Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If B12 Improves My Chest/left Arm/left Shoulder Blade Pain, Is It Heart Related Or Brain Related?


littlelymie19

Recommended Posts

littlelymie19 Rookie

Hey everyone,

For about 5 days now I've been having really intense chest pain, left arm pain, left shoulder blade pain and occasional pain on the left side of my jaw. Of course, these are symptoms of a heart attack so I went to the ER the second night of this excruciating pain...but my chest xray and EKG were normal.

Along with this I've also had extreme nausea and weakness, with occasional dizziness. Basically, I'm couch-ridden. Everything gets worse when I move around. So I'm just chillin :)

But anyways, my doctor took me off of all my supplements when this happened, but now im slowly adding things back in . I've noticed though that after taking my sublingual B12, my pain and nausea get a little better for a little while.

I'm wondering, does that indicate that the problem is with the heart, or when the brain (neuropathy?)? I know you all aren't doctors, but I thought I'd ask because I know a lot of you guys have experience with B12 issues and deficiencies.

Thanks everyone, I appreciate your input! When it's the heart that may be causing symptoms, things can be a little freaky!

Hope you are all well!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The One Apprentice

Hi Lymie, I can sympathize with you! Right about the same time i was diagnosed with Celiac about a year and a half ago I began with a pain on the left ribcage, eventually it got worse and landed me in the ER several times, it went up to the shoulder, arm and chest and of course I was really scared, I've had xrays, EKG's and everything comes back normal. I was told it could be a hernia, who knows, might be worth looking into. But from my research online it all comes back to some type of neuropathy I believe it was called radiculopathy. I do notice that when i am hungry it gets worse, but that's because I have diabetes and it seems my body gets weak as blood sugar goes low. Either way, I would say that if you are responding to B12 supplements it sounds to me like it would be related to the nervous system rather than the heart, of course I'm no doc! just someone who's looked online a lot about left side pain ;)

AJ

fedora Enthusiast

you may want to see a physical therapist. They can evaluate you for misalignments. Mine causes pain in my left jaw(tmj), left side of back, left shoulder and left arm. I have all these exercises to do regularly and they help.

  • 2 weeks later...
nanafur Newbie

How freaky, you are having the exact same symptoms I have had for a long time. Please let me know if you learn anything new!

My MD told me a few months ago that he thought the dizziness had something to do with a dumping syndrome where you stomach doesn't empty right causing too much blood to go to the stomach to aid digestion. I'm not sure if its right but my dizziness does get worse when I eat a lot. I've been having TMJ treatment from chiropractor and special dentist for years and its helped with the jaw and neck pain but not for the shoulder, chest and side. I did recently get diagnosed with a couple of ulcers (they were bleeding a little and hurting a lot!). I can tell now that the chest, back, shoulder and side pain definitely get worse when the ulcer hurts so I've been thinking they may be related. My GI doc thinks I've had the ulcers for a long time so maybe they were causing the pain all along.

I just don't know what connects them all. I'm starting to believe its bacterial overgrowth or candida. I have been keeping a small food log and I can tell that the pain, dizziness and palpitations get a lot worse after I eat cheese but I just can't stop eating cheese. I have been diagnosed with a milk allergy so maybe its just the cheese alone, but I don't think so. My dairy cravings get worse every day so I'm thinking that the bacteria inside me is living off dairy. I plan on cutting out dairy to see if that helps.

I also looked up B12 in my vitamin book and it helps with nerve pain. YOu will be more prone to pain if you are deficient which most people with any food allergies or intolerance are. Shortage of B12 also causes fatigue.

  • 1 year later...
nyctexangal Rookie

I have cosotchondritis (chest pain). I was just diagnosed with Celiac as well 2 weeks ago. I have the nerve pain in my hands, arms, and right rib cage and fatigue as well. Booo. I'm learning that when I take B12 vitamins, the pain is far less and I'm less fatigued.

I was taking 1500 mcg of B-12's and changed my daily vitamins brand last week and my pain has gotten worse. Just checked the label- only 80 mcg of B-12- eek! :blink: Headed now to get more B vitamins so that the pain will subside while I'm healing. yay! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    3. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    4. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    5. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,958
    • Most Online (within 30 mins)
      7,748

    DLA
    Newest Member
    DLA
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.