
Share on other sites

You have done an awesome job and if you need someone for the Canadian contingent then you can call on me.


Share this post

Link to post
Share on other sites
As I sat down for the past five days or so, trying to plan a cruise for my husband and I, I realized that in the “special diet” section only two ships show Gluten Free in the needs. When I called the others on the phone, several more also provided Gluten Free menu items. However, the planning phases of a nice cruise for 2007 (in the cruise industry not to early). Most of the ships have some really good chefs on staff and offer cooking classes on-board as one of the daily activities. Then it dawned on me.

We hold in our hands a way to:

#1 Get to know one another in real life

#2 Have a whole series of lectures from experts in the field of Celiac from diet, cooking, fitness and so much more if we can find interested parties.

#3 Take command of a whole ship, forcing those chefs to learn how to make us our cakes so we can eat them too. And then teach us their gourmet ways.

#4 Take a whole vacation without worrying about “Where the next gluten-free meal is going to come from”.

In addition to all the onboard activities there are many excursions in the ports, most of which I doubt have ever been forced to figure any snacks outside of fresh fruit for the one or two passengers they get for the port day-trips. If all or most of their days customers were gluten-free, they too would have to take into consideration our special diet needs, thus spreading the word about Celiac Disease” a little more.

After brain storming a bit, I got back on the phone with several of the nicer cruise lines and found out they do have group discounts, conference rooms and would have no problem with focus groups and their organization. For the “lectures” or focus groups, I thought that splitting things out into topics such as:

#1 Help, I’m tired and can’t get up

#2 Athletes with Celiac and how to cope

#3 Cooking the Celiac way (A title I have been toying with for my new cookbook)

#4 Coping with Celiac (for those that support us through our strange diet)

The possibilities are endless here. I priced out a 7-day vacation in Hawaii at a reasonable hotel with air fare and rental car (mid sized) and realized that it would be more expensive and didn’t have any activities or meals for our family of three included in the price. The ship includes everything except some of the shore excursions.

Most of the cruise lines offer the children clubs, where they break them down into smaller age groups, some cruise lines do this better.

The two cruise lines that have the most extensive gluten-free menus in place already are Holland and Princess, but after calling Celebrity, they also have a good gluten-free menu. My bet is that with a whole gluten free group, this menu would expand and grow. Thus, making cruises easier in the future for whichever cruise line we opt to take a “group cruise” on.

What do you guys think? If we were able to put together a Celiac Cruise and found some people willing to do a daily workshop like they do occasionally, would you be interested in it? When I called the cruise lines, they need to know the approximate anticipated size of the group prior to quoting out prices. My sister-in-law is a travel agent and has put together several group cruise packages kind of like this one, she said she would help me out if there are enough people interested to make it viable.

It would have to be in 2007 or 2008 depending upon the size of the group. But if done in 2007, from the planning aspect, time is short in getting it done. 2008 would be easiest from a planning stand point!

Anyhow, what I would like to know is who would be interested if we had one, what type of people would you like to see there for lectures (dietician is a given), what kind of focus groups and where would you like to set sail?

Price wise, Princess is the most reasonable, Celebrity offers the most for your money and Holland will pamper you like crazy (for a higher fee). I have more details if anyone wants to know them, but don’t know how much work I should continue doing on this idea if there is no interest.

A cruise would be nice, as it would open up people from the entire world and bring us all together in a gluten-free melting pot.


A cruise is right up my alley. Celebrity would be my choice of asked. We've been on many cruises with different cruise lines. Let me know of a date and price.


Share this post

Link to post
Share on other sites

Prices on a 7-day cruise. Prices listed are with airfare from my airport (considered one of the most expensive in the U.S.). Keep in mind this is without a group discount.

Holland offers only one 7 day (6 nights) cruise in April and it has no stops, you get on in Ft. Lauderdale, Florida and get off in Ft. Lauderdale.

The price for 2 people per cabin is $3,983 or $1,991.93 per person (inside state room) 147 sq ft

The price for 3 people per cabin is $5,486.79 or $1828.93 per person (larger inside state room) 147-187 sq ft

The price for 4 people per cabin is $ $6,769.72 or $1,692.43 per person (larger inside state room) 147-187 sq ft

Celebrity offers 7 night Eastern Caribbean Sorry guys, all the economy class state rooms are already booked, they only have suites! People book their cruises so far in advance. I won't be providing the price quote here as is is suite only. Now I myself (due to arthritis and limitations will be getting a suite that has a hot tub on the balcony because I have to have this if I want to move after a busy, active day!)

Day 1 Sun, Apr 08 Fort Lauderdale, Florida Departure Depart 4:30 PM

Day 2 Mon, Apr 09 At Sea

Day 3 Tue, Apr 10 Casa De Campo, Dominican Rep Docked Arrive 1:00 PM Depart 11:00 PM

Day 4 Wed, Apr 11 San Juan, Puerto Rico Docked Arrive 10:00 AM Depart 8:00 PM

Day 5 Thu, Apr 12 Charlotte Amalie, St. Thomas Docked Arrive 7:00 AM Depart 6:00 PM

Day 6 Fri, Apr 13 At Sea

Day 7 Sat, Apr 14 Nassau, Bahamas Docked Arrive 12:00 PM Depart 5:30 PM

Day 8 Sun, Apr 15 Fort Lauderdale, Florida Arrival Arrive 7:00 AM


Sounds a little high. We are going on Dec.9 for 2 weeks round trip from L.A. to Hawaii, with air from Orlando,fl,Ocean view room, total--- $4,378.74, including trip insurance


Share this post

Link to post
Share on other sites

I think this is a fantastic idea. I'm Australian and have both coeliac and IBS illnesses. It would be great for me if I could have my food completely organised to my even more restrictive diet than for most coeliacs...and be confident that they will do as I ask.

I too was considering a cruise for me and my wife (who isn't coeliac) around October 2008....but in Eastern Mediterranean. I say October because that is the time of cheapest flights from Australia (and believe me flying from here is expensive!). I've seen a Costa cruise that leaves from Venice and goes to Rhodes, Dubruvnik, Bari, Olympia (I think), Santorini and Mykonos with a free day. This seemed like a very attractive itinerary. It is only 7 days, but there are longer. You could probably get some Brit coeliacs interested too.

I know your plans are well underway for the Caribbean, but if there is anyone else who wants to or is organising a similar thing for the Med, please let me know. It really is a good idea to organise it like you guys are. The fares for the 7 day cruise were only about $1 400 per person (Australian dollar which is only worth 75c US), but I don't know much about Costa and their gluten-free situation.

Anyone sailed with Costa who has coeliac (celiac to you North Americans?).

Does anyone know anyone organising such a thing as this for Europe?



Share this post

Link to post
Share on other sites

Timber (and everyone else!) --

I'm glad this topic popped up again. I really want to do this. I'm just overwhelmed by the price and that it's two years ahead. I wonder if that's why there wasn't much definite interest, and maybe we could address that.

I've only been on one cruise, but I remember a friend of mine a long time ago got on a payment plan to go on a cruise. He booked it a year or two in advance and made payments. By the time they sailed, it was all paid for. I'm not sure if the payment plan was through a travel agency or through a cruise line, or how common that is. But I think that if something like that could be arranged, it would be a lot more do-able, or less overwhelming, at least.

Another thing that I learned from my friend who is "The Planner" of the group is that you just pick the time and place. If you ask everybody what they want to do and where they want to go, and what time they want to get there, nothing ever gets decided and everything falls through.

So maybe we vote on a month, a coast, a cruise line, and then just pick a date out of a hat.

California doesn't really get hurricanes and such. So that expands the times that we can go without worrying about extreme weather. Personally, I'd rather go to the Carribean, but would be a little nervous about going during hurricane season, which of course is pretty much the whole summer to one degree or another.

Another question is how many people do we need with a definite confirmation in order to book a group thing like this? I know Timber, that you said that your sister said that there would need to be enough people to make it viable, but are we talking 20 people? 100? More? And how much money would we have to put down on it, if we can arrange a payment plan.



Share this post

Link to post
Share on other sites

We're interested in going on a cruise but it also depends on the depends on where the cruise port is. We're going to be cruising on RCCL out of FL this fall beacuse there's a big price difference. I'll be sure and post how our trip goes. :D


Share this post

Link to post
Share on other sites

:o WOW, WOW and WOW!!!

I'm speechless!

You have really outdone yourself! Thanks so much!


Share this post

Link to post
Share on other sites


I can't possibly read all the replies before I reply.

Just gotta say GREAT IDEA.

Where do I sign?


Then again it could just be a holiday. We could have an annual global coeliac festival :blink:


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Celiac Disease Screening An Uncertainty This is a link to the USPSTF page on celiac screening.  It says the recommendation is still in draft until 30- May-16. ---------------------------------------------------------------------------------------------------------------------------- " Draft Recommendation Statement Importance Celiac disease is a multisystem autoimmune disorder in genetically predisposed adults and children that is triggered by dietary gluten. Ingestion of gluten by persons with celiac disease can cause immune-mediated inflammatory damage to the small intestine, which can cause gastrointestinal and nongastrointestinal illness. The clinical presentation, severity of symptoms, and natural history of the disease varies, and includes asymptomatic (or “silent”) celiac disease. In studies of U.S. populations, the estimated prevalence of celiac disease among adults ranges from 0.40% to 0.95%.1 Prevalence is higher than average among non-Hispanic whites, persons with a family history of celiac disease, and those with other autoimmune conditions. Detection The USPSTF found inadequate evidence regarding the accuracy of screening tests for celiac disease in asymptomatic populations. Benefits of Early Detection and Intervention or Treatment The USPSTF found inadequate evidence on the effectiveness of screening for celiac disease in asymptomatic adults, adolescents, and children with regard to morbidity, mortality, or quality of life. The USPSTF also found inadequate evidence on the effectiveness of targeted screening in persons who are at increased risk for celiac disease (e.g., persons with family history or other risk factors). The USPSTF found inadequate evidence on the effectiveness of treatment of screen-detected, asymptomatic celiac disease to improve morbidity, mortality, or quality of life compared to no treatment or treatment initiated after clinical diagnosis. Harms of Early Detection and Intervention or Treatment The USPSTF found inadequate evidence on the harms of screening for or treatment of celiac disease. USPSTF Assessment The USPSTF concludes that the current evidence is insufficient to assess the balance of benefits and harms of screening for celiac disease in asymptomatic persons. Evidence is lacking, and the balance of benefits and harms cannot be determined. .... Potential Harms of Screening or Treatment The USPSTF found no trials or controlled observational studies on the harms of screening for celiac disease in asymptomatic populations. Potential harms of screening in asymptomatic populations include false-positive, inconclusive, or unnecessary serologic tests and biopsies, with possible anxiety or complications from testing. However, the USPSTF found no studies on these harms. *** Some persons with biopsy-confirmed celiac disease may never develop symptoms; therefore, overdiagnosis is also a potential concern. ***                                              One small fair-quality trial of treatment with a gluten-free diet16 reported no withdrawals due to major symptoms or complications. The USPSTF found no other studies on the harms of treatment with a gluten-free versus nongluten-free diet in persons with screen-detected celiac disease.  " Send Us Your Comments In an effort to maintain a high level of transparency in our methods, we open our draft Recommendation Statements to a public comment period before we publish the final version. Leave a Comment >> ... article continues... this is  a link to the comment form: ------------------------------------------------------------------------------------------------------------------------- I don't agree with the italicized quote myself.  It seems they think if you have silent celiac with no symptoms it's ok to keep damaging your body by eating gluten.  that just doesn't make sense to me. The comment period seems to be open still, and they have a comment option on that page a the bottom.  Since it seems the people doing the research aren't totally aware of the issues related to celiac disease and it's effects, maybe we should leave them some comments.  Right now they are saying they are not making any recommendation regarding celiac disease screening due to not having enough evidence of a benefit.  That's not an issue I don't think, except in the case of first degree relatives.  First degree relatives should be screened as they have a much higher chance of having celiac or developing it.  The current draft leaves testing relatives up to the individual doctor.  I  know my doctor won't test my 2 brothers even though I have celiac disease.   That isn't right IMHO. It seems like they should seek input from experts in the field, like Dr Fassano and the U of Chicago celiac center etc. It's a draft recommendation right now though, so they are seeking public comments.      
    • New Celiac Doctor - Atlanta/Duluth, GA
      I can't help you with finding a new GI, but I can empathize with driving the 400!   I have family in the Northern Atlanta area and visit often.   How horrible that your account was so mis-managed! 
    • New Celiac Doctor - Atlanta/Duluth, GA
      Hello! I have Celiac Disease (confirmed by blood tests and endoscopy done in 2013) and was going to a doctor at Atlanta Gastroenterology Associates until the end of last year (2015) when they started charging me for things that happened in 2013 - two years late. I had since changed insurance and was forced to pay out of pocket for the charges or be sent to collections. All in all, I loved my doctor there, but was very unhappy with the way the billing was managed.  So, I found a new doctor and have seen her once. I like her very much so far, but have recently moved and my home is so far from her office it often takes me 1-2 hours to get there with Atlanta traffic. (Her office is at Emory St. Joseph's hospital.) I should say one of the reasons we moved to Duluth was to get away from Atlanta traffic. I don't want to change practices, but I'm considering it. Does anyone out there live in North Atlanta? Alpharetta, Lawrenceville, Duluth, Suwanee? And have a doctor in the area they would recommend that is NOT associated with Atlanta Gastroenterology Associates? I would rather drive 5 hours to see a doctor than go back to that group, no matter how good the doctors are! Any recommendations are welcome!
    • Sjogren's, Celiac, or both?
      Welcome!  Unfortunately, you would have to go back on gluten to get tested (8 to 12 weeks for the blood test and 2 to 4 weeks for the endoscopy).  Here are the tests: I am sorry that your doctor is so mis-informed! There are over 300 symptoms attributed to celiac disease and some celiacs are considered "silent" with no symptoms at all!  I personally was anemic and had no tummy issues that I was aware of at the time of my diagnosis.   There are other forum members who have Sjogren's who might have some good advice (@Gemini).   I wish you well!  
    • Sjogren's, Celiac, or both?
      Hi! This is my first post here. I'm wondering if anyone else has had a similar experience. I'm in the diagnostic process for Sjogren's, which my rheumatologist is very sure that I have even though my dryness symptoms are very mild. (I am positive for SSA, the autoantibody associated with Sjogren's.)  The symptoms I initially went to my GP with are: fatigue, hair loss, irregular menstrual cycle (very unusual for me), headaches (migraines, almost daily), elevated temperature, weight loss My GP did not do the blood test for Celiac disease. She opted not to because when she asked me if I had loose stool, I said "No, actually, I've been constipated every day for the last 10 years." She said, "Ok, no Celiac then."  ???????? During the diagnostic process, I also lost a pregnancy.  When I eliminated gluten because of recommendations from the Sjogren's Foundation website, almost all of my symptoms disappeared. I still have the hair loss, but no headaches, fatigue is better, cycle is regular, and I'm back to my normal weight. Even my temperature is closer to my norm. I feel like an entirely new person. I still sometimes have mild dryness symptoms but nothing that would have prompted me to go to the doctor without the other symptoms. Should I make an appointment with my rheumatologist and try to get tested for Celiac disease? Has anyone had a similar experience? And how hard do you think it will be to get tested? (Like most doctors I've worked with, my rheumatologist likes to be the one who makes the suggestions.) Thanks for any input! Kristen
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it. Thank You,
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member