Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouth Sores


ryebaby0

Recommended Posts

ryebaby0 Enthusiast

Patrick was complaining about a sore throat, so I looked....He was just at the doctor's Thursday but between then and now the back of his throat is red, and has a few little tiny white spots. Yes, his tonsils are swollen. He's back to the doctor tomorrow, but are these the notorious celiac disease mouth sores? And is my understanding correct --- the sores are often a result of gluten exposure? He's also been taking allergy meds, which tend to dry up your throat anyway. He's never had sores in his mouth before dx or after. Thanks!

Joanna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nicolespeanut Rookie

Has he been exposed to strep? You describe a red throat, swollen tonsils and white spots which sound exactly like what we just went through last month with a strep infection. Maybe others have different ideas but I would want to rule out strep.

ryebaby0 Enthusiast

Yup, that's what I thought too. His older brother was at the doctor about 10 days ago, but his strep test was negative.... I guess we'll find out tomorrow. My son is immunosuppressed so strep would be a really bad thing...

nicolespeanut Rookie

My husband and I had it and brought the kids to be looked at and the Dr said all looked fine so they didn't do the test but sure enough, a week later my daughter complained of a scratchy throat and again I brought the kids -- two year old was fine but my girls (6 and 4) had it. You mention your son is immunosuppressed and are these spots typical of his disease? If he is under two it is unlikely to be strep in a healthy child -- at least this is what I am told. Nicole

ryebaby0 Enthusiast

Well, his strep test was negative (at least so far) so I guess it's somethings else!

lovegrov Collaborator

That doesn't sound like celiac disease-related mouth sores. Mine were more like cold sores or cracked areas at the corners of my lips on the outside. Totally disappeared after going gluten-free.

richard

GinEva Newbie

Excuise me, everyone, but the strep throat that I got as a kid (yes, a Celiac kid) is exactly as you described it, with the swollen glands and white spots. It may not have shown up as positive, yet, but that is what it is!

To the parient who said "...it is unlikely to be strep in a healthy child -- at least this is what I am told."

We (Celiac's) are not healthy children! This IS an immunosuppressed disease. Our immunity is attacking the gluten in our guts, and sees it as a poisen. It is turning in on it's self. It's like sneezing from tree pollen; if you don't take an antihistamin, you histamin's in your system would not shut off till you get far away from the trees! The antihistamin's block that reaction or else you would sneeze your noise off.

If there only were an antigluten agent, to bind with our villa in our intestants, we would be able to eat wheat, but would we still be able to absorbe our food?

Only the future will tell.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dana-g Newbie

Richard is right-on in his description of celiac disease-related mouth sores. You can go to the American Family Physician website and see pictures of the sores in living color:

Open Original Shared Link

Scroll down to figures 6 and 7.

The sores were the only physical symptom our daughter had. Scary.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.