Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety


BamBam

Recommended Posts

BamBam Community Regular

Hi,

For the last twelve years I have had lots of stomach pains, diarrhea, accidents etc. I am feeling a lot better now that I am gluten free. But I still get anxious when I travel, or when I know the bathroom is a long distance away. My husband travels a lot with school kids, and I would just love to go with him, but the fear of having an accident keeps me from going anywhere. I will travel with him, but am afraid to travel with other people, having an accident is just so embarrassing. Do we ever get "regular" again?

BAM


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
<_< its an irrational fear that you may not ever get rid of--i know i panic when i dont know where the bathroom is or i am where there isnt one and i have been gluten-free for over 3 1/2 years--it's because we have been through so much before going gluten-free and we still dont trust our bodies---its a trust that doesnt come back easily---i do have very good days where i can go without knowing where each bathroom is along the way----maybe with time you will feel safer---it's hard, i know--i live it too--we do get regular, but sometimes that irrational fear will make us panic and then we have to go--its a vicious cycle for us---try talking to yourself and reminding you that you will be fine----i have to do the driving, i can ride with my boyfriend, but only him, no one else--i know i havent helped you, but i have reminded you there are others of us out here that feel the same way----i do have good days--more good then not :lol: deb
MySuicidalTurtle Enthusiast

I am still suffering from that anxiety. I went to therapy and started anti-anxiety medication after my dignosis. It really helps a lot!

KaitiUSA Enthusiast

I still have anxiety as well. It's alot better then before but it's still there. Once you try things a few times with success you will trust your body more. I went to therapy and they told me it was a fear of what might happen since so many times I have went to do things and started not feeling well and I was just expecting something like that to happen.

I started on medications but I eventually was able to get off of those pills thankfully:)

Good luck:)

Guest Viola

Yes ... anxiety is a real tough one to get rid of. I have been gluten free for about 17 years, and still have some of those problems. I think maybe because every time you start to get comfortable you run into a contamination. I think what helped me the most is a few, very close friends getting me out of the house for short periods of time, to start with and then extending the time. They even helped me find the bathrooms :D I am probably more confident than a lot of Celiacs now, but that comes with time and the fact that I'm very careful what I eat for two or three days before an important outing. Well ... I'm always careful, but before an outing I never try anything new and go back to the very basics. Hope this helps some :)

Guest Viola

Oops ... I forgot. If it's an un-planned event, and I start getting nervous about it and of course, we all know what happens when we get nervous and tie up those stomach muscles, then I take my old friend "Imodium". It's got me through more than one occasion :lol:

Merika Contributor

It is so nice to hear that I am not the only one suffering from this! Before diagnosis, I had a career counselor psychologist (?) say it sounded like i had agoraphobia. At first I thought she was nuts. Then i realized i was nuts, lol.

I found a book at the library that was very helpful with anxiety called "Fearless Living: (something more...)" by Judith Marquart (sp?). It's also available from Amazon. Come to think of it, I think I may check it out again....I'm in need of a refresher :)

btw, does anyone have any advice on how to help dh's deal with this sort of thing? Mine is very understanding, but still....feels limited in going places sometimes, though tell him to go solo or whatever, if i just don't feel well. I may post this over in the "friends of" section...

Thanks,

Merika


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.