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First Gluten Accident?
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Started by ryebaby0,

4 posts in this topic

Posted

My son started throwing up/dh yesterday afternoon, he was dx 12/03 and we've never had a gluten accident so I'm assuming that's what this is -- he didn't ingest anything non-gluten-free yesterday, and everything was food he had had before, but I don't know what else it could be. (He doesn't seem sick - no temp, etc.) Can you develop a sensitivity to "maybe" foods as you recover? I ask, because I know he had some m&ms at a friends house and while those are technically gluten-free I see lots of people seem to react to them. He never has before, but....

But he even threw up water, so now he's npo for a while. Do we start back on regular gluten-free diet today, or would you suggest treating this more like the flu, and start with clears, then a BRAT-type diet, etc.? He has other conditions that might be the problem, but I've no way to tell what happened. (And THAT is DRIVING me NUTS! I want a little diagnostic panel to pop open on his head that says "by the way, my med levels are too low to control the AE" or "Did I mention I ate off my brother's plate?")

Thanks in advance~

Joanna

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Posted

Are you SURE it's not just a bug? I'm in VT and it's going around here wicked right now. I know 6 kids that are out with vomiting, diarrhea, etc... and it's just a virus that's going around. Can't wait to get it! ;-) hahaha.... This seems to be lasting about a week.

B

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Posted

Yeah, could be a bug... our family just got over a horrible bug. The kids acted fine but would just throw up spontaneously. Sometimes they would keep food down just fine, other times they would throw it up. This happened off and on for a week or so.

Mel

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Posted

No, I'm not sure it isn't a bug -- he's on immunosuppressants, so that's always a possibility (he picks up stuff that other people might carry, but be asymptomatic). But he doesn't have a temp, or any other symptoms, and he hasn't been in school for days. Yeesh. Today is better though-- he kept everything in, so that's good. "Everything" was water, and late in the day he had some chicken and rice. Thanks for the input, it helps...

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Go To Topic Listing Celiac Disease - Parents of Kids or Babies With Celiac Disease

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    • vickyloveaimee
      blood test result help

      By vickyloveaimee · Posted

      Hi All this is my blood test result 1.immunogloblulin serum 203 ( 87-350) 2.Deamidated Gliadin IGA  4 ( 0-19 negative) 3.Deamidated Gliadin IGG 3(0-19 negative) 4.Transglutainase IGA <2 ( 0-3 negative) 5.Transglutainase IGG <2 ( 0-3 negative) does it mean most likely no celiac ? thanks.  
    • egs1707
      Overwhelmed and unable to accept

      By egs1707 · Posted

      At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • Nikki2777
      Overwhelmed and unable to accept

      By Nikki2777 · Posted

      I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
    • LookingforAnswers15
      Could Celiac be triggered by vaccines?

      By LookingforAnswers15 · Posted

      I also think that the HPV/Gardasil vaccine triggered something in my body. I had some Celiac symptoms many years before this vaccine but I felt ok. I was physically very active. However, after I received the third dose as well, I began having more problems including a more persistant pain, overall body weakness, lack of concentration, hair loss, etc.
    • egs1707
      Overwhelmed and unable to accept

      By egs1707 · Posted

      OK so been to the doctor, they've sped up my referral and I should get the appointment booking form in the post shortly. They've said stay off the gluten until I have a date for the appointment then in the weeks leading up to it go back on - thoughts? Did my bit of sport last night which was a great relief to be free of any illness-related thoughts for an hour or two; didn't think I'd have the energy at the start but soon got going and was OK so that's a plus I seem to be getting some strange symptoms at the moment that have only happened since trying to remove gluten, do these sound familiar to anyone? dry forehead, just starting to go red \ itchy in places. Treating with E45-type cream tender scalp and sides of head, almost like a pulling feeling and a bit sensitive to touch. Scared this one matches the symptoms of GCA, a particularly nasty autoimmune disease that can lead to blindness 
      Edit: having said that just found this thread and funny enough did wash my hair this morning...
      http://www.celiac.com/gluten-free/topic/50920-sores-on-scalp/ one eye watering and associated fuzzy vision at times, trying to reassure myself it isn't blurred vision due to the point above sometimes bit of a lump in throat sensation, seems to come and go Been reading that some people can't handle rice - I was OK with it whilst eating gluten but have been having it for lunch each day and seem to get worse around 4-5pm so could that be a culprit? How long after coming off gluten would I be able to say I'm at a baseline to know if feeling ill is down to "glutening" vs. blaming it on the body adjusting to the change in (lack of) gluten in food?

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