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7 posts in this topic

Hello all!

I am writing a speech about celiac disease to promote awareness. I have been unable to find books at my library (specialization books--ie, books only about celiac disease). I hope I find something soon. I am definitely using this site as a source!

Does anyone know of some books (medical/coping) that I could look for?

Thank you! :D

Have a great day,

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Ads by Google:

When I was diagnosed I first checked the internet for information, but also went to the New York Public Library.......nothing.....I think that the web is a much better source of information

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Hi. The only book I was able to find is:

"Living Well with Celiac Disease: Abundance beyone Wheat and Gluten"

by: Claudine Crangle

My Chapters/Indigo Store ordered it for me.

The UPC # is 78155369404500

The Item # is 155369404X

Published in Canada by SarahealthPress, a division of Sarahealth.com Inc.

in association with Trafford Publishing

Trafford Publishing

2333 Government Street

Suite 6E

Victoria, British Columbia

V8T 4P4

Phone: 250-383-6864

Toll Free: 1-888-232-4444 (Canada and US)

website: www.trafford.com

Trafford Catalogue #02-0217

I found it to be a very informative book.....

Have a great day!

Karen

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Jill: Check out all the books from the 'Bookstore' on this site. "Dangerous Grains" by Ron Hoggan is the best physiological explanation of celiac disease. Several other books included in that 'bookstore' discuss how to cope with symptoms and stay gluten free. Good luck! ;)

BURDEE

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I have the book:

Wheat-Free Worry-Free: The Art of Happy, Healthy, Gluten-Free Living

by Danna Korn

2002

This book was a gift from my Mom. It is a great source of info about celiac disease and how to cope.

-Carrie

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Pastor Dave's wife here: Check out Medline (it has numerous articles from medical journals.) Your school library should have a subscription online or you could just look it up on your own (but you won't have access to as many articles.) Medline is great because you can just look up the topic you are interested in and they will pull in all of the research articles for the journals that are online. I use it for my medical research!

Christina RN

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Hi!

Try finding a book called Against The Grain by Jax Peters Lowell. It was written by a women, who had Celiac's before it became popular. :lol: It was the first book, that I read when I was first diagnosed almost ten years ago. I think it will help with your speech. Good Luck!

Vicki :)

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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