Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amazing!

Guest NitaB

By Guest NitaB
in Coping with Celiac Disease

Recommended Posts

Guest NitaB
Guest NitaB
Posted

Okay, I shouldn't be so amazed, but I was! I had some baked beans at my granddaughter's school, for barbecue day. I knew I shouldn't trust them, and just have the bunless burger and lettuce with my own dressing. But, no, it didn't seem like enough food, so took a small serving. Dumb me! Anyway, I don't seem to have much for symptoms, but this time had some stomach distress, and was sluggish and tired for a few days. I've been probably mostly gluten-free for 4+ months, and had felt better for the most part, while I made some mistakes. But, now that I've gotten the hang of this diet, I made that mistake, and learned something from it. I'd been wondering how I would feel if I had gluten food. Now I know! I am so sorry it wasn't over a chocolate cupcake, real pizza, a whole hamburger, or one of my other favorite foods, rather than baked beans! :lol:

Anyone else with a similar stupid story???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BamBam Community Regular
BamBam
Posted

Oh, I think we have all made a stupid mistake at some point, especially in the beginning. My stupid thing was with oats. I didn't understand the cross-contamination" issue and I ate a huge bowl of Chocolate Oaties cereal. The box said wheat free so I just figured they are all right. The products I eat should say "wheat free/gluten free." Anyway the cereal tasted delicious but the four days of burning stomach/abdominal pain just wasn't worth it. So now I bought Chocolate Krispies (made out of rice that are wheat free/gluten free) and they taste even better and I feel great when I eat them.

Bernadette

BRCoats Enthusiast
BRCoats
Posted

Here's a stupid one for you.....

My son drinks rice milk (Rice Dream - yes, I know it's not gluten-free....neither is he). I drink soy milk. Since I am the only one who drinks the soy milk, I just drink it right out of the jug. Well, Rice Dream and my soy milk look quite a bit a like, and I went to take a swig of soy, and got the wrong jug!! I don't really taste it until I've already swallowed it, so it was too late. Felt yuck for two days over one little swig. And the "funny" thing is.....I've done it twice since going gluten-free!!! What a nerd I am!!! :unsure:

LOL...see....we're all dingy sometimes. :blink:

Brenda

jmklingler Newbie
jmklingler
Posted

this might sound kind of dumb but it is easy to do and I didn't think so little would hurt me...

I am Gluten free since Feb-04...I can't handle many of the breads but I have always liked corn pancakes so the gluten-free pancakes are a staple in my house. My wife and son have no problems with gluten and I don't punish them and make them go gluten-free with me although they actually do like the pancakes. Well, while buttering my cakes one day, I must have taken some toast crumbs on the end of the stick with my pancakes...big mistake! I was running every 30 min. for a day and a half and felt sicker than dog!

Lesson learned...have 2 sticks of butter (peanut butter and jelly too)...a gluten-free stick for myself and let the rest of the family have their own.

Take care.

Guest NitaB
Guest NitaB
Posted

Thanks for your replies! I was sure everyone has done some dumb things, too!

My problem is I may be asympomatic, or very nearly! I would not notice cross-contamination, or crumbs! Or maybe I'm so used to a bit of rumbly tummy, that I don't think anything of it??? It makes it so hard to know if I'm getting cross-contamination!

I'm going on my first cruise in 3 1/2 weeks, since going gluten-free. I hope I do okay! Princess line has said they can help me. I'll have to be careful, on my own, as wouldn't want to get sick on vacation! I'm hoping their ham is gluten-free, as then I can have a fresh made omelet for breakfast, which are always good. Those bunless burgers are becoming my usual, or a salad with my own dressing packets, for lunch out. Dinner should be easier.

Anyone else cruised with celiac disease?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,316
    • Most Online (within 30 mins)
      7,748
    Steffieg
    Newest Member
    Steffieg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Canker sores

      By Scott Adams · Posted

      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      Ocd making gluten fears unmanageable. Need advice

      By knitty kitty · Posted

      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      Canker sores

      By Jacki Espo · Posted

      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
    • Dora77
      Ocd making gluten fears unmanageable. Need advice

      By Dora77 · Posted

      What really bothers me is if worrying about getting cc‘d from touching the same door knob as others touched is valid. Seems like an extremely unlikely way to get glutened but i read people saying that.    If thats true then theres realistically zero chance i dont get cc‘d in a non gluten-free household unless i Cook Everything myself and wash my hands multiple times in between and store all of my stuff separately
    • trents
      Canker sores

      By trents · Posted

      Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
×
×
  • Create New...