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Need Guidance


deb

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deb Apprentice

I have been reading the board in the last week and I have some questions. I found out I have colon polyps and am going to have a colonoscopy to remove them Aug 24th. I know that this is not what is causing my problem. I'm just thankful they were discovered so they cane be taken care of. My Qusetion is, Where does anyone suggest I can make a copy of Entrolab info to take to my GP. I'm hoping he would look at the info and say it is worthy. He is very open so I am hoping if I give him info about them it might make sense.

Has anyone else come up aginst this problem?

I guess I am just carzy. I want to know for sure is this is what I have so I can convience my kids to get checked. Has anyone else delete with this issue?

I am so tired of taking Pain meds to help with the pain, and so tired of felling like crap. Thanks for listening. Deb


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dianne Rookie

Are you aware that Enterolab has a website? Open Original Shared Link Another member posted this under one of the other topics. I hope this helps. :)

Dianne

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      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
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      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
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      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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