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Stiffness And Pain
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I have such stiff muscles--especially in the neck and shoulder region. Has anyone else felt like this? Sleeping positions have also become excruciating.

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I don't know about that, it could just be you need to stretch more, maybe treat yourself to a massage

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Hi,

I used to have terrible pains and aches in my neck and shoulders.

I saw an orthopedist, before going gluten-free, he said I had a little

arthritis, but couldn't understand the pain in my shoulder. He

wanted to diagnosis it as Fibromyalgia, but I didn't pass the

test, you need to have several "pressure points" all over the

body. To make a long story short the pain away after going

on the gluten-free diet. I don't want to discourage you, but, soon

after I started this diet I developed pain in both knees

and the tops of both my feet. Maybe after my antibodies

come down I will become pain free :D

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Jill,

I am following you around this forum, obviously we have had many of the same problems. I am just now getting past this one, first magnesium helped me A LOT, I use Mega Mag by Trace Minerals (liquid ionic magnesium with a whole host of trace minerals to help many things and all are from plant sources which make all the difference in the world) I get it at my local health food store but it can also be ordered online at a discount from places like www.totaldiscountvitamins.com

Also, I recently started making my own kefir which is like yogurt but sooooo much more than yogurt and kombucha tea (both are fermented) and now I am improving by leaps and bounds now and the best part is finally my pain (muscle and otherwise) is subsiding. I had the same problem with sleeping positions that you do, but not anymore. You can get taditional kefir grains and kombucha that reproduce if you take good care of them from people online for the cost of shipping and handling, if your interested I can provide the info you need to get some. These grains are placed in milk and once the milk is fermented, it is then digestible by even those that are lactose intolerant and is loaded with probiotics and nutrients, it helps heal the intestines and pushes infections such as candida out of the system. Kombucha is a culture that you place in black or green tea and sugar, it then ferments and is also loaded with nutrients and nutritional yeasts as well as a componant that helps the body rid itself of toxins. They work great together, and cheap as all get out, I can't believe all the $ I have spent on supplements that didn't help and now I am spending next to nothing and finally improving! Good stuff.

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Jill- I have had that exact same problem (stiffness in my neck/shoulders) for the past couple of weeks now. I thought it was due to a gluten accident that I had when I was away on vacation, but that was almost 2 weeks ago. I know the symptoms can last for that long, but my neck still hurts. I know this probably sounds funny, but it feels like my head is too heavy. Anyway, I was going to go to the doctors if it continued but I figured he couldn't do anything about it anyway. So strange!

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Jaime,

My head feels sort of the same way, and it's constantly numb. My doctors probably won't figure it out...my mom thinks it's because of a vitamin deficiency I have. Oh well, the endoscopy will tell all.

Hang in there!!!

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Interesting...I was just at one of my many doctors today and mentioned to him that the muscles on the sides of my neck have been feeling very stiff for quite some time. He wasn't really sure as to why this would be, though.

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I've had the same thing...followed by some tingling in weird places...my arms, my jaw, etc.... Then I went to my chiropractor. Wow. Apparently I've been a little stressed these past two months (My son, 2 1/2 years old, was diagnosed in June with celiac disease after dropping to 23 lbs in less than 3 months....stress? Nah...haha) He cracked my neck, had me come back for two more visits. Amazing.

I'm still having 'head issues' but that's bc the allergy season this year is out of control. I don't even normally HAVE allergies, but this year apparently I do. My doctor has me on Zyrtec and Nasacort (I'm having sinus issues as well) and it's made a world of difference.

That may not be your problems, but I've discovered it's a little frightening what stress and allergies can do to your body!

Bridget

Georgia, VT USA

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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