Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk Questions

GhostLady

By GhostLady
in Related Issues & Disorders

Recommended Posts

GhostLady Newbie
GhostLady
Posted

I also posted these questions under my thread "Desperately seeking opinions and advice" in the pre diagnosis section but I thought I would also post it here for those that don't want to read my long and boring post over there.

I have not yet been diagnosed with celiac. I am still going through testing, therefore I am still eating gluten. For the last few days I have been keeping a food/symptom log to take to my Dr. on Tuesday. Most of my symptoms do seem to be related to gluten but now I am thinking that milk might also be a problem.

Every time I ingest even a little bit of milk, I get really nauseous. So far it seems to only happen with milk. I can eat butter/margarine and cheese without any problems. I haven't eaten any other dairy since I started the log so I'm not sure about anything else yet.

Is it possible that I only have a problem with milk and not all dairy???

Is it also possible that it could only be something in whole milk and not all milk?

I used to only drink 2% milk and didn't notice any problems with that. (of course I wasn't keeping a log then either) I haven't tried to switch back to 2 % or skim yet so I can't say for sure but I was just wondering if there is something in just whole milk that might be causing me problems.

I'm so new to all of this so I'm still learning about what ingredients are in what. Any help would be greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


HAK1031 Enthusiast
HAK1031
Posted

It's possible that your sensitivity just hasn't escalated to the point where you can't tolerate processed dairy. I haven't had a glass of milk in 6 months, but if I have one yogurt it's usually not the end of the world. I don't do cheese though- never liked it much, and now it makes me sick. And I can usually have dairy in baked goods, or cheddar popcorn, things like that.

Almost all celiacs are lactose intolerant to a degree at first. It may go away overtime, but I would lay off all dairy for a few months to heal after dx.

irish daveyboy Community Regular
irish daveyboy
Posted
Every time I ingest even a little bit of milk, I get really nauseous. So far it seems to only happen with milk. I can eat butter/margarine and cheese without any problems. I haven't eaten any other dairy since I started the log so I'm not sure about anything else yet.

Is it possible that I only have a problem with milk and not all dairy???

Is it also possible that it could only be something in whole milk and not all milk?

I used to only drink 2% milk and didn't notice any problems with that. (of course I wasn't keeping a log then either) I haven't tried to switch back to 2 % or skim yet so I can't say for sure but I was just wondering if there is something in just whole milk that might be causing me problems.

I'm so new to all of this so I'm still learning about what ingredients are in what. Any help would be greatly appreciated.

.

Hi 'GhostLady',

If you are 'Lactose' intolerant, as a general rule the

HIGHER a fat content the LOWER the Lactose.

.

2% milk would have more lactose than Full Milk.

Butter, cheese etc would be higher in fat and have less lactose than Milk.

.

So using a LOW Fat or NO Fat milk or milk product (while it is generally healthier)

It is HIGHER in Lactose (up to 52% in some cases of Skim milk powder)

.

Open Original Shared Link

.

Hope this helps.

.

Best Regards,

David

GhostLady Newbie
GhostLady
Posted
  • Author

Thank you both for your replies.

HAK1031,

You are probably right. I had already planned to give up dairy for a while until I heal and then try to reintroduce it later. I am starting the gluten-free, df, diet next Saturday as soon as my testing is complete.

David,

Thank you for the info. That makes sense. The weird thing is that I seem to do better with the milk that is lower in fat. I feel worse after consuming whole milk. I would think it should be the other way around. I haven't been keeping the food log very long though so it's hard to say at this point. It might not even be the milk causing my symptoms. It could just be a left over symptom from some gluten I'd had earlier. Either way, I am going to give up gluten and dairy soon. Hopefully I will be able to go back to dairy in a few months without any problems.

Thank you both again...

ThatlldoGyp Rookie
ThatlldoGyp
Posted

Hi, no disrespect, but Irish is confused. Cheese has very LITTLE lactose in it. Go here: Most lactose intolerant people (including myself) can tolerate it just fine!

Open Original Shared Link

"Most of the lactose is removed from the cheese with the whey during the manufacturing process. As a result, most ripened cheeses contain about 95 percent less lactose (.4 to 1 gram per serving) than whole milk (9-12 grams per serving), and less even than Lactaid milk (3 grams per serving), a brand of fluid milk that has most of the lactose specially removed."

try taking a lactase pill. If you have celiac it is probable that you do not have the tips of your villi where lactase is produced by your own body. This is a great forum, it is my fav and I read every day for about an hour... but you do need to check up on things if you find they are not jiving with your own experience! You are able to drink lower fat milk and not whole, so I am wondering if it is milkfat without the cultures of cheese and yogurt helping your gut out? How do you do with cream or ice cream? Usually if you can do skim ok, but whole or cream makes you ill, then you want to think possible IBS because of the fat bothering you.

Cultured Butter also has minimal lactose, but I have read conflicting info about regular N. American butter and lactose content... so to avoid the whole issues, I always buy cultured butter (made from buttermilk) go here:

Open Original Shared Link

but he is right that the less rich the milk, the higher the lactose the milk! go here this is a great link, it also discusses IBS and milk issues. :

Open Original Shared Link

I am sorry to keep editing, but here is a link that I thought would be the most helpful to you:

Open Original Shared Link

Open Original Shared Link

and here:

Open Original Shared Link

  • 2 weeks later...
libbymcm Newbie
libbymcm
Posted

I been diagnosed with Coeliac Disease (in late 2005) after years of discomfort, and only then as a result of an emergency which required me to be treated by a specialist other than my usual one ... who had not found the problem. However, I am beginning to wonder if I have a lactose problem too - it seems to be most evident after eating cream which seems to run counter to the opinions in this list which mention that the higher the fat content, the less lactose. The symptoms are noticeable and as a devotee of creme brulee, I have been trying to ignore the possible connection. I have been having panna cotta lately too - and have noticed a trend to feeling very uncomfortable after that too - so it is beginning to be a picture. However, yoghurt does not seem to be a problem, neither does aged cheese. I have noted that brie and other soft cheeses often leave me feeling less than well. I have totally eliminated gluten from my diet ( although there some possible breaches when others are cooking - although I try to be 100% free at all times). Does anyone have any ideas on this? I have been avoiding dealing with this - but there does now seem to be a patter, Regards Libby

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      22

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    2. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    3. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
    4. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Here is a link to the spreadsheet I kept to track my nutrition intakes. Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/...
    5. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

      Hello @catnapt, That's so true. Every person with Celiac Disease has different symptoms. There are over 200 that it mimics. Too many still believe that it is only a childhood disease you outgrow. Or it's psychosomatic or simply a fad. Idiots. It's easy to get angry at all of them. You just have to pick at the answers until you find...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748
    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.