Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Happens If You Have Gluten?


kh382

Recommended Posts

kh382 Newbie

I was recently diagnosed with Celiac's, but had not had any symptoms, other than irregular bloodwork and weight loss, but what happens if I unintentionally have gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

I was diagnosed with celiac a year ago and had never had any obvious gastrointestnal symptoms either, until I was gluten-free for a while and accidentally got glutened. For the first time, I experienced the bloating and abdominal pains I kept hearing about. This often happens to people who go gluten-free and haven't presented classic GI symptoms--their lower intestine heals and then boy, do you feel the invading gluten! So, if you start the diet you will begin to heal, and the bad stuff will not be tolerated like it was before. A good thing! :)

schmenge Newbie
I was diagnosed with celiac a year ago and had never had any obvious gastrointestnal symptoms either, until I was gluten-free for a while and accidentally got glutened. For the first time, I experienced the bloating and abdominal pains I kept hearing about. This often happens to people who go gluten-free and haven't presented classic GI symptoms--their lower intestine heals and then boy, do you feel the invading gluten! So, if you start the diet you will begin to heal, and the bad stuff will not be tolerated like it was before. A good thing! :)

Same with me. Never had the "traditional" symptoms until my first glutening after being gluten-free. When people ask what it is like I tell them I will get flu like symptoms for anywhere between hours and days. And of course there is the intestinal damage, but you don't "feel" that.

tarnalberry Community Regular

You may start getting the classic GI symptoms (bloating, pain, loose stools, fatigue, etc.) or you may get neurologic symptoms (brain fog, nerve pain, headaches, etc.) or other systemic systems (joint pain, irritability, etc.). Or you may not notice a whole lot in outward symptoms.

Inside, however, you body will produce antibodies to gluten. Other chemicals, which your lucky celiac genes encode for, will see these, and be triggered to damage your intestines, starting a cascade reaction that can last up to two weeks (it's a nearly self-sustaining reaction, once gluten has caused the antibodies to be created). That damage sets up a whole other immune response in your system (the classic inflammation, "must fight off the bad guy" type of response, only it's your own body that's the bad guy).

Having this happen to any non-trivial (and, no, this is not well defined) degree as little as once a month is tantamount to not following the diet, and leaves you at increased risk of nutritional deficiencies (anemia, osteoporosis, etc.), intestinal cancers, and other autoimmune conditions (rheumatoid arthritis, diabetes, thyroid problems, etc.) That's what we know of, at the moment, anyway.

It's frustrating, for those who don't have obvious symptoms, because there isn't always anything you can feel to remind you to stay gluten free, other than the knowledge that not doing so can, and very likely WILL, cause very VERY significant, costly, and painful complications in the future.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.