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How Much Would You Pay For A Pill?


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asdfgh Newbie

I am doing some research on developing potential new therapies for celiac disease and am wondering, how much would you be willing to pay each day if you could take a pill that would let you eat a normal diet? How much would you pay per year?


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RDV Newbie

Thats a good question. at $5 to $6 a loaf of brick like bread and $8 a box for average cornflakes...It adds up..I'd pay a lot if I could afford it. I'd start at $10 to $15 Canadian per week... About $500 to $800 per year...I 'd find that difficult to afford but I'd go for it!!! ...RDV:)

rsavage Newbie

I wouldn't give one red cent for a pill. I have taken pills all of my life because of this disease. I would just keep on with the diet as is. I feel better than ever and have more energy than most 60 year olds should have. Pills? Thanks any way. RS

tarnalberry Community Regular

I wouldn't take it regularly. Following the diet, when you get creative and good with your cooking (branching out where need be) really isn't that hard, and is healthy to boot. I'd consider paying up to $2/dose for special occasions, but that'd be ~twice a year.

gf4life Enthusiast

I agree with Tiffany. I wouldn't use the pill on a daily basis, but would probably use it more than twice a year. Following the diet at home is easy, but we take chances every time we go out of the house and eat somewhere else. I would certainly like the option of having a pill that would lessen the reaction to accidental intake of gluten, but as a treatment everyday, so I could eat all the gluten filled foods I want...NO THANKS!

I don't think it would even be possible to develop a pill that would be able to keep the intestines from being damaged and I would not want to risk my health just to be able to eat more conveniently. I mean even Lactaid doesn't stop a person from being lactose intolerant. They still have to be cautious with dairy foods and it doesn't completely stop every reaction. With gluten we are talking actual intestinal damage, as well as an increase in the risk for intestinal cancer and other complications. It just isn't worth it.

God bless,

Mariann

Thomas Apprentice

I'm not trying to be negative, but life isn't always about taking the easy way...

sunflower Newbie

Do you mean a pill that would cure my celiac disease forever, or a pill that I would have to take everyday, till the end of my life, just to be able to eat gluten?

If you mean the former, I would pay any amount I could afford, even if it would take not just one "magical" pill, but a longer therapy (say, a few weeks or even a few months). If in the end I could hope to be cured, I would give it a try at any cost.

If you mean the latter, I'm not sure I would use it - maybe for special occassions, as the people above already said, and only if I could be sure that it really blocks the damage done to my intestines. Having a pill that would enable us to eat normally sounds just great, but I'd be worried about the side effects of taking any medication every day, for years and years. Surely that cannot be good for your liver. I'd be worried even more that the pill could not be 100% sure - like I'm not sure Lactaid helps you digest every single bit of lactose that you ingest. What if despite taking the pill, there would still be some amounts of gluten left that would hurt your intestines? In my case, I could not know about it for a long time, because I don't have symptoms after small amounts of gluten, but I would still suffer from it in the long run.

To be honest, when I first read the question, it reminded me of an opinion I have read in some newspaper some time ago, stating that it will be a long time before some kind of vaccination for AIDS will be invented, mainly because drug makers gain too much profit from selling all those medications that are believed to help people with AIDS live longer. I am not jumping to conclusions that the question that started this thread was asked with such meaning, and I think any efforts to find remedy for celiac disease should be supported, because some day, someone might manage to find it. Still, as for myself, I'd prefer a treatment for the disease itself and not for its effects only.


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Guest Lindam

How much would I pay for a pill that would allow me to eat anything I wanted and not feel sick, GUARANTEED? Well right now I am on many different medications for celiac disease, which help me dramatically. If I could get rid of all those, take one pill and eat anything....HMMMM I think I would pay what I pay now for scripts monthly, about $100.00. If this magic pill would cure me forever, I would pay whatever I could afford.

I would hope that this pill would come with some sort of guarantee.

I hope this helps with you research.

Linda

crc0622 Apprentice

It is so refreshing to actually hear people say they'd just stick with the diet. We live in such a "take a pill and it'll be okay" kind of time that I expected more people would go with that option. I have to agree. I don't think a medication could be developed which could guarantee that I wouldn't have other problems in the long run. Same kind of reasoning I use in my decision to avoid artificial sweeteners-all of them.

Linda-Do you mind my asking what meds you take? Just curious, as I didn't know anything really helped except gluten-free.

Celeste

EddieJP125 Explorer

does anybody know about any research thats bein done on celiac disease that would give us some hope in the future for us or for our children to not have celiac disease?

i'm wondering how far they are from a cure?

Dwight Senne Rookie

Ditto to most of the other comments. I take ZERO pills or meds, and I like it that way! I will only take a pill if it is life or death - and even then I might stop and think about it!!! :P

Besides, why do I need a pill? I've already been cured! (the diet)

Since this disease is an autoimune disorder anyway, I doubt there ever will be a pill. Seems like more of a genetic engineering thing to prevent our offspring from getting it, rather than us being "cured".

Sadly, this is one of the biggest reasons this disease remains in the shadows. Since there is no pill, you don't have multi-billion dollar pharm. companies advertising on the evening blues every night. Just about everyone knows about acid reflux disease, erectile dysfunction, and a host of others because of these commercials.

Carriefaith Enthusiast

If a celiac pill came out I would probably only use it to avoid cross-contamination when eating out or when eating at other people's houses. I don't know if I would trust it to use all the time. In order to convince me to use it all the time, I'd have to see good scientific results and scientific studies that prove that it works and does not allow any intestinal damage.

I would pay up to 75/year to use only when eating out, which would be about 2-3x a month if I had the pill.

-Carrie

pturse Apprentice

I don't take any pills other than vitamins but if there was a celiac pill, i'd take it probably every day. Not sure how much I'd be willing to shell out for it but I am italian and grew up italian my entire life . . . if there were no other side effects from the pill, I'd have more than one a day!

beelzebubble Contributor

i also would use a pill like that sporadically, maybe once or twice a month, when i go to a bbq or party. it would be nice to be able to pick on something that i normally wouldn't have. i would pay 2 dollars (us) for that.

WHAT I WOULD PAY UPWARDS OF $5 FOR would be a pill that would stop a gluten reaction when it's already started. lol, keep dreaming, bubble.

tarnalberry Community Regular

lol, I would pay $10-$20 for something that would stop a gluten reaction if I got contaminated!

  • 2 weeks later...
Littlewolf Newbie

I know my BF missed pizzia and Olive Garden bread sticks. . .

If there was a pill my consern would be heath before luxury. If a pill a day could help relieve symptoms and help prevent/stop bodily damage it would be a worthwhile investment even if it wasn't a "magic cure". So much like insulin. . .it doesn't mean you can eat all the sugar you want but it makes living with it a ton easier.

gf4life Enthusiast

I agree with the others, I WOULD pay for a pill that would completely stop in it's tracks a gluten reaction from contamination! The amount I would be willing to pay would depend on how well it worked! And as I said before would like the option of preventing a reaction when eating away from home, but why would I need to buy pills to take daily just to eat anything I wanted. I'm healthier now and losing weight for the first time since I was a teenager, and believe me that is a big deal! I am an overweight Celiac who chose to do the diet before I got sick to the point of weight loss and massive intestinal damage. To chose to go back on gluten and trust my new found health to a pill just seems odd to me. It might be nice to have a pill around for when we are on vacation and are eating out at every meal, since it is awful to feel sick while on vacation.

God bless,

Mariann

Pegster Apprentice

If there were a "Gluten-Blocker" that I could take before Thanksgiving dinner at my sister-in-law's or before a special wedding dinner, I'd shell out $5 - $10 for - it to be able to eat without worry. As for a daily pill, I'd rather stay gluten-free, I think. I'm so used to it it's not a big deal.

WayneB Rookie

If a daily pill could be developed to counter celiac disease, that would be a major breakthrough. I would pay $50/month easy. That wouldn't be much to live a normal life.

I am really surprised by some of the earlier replies. A pill would make my life easier as well as my spouse's. Travel would be easier on business trips and it would be great just to have a cold Miller Lite again !!!!

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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
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