Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:
- - - - -

Dare I Ask - Could Dairy Be A Problem Too?

  • Please log in to reply

5 replies to this topic


Deb O (UK)

    Community Member

  • Advanced Members
  • PipPipPip
  • 48 posts

Posted 06 October 2006 - 01:56 AM

I posted this yesterday but visiting the board again today I think I sort of hijacked someone else's thread :rolleyes:

I'm very new to gluten-free living and have been gluten-free for only a few weeks. By the 2nd day I felt a big improvement - no more D or rushing to the toilet after eating. I began to think that this was wonderful. However, over the last couple of weeks I'm not feeling so good again. My stomach's nowhere near as bad as before gluten-free, but it seems more sensitive somehow - I've had an increase in going to toilet again (although no urgency) and an increase in wind and I've also felt very tired again over the last week and back ache.
I think what I want to share and ask for comments is this - I'm not sure whether my tiredness, back ache, bloating is due to being glutened or just whether I'd feel tired anyway (I am kinda busy most of the time)
Any thoughts please?

I've just thought as I've read over my message - for years I've had back ache and noticed that it was always worse on days when I felt very tired and used to say this to my husband - there's no apparant reason for my back to ache, has this been due to gluten do you think?

Thanks, Deb
  • 0

Celiac.com Sponsor:



    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 356 posts

Posted 06 October 2006 - 07:45 AM

I'm pretty new to this, too. I've been doing it almost 6 months but I will try to help. For me, the tiredness relates to gluten, I think. If I'm being very careful and eating only what I know is safe, I can get by on 6 or 7 hours of sleep. At one point, I was getting take-out at a supposedly safe place and noticed I was needing more sleep and needing a nap. At first, I thought I was just doing too much and needed to rest but then I stopped eating there and I'm back again to not needing as much sleep.

I would think the increase in bathroom use, gas, and bloating are due to something you are eating. If you are being as strict as possible about the gluten, you could try giving up dairy and see if that helps.
  • 0

gluten free 4/06
casein free 7/06
DQ1, DQ8

Daughter (11) gluten free 5/06, casein free 6/06

Daughter (9) gluten free 3/06, casein free 7/06, soy free, trying peanut free
gluten lite on and off since 1999

All dx'ed by Enterolab



    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 397 posts

Posted 06 October 2006 - 08:34 AM

I gave up dairy two days ago because I got my Enterolab results back.
It's the saddest thing I've ever had to do.

But. I've noticed that I'm not feeling quite as bloated, and I look forward to a week or two from now to see if there's really any huge difference.

About the energy..it's been three months for me gluten-free. And I am still exhausted most of the time. And I have the whole back ache thing which I'd never, ever had before. It's weird and it hurts and I don't like it. I notice it's not as bad if I'm doing my back exercises, but mostly I'm too slack to do those.

Unfortunately, there's really no telling what your body is responding to. The problem with gluten is that it takes a while to get out of your system, there's a lot of it hidden that you'd never think of, and your body could just be detoxing yourself. give it some more time, but I do know that a lot of people who go gluten-free also have a high sensitivity to dairy - especially right away.

Good luck!

  • 0
Courtney - 25
Columbia, SC

Gluten-free since July 8, 2006
Casein-free since October 16, 2006
Went six weeks, and fell back into a deliciously painful world of cheese.
Casein-free (again and for serious this time) December 11, 2006
Stupid cheese addiction....2/07

Dx Hypothyroid in 1993
Dx Gluten & Casein Sensitive through Enterolab 10/06
Dx Adrenal *Exhaustion* 2/07

Originally from WI, I am still in denial over my newfound casein intolerance. I fear I will not be allowed back into the state if I can no longer eat cheese and drink milk. This could pose some trouble over holidays when I wish to visit my family. It also poses a problem involving the severe rage I feel when I have to throw away somebody's unfinished cheese sticks. That is so wrong.



    November 2008

  • Advanced Members
  • PipPipPipPipPipPip
  • 6,978 posts

Posted 06 October 2006 - 08:41 AM

Dairy very well could be a problem in you have damaged intestines.

Soy could also be a problem if you eat that.

Gluten, soy and dairy can all cause intestinal damage (doesn't mean they will for everyone).

It would probably be best to go off of dairy for 2-6 months and see if you feel better. Then you could reintroduce it and see if you feel worse again. You would need to keep a food diary/journal since an intolerance reaction could take 2 days to appear.

I'm going to include something my doctor gave me for allergy/intolerances.

Food Allergies

Food allergies are a problem created by a disordered immune system. Normally, the immune system, or body’s military team, is designed to attack disease-causing germs such as bacteria and viruses. Sometimes, however, the immune system gets “confused”, and begins attacking harmless proteins such as those breathed in the air [pollens, mold spores, etc.] or ingested [proteins in our foods]. We call such a reaction an allergy. Allergy symptoms are many and diverse; the most commonly recognized being itching of eyes and nose, runny or stuffy nose and sinuses (“hay fever”), difficulty breathing or asthma, and rashes such as hives or eczema. Not as commonly appreciated is that these immune system reactions can also cause many other symptoms such as; headaches, especially migraines, fatigue, sore throat, arthritis or joint pains, stomach distress, colitis, gall bladder attacks, etc. Even such disorders as epilepsy, spontaneous miscarriages, heart attacks, multiple sclerosis, psoriasis, high blood pressure, etc., may have an allergic basis.

You might say, “I feel fine nearly all the time; why should I check for allergies. While it may not be necessary, many individuals discover that they are able to enjoy even better quality of life when they avoid their “problem foods”.

How does one know which foods are “problem foods”? That can be a difficult question. Fortunately, several tests can be useful. One measures the amount of immunoglobulin G present in the blood which is specific to a certain food, another measures the amount of immunoglobulin E. Other tests check for concentrations of antigen:antibody complexes, or look for swelling in white blood cells. The test most frequently useful is that which measures the concentration of the immunoglobulin G, or “IgG”.

Depending in which type of testing is performed, the significant levels will be listed differently. If RAST testing is done, [e.g. Serolab], usually the important foods will have counts greater than 3,000 (or _____). If ELISA testing is done, [e.g. US Biotek], levels greater than “No Reaction” are usually considered relevant.

However, laboratories can make mistakes. Therefore it advisable to experiment with the “problem” foods to see if they actually do produce any problems.

The preferred method is called “elimination diet and challenge testing”. It means strictly avoiding any food which is on the “problem list” (shows an elevated level of antibodies) for about 3 weeks [at least 2 weeks]. Then testing or “challenging” each food one time only, beginning with those foods having the lowest positive [but significant] reaction. Do not eat the tested food again until all problem foods have been tested. The next food is tested after 3 days, (or 24 hours after any reaction has subsided--whichever is first). The amount of the test food is usually not critical. Any amount from 1 tablespoon to 1 quart is acceptable. Other “safe” foods may be eaten at he same meal as the test food.

Observe carefully for any symptoms, especially within the first hour, 6-8 hours after ingestion, and 24 hours after the test meal. It is wise to keep a diary or journal, so you can recall what specific symptoms were experienced, and how long it was after the test meal until they occurred. It is sometimes helpful if a family member also is observing for any personality changes or other objective symptoms.

A typical reaction to a problem food might be as follows. The “problem food” [cheese, for example] is eaten for breakfast at 8:00 am. Half an hour later, you notice some sniffling and sneezing. An hour later, you feel jittery, shaky inside. Four hours after breakfast slight nausea is noted. Seven hours after the test meal [3:00 PM], you get a headache. This continues, gradually worsening, the rest of the day. The following morning you awaken feeling very tired, exhausted. As you drag out of bed, you notice that your joints feel stiff and a little sore. They gradually “limber up” as the day progresses, but you feel tired throughout the entire day. The following morning you awaken beginning to feel more like your normal self. Just eating one problem food once could cause this 48-hour ordeal.

After all problem foods have been tested, decide which ones caused symptoms worse than the trouble of trying to avoid the causative foods. Ideally, one strictly avoids all those foods for a period of 4 to 6 months, after which they are each tested again. The goal is to assist the body in “forgetting” those foods are “problem foods” so they may be safely eaten again. This may take some time, but can be worthwhile.

Another method of dealing with allergy foods is to eat them only occasionally. Eating a problem food at intervals of 4 days or more frequently minimizes the symptoms produced. This can be easier than strictly avoiding the food, though the immune system may not “forget” to “fight” a food that is eaten intermittently. The “bottom line” rule of thumb is to be no stricter about your diet than you need to be in order to feel as good as it is possible for you to feel.

If you would like a more thorough explanation of this topic, please consult one of several excellent books that are available.

Hope this helps.
  • 0


Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)

The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.


Deb O (UK)

    Community Member

  • Advanced Members
  • PipPipPip
  • 48 posts

Posted 06 October 2006 - 09:30 AM

Thanks for your replies and thanks Andrea for the info - I've printed it off to show my husband as it may help him to understand why I get so tired!

This really is a mine-field isn't it? I will keep reading around and I'm sure that I'll try to go dairy free but I just cannot face that right now, still adjusting to gluten-free diet :(

Best wishes to you all, Deb :)
  • 0



    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 102 posts

Posted 07 October 2006 - 04:46 AM

I'm pretty much zonked most of the day and I'm 5 months in. I think it will take a bit longer, and also a balance of vitamins and getting enough rest and exercise. It's not easy, but I've had glimmers of energy for a full day now and then and it's a good incentive to keep going :)

I have a problem with dairy too, much longer than I've problems with wheat and yeast.
  • 0
wheat free & yeast free since may '06
also lactose intolerant

0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: