Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety


BamBam

Recommended Posts

BamBam Community Regular

Hi,

For the last twelve years I have had lots of stomach pains, diarrhea, accidents etc. I am feeling a lot better now that I am gluten free. But I still get anxious when I travel, or when I know the bathroom is a long distance away. My husband travels a lot with school kids, and I would just love to go with him, but the fear of having an accident keeps me from going anywhere. I will travel with him, but am afraid to travel with other people, having an accident is just so embarrassing. Do we ever get "regular" again?

BAM


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
<_< its an irrational fear that you may not ever get rid of--i know i panic when i dont know where the bathroom is or i am where there isnt one and i have been gluten-free for over 3 1/2 years--it's because we have been through so much before going gluten-free and we still dont trust our bodies---its a trust that doesnt come back easily---i do have very good days where i can go without knowing where each bathroom is along the way----maybe with time you will feel safer---it's hard, i know--i live it too--we do get regular, but sometimes that irrational fear will make us panic and then we have to go--its a vicious cycle for us---try talking to yourself and reminding you that you will be fine----i have to do the driving, i can ride with my boyfriend, but only him, no one else--i know i havent helped you, but i have reminded you there are others of us out here that feel the same way----i do have good days--more good then not :lol: deb
MySuicidalTurtle Enthusiast

I am still suffering from that anxiety. I went to therapy and started anti-anxiety medication after my dignosis. It really helps a lot!

KaitiUSA Enthusiast

I still have anxiety as well. It's alot better then before but it's still there. Once you try things a few times with success you will trust your body more. I went to therapy and they told me it was a fear of what might happen since so many times I have went to do things and started not feeling well and I was just expecting something like that to happen.

I started on medications but I eventually was able to get off of those pills thankfully:)

Good luck:)

Guest Viola

Yes ... anxiety is a real tough one to get rid of. I have been gluten free for about 17 years, and still have some of those problems. I think maybe because every time you start to get comfortable you run into a contamination. I think what helped me the most is a few, very close friends getting me out of the house for short periods of time, to start with and then extending the time. They even helped me find the bathrooms :D I am probably more confident than a lot of Celiacs now, but that comes with time and the fact that I'm very careful what I eat for two or three days before an important outing. Well ... I'm always careful, but before an outing I never try anything new and go back to the very basics. Hope this helps some :)

Guest Viola

Oops ... I forgot. If it's an un-planned event, and I start getting nervous about it and of course, we all know what happens when we get nervous and tie up those stomach muscles, then I take my old friend "Imodium". It's got me through more than one occasion :lol:

Merika Contributor

It is so nice to hear that I am not the only one suffering from this! Before diagnosis, I had a career counselor psychologist (?) say it sounded like i had agoraphobia. At first I thought she was nuts. Then i realized i was nuts, lol.

I found a book at the library that was very helpful with anxiety called "Fearless Living: (something more...)" by Judith Marquart (sp?). It's also available from Amazon. Come to think of it, I think I may check it out again....I'm in need of a refresher :)

btw, does anyone have any advice on how to help dh's deal with this sort of thing? Mine is very understanding, but still....feels limited in going places sometimes, though tell him to go solo or whatever, if i just don't feel well. I may post this over in the "friends of" section...

Thanks,

Merika


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    2. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,012
    • Most Online (within 30 mins)
      7,748

    jsslynjnes25
    Newest Member
    jsslynjnes25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  One of the symptoms of Thiamine deficiency is difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD symptoms as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.