Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Button Would Be Helpful

YankeeDB

By YankeeDB
in Coping with Celiac Disease

Recommended Posts

YankeeDB Contributor
YankeeDB
Posted

It occurred to me that an organization might sell a fund-raising button or pin that we could wear in the market to ferret out other Celiacs and generally raise awareness. Something like "Support Celiac Disease Research" or something catchier.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted

They do exist. They are a small green ribbon pin (like the yellow "support the troops) . They cost $5 a pin. They are put out by the University of Chicago Hospital and Northeast Ohio Celiac Support Group. I had inquired about them back in May, so not sure if they still have a supply or not, I am sure you could contact them to find out. Here is the info that I got back in May.

Jessica,

We created the celiac disease awareness pin with the Northeast Ohio Celiac Support Group to raise awareness. All proceeds of pins purchased from us will go to support the mission of our organization, which is to raise diagnosis rates for celiac disease in the US through professional and patient education.

Anyone interested in a pin should send a check to:

University of Chicago Celiac Disease Program

5839 S. Maryland Avenue, MC4065, Room C-491

Chicago, IL. 60637

For $5/ per pin plus $.60 postage for an order of 1-10 pins (more than 10, postage is $1.00)

Thanks!

Michelle

mmelinro@peds.bsd.uchicago.edu

lovegrov Collaborator
lovegrov
Posted

Shirts and tote bags here: Open Original Shared Link

richard

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

My Mother bought me a "Wheat Sucks" shirt which I sometimes wear. My Aunt and Grandmother alos bought (different) Celaic shirts which they wear often.

celiac3270 Collaborator
celiac3270
Posted
My Mother bought me a "Wheat Sucks" shirt which I sometimes wear. My Aunt and Grandmother alos bought (different) Celaic shirts which they wear often.

LOL :lol:

angel-jd1 Community Regular
angel-jd1
Posted

I forgot about this one.......... it is called Angelic Grooves. Open Original Shared Link The lady creates bracelets, necklaces, and keychains out of crystals and beads. 20% of the profits go to Celiac Research. The bracelet runs 35$, necklace is 37$, and keychain is 10.99.

This is what the website says :

Celiac Disease Awareness

Celiac disease , also known as gluten intolerance, is a genetic disorder that affects 1 in 133 Americans. Symptoms of celiac disease can range from the classic features, such as diarrhea, weight loss, and malnutrition, to latent symptoms such as isolated nutrient deficiencies but no gastrointestinal symptoms. Those affected suffer damage to the villi (shortening and villous flattening) of the intestines, when they eat specific food-grain antigens, (toxic amino acid sequences) that are found in wheat, rye, and barley. Oats have traditionally been considered to be toxic to people suffering from Celiac Disease but recent scientific studies have shown otherwise.

Both of my daughters, Halle,(6) and McKenze (3) have Celiac Disease.  Now I have been tested also and have confirmed that I have it.  For this reason I have made the Celiac Disease Awareness jewelry (green catseye with peridot Swarvoski Crystals that represent the celiac color) with an awareness ribbon for Celiac Disease. I have chosen a few fundraisers to donate 20% of profits for Celiac Disease.

20% will go to the University of Maryland Center of Celiac Research       

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Wow, I am loking at her stuff right now!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted
The lady creates bracelets, necklaces, and keychains out of crystals and beads. 20% of the profits go to Celiac Research.

I think that's a great idea!

  • 5 weeks later...
Sada Newbie
Sada
Posted

Hi I am new to this board... I have been navigating around today and saw this and thought I should post! I ordered some and it is beautiful! I ordered last June and hardly take it off!!! I get so many compliments on my bracelet and it is really great to raise awareness. I just ordered again for my family and saw they are having a 15 % off the bracelets until the middle of Feburary. Just thought I would pass that around. Look forward to meeting everyone!

Sada

Sada Newbie
Sada
Posted

Edit: OOOPS I messed up and did 2 posts thinking I didn't get the other post done. SORRY! :) New and learning about this! :)

Hi!

I am new here to this board and just thought I would post here!

I love her jewelry. I have had my bracelet since June and wear it all the time! It is beautiul and helps raise awareness! I have compliments on it daily. I just put in another order for my family to have one. The bracelets are 15% off right now until the middle of Feb. Just thought I would post this information!!! :)

I look forward to meeting everyone here.

Sada

  • 1 month later...
Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

LOL! Wheat sucks! That is fantastic! Hopefully I can make it an LJ icon. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,524
    • Most Online (within 30 mins)
      7,748
    Komah
    Newest Member
    Komah
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DebJ14
      Finding gluten free ingredients

      By DebJ14 · Posted

      I did well on gluten-free, but continued to have issues a year down the road.  Testing for food allergies and sensitivities revealed severe IgE allergies to yeast and dairy as well as food sensitivities to 23 other foods.  I got better after taking out those foods, but it was not until the doctor recommended I go completely grain free did all my issues resolve.  No oats, corn, rice etc. for me for the past 10 years or so.  I am actually better at 72 than I was in my 40's!
    • DebJ14
      Newly Diagnosed

      By DebJ14 · Posted

      Personally, I would get a new GP.  Advice to continue eating gluten, even after a Celiac disgnosis, is ridiculous.  Clearly the GP knows nothing about the disease.  That advice could be dangerous to your health.  I too found out by accident.  I was searching for help with ulnar neuropathy.  The first doctor took xrays of my elbow and hand.  Surprise, surprise nothing wrong!  The second doctor took xrays of my neck, but also took a detailed history and gave a complete physical exam. He noted the dermatitis herpetiformis rash, the inability to walk a straight line, the previous miscarriages, history of "irritable bowel" and of course the migraines since childhood.  Blood was immediately drawn and a skin biopsy taken and genetic tests done.  When all 3 were positive, I was given the opportunity to opt out of the endoscopy, which I did due to a history of adverse reactions to sedation.  Oh, and the ulnar neuropathy turned out to be bone spurs at C 6 and C7 pushing on the nerve root.  6 weeks of chiropractic care took care of that and a gluten-free diet took care of the rest.
    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      @Rebeccaj, You may choose to get tested to see if you have an allergy to wheat.  That's a different type of immune response to wheat than Celiac Disease.  It's possible to have both.  You may need an Epipen. A histamine release in the sinuses upon being exposed to wheat in wheat allergy can cause a headache.    Talk to your doctor about wheat allergy testing.
    • Russ H
      symptoms.

      By Russ H · Posted

      Although sensitivity to gluten varies between individuals, multiple research studies suggest that consuming up to 10 mg of gluten a day is safe for most people with coeliac disease. Wheat flour contains approximately 10% gluten by weight, so this is equivalent to 100 mg of flour, or a piece of wheat bread the size of a small pea. There is a case report of farmers with coeliac disease developing symptoms from inhaling gluten containing dust from cattle feed but that is an extreme example and they were exposed to very high concentrations of airborne gluten over a long period of time. In a domestic situation, unless someone is making dough and putting a lot fo flour into the air, I don't think you will get significant airborne exposure. The thing to watch out for is making sure work surfaces, cutlery and utensils are clean. If you have to share a toaster, get some toasting pouches.
    • Fabrizio
      Kan-101

      By Fabrizio · Posted

      So? What do you think it will go ahead? Did you partecipate to this trial? what's the result for yuo? Thanks a lot for your answers!
×
×
  • Create New...