Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If B12 Improves My Chest/left Arm/left Shoulder Blade Pain, Is It Heart Related Or Brain Related?

littlelymie19

By littlelymie19
in Related Issues & Disorders

Recommended Posts

littlelymie19 Rookie
littlelymie19
Posted

Hey everyone,

For about 5 days now I've been having really intense chest pain, left arm pain, left shoulder blade pain and occasional pain on the left side of my jaw. Of course, these are symptoms of a heart attack so I went to the ER the second night of this excruciating pain...but my chest xray and EKG were normal.

Along with this I've also had extreme nausea and weakness, with occasional dizziness. Basically, I'm couch-ridden. Everything gets worse when I move around. So I'm just chillin :)

But anyways, my doctor took me off of all my supplements when this happened, but now im slowly adding things back in . I've noticed though that after taking my sublingual B12, my pain and nausea get a little better for a little while.

I'm wondering, does that indicate that the problem is with the heart, or when the brain (neuropathy?)? I know you all aren't doctors, but I thought I'd ask because I know a lot of you guys have experience with B12 issues and deficiencies.

Thanks everyone, I appreciate your input! When it's the heart that may be causing symptoms, things can be a little freaky!

Hope you are all well!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The One Apprentice
The One
Posted

Hi Lymie, I can sympathize with you! Right about the same time i was diagnosed with Celiac about a year and a half ago I began with a pain on the left ribcage, eventually it got worse and landed me in the ER several times, it went up to the shoulder, arm and chest and of course I was really scared, I've had xrays, EKG's and everything comes back normal. I was told it could be a hernia, who knows, might be worth looking into. But from my research online it all comes back to some type of neuropathy I believe it was called radiculopathy. I do notice that when i am hungry it gets worse, but that's because I have diabetes and it seems my body gets weak as blood sugar goes low. Either way, I would say that if you are responding to B12 supplements it sounds to me like it would be related to the nervous system rather than the heart, of course I'm no doc! just someone who's looked online a lot about left side pain ;)

AJ

fedora Enthusiast
fedora
Posted

you may want to see a physical therapist. They can evaluate you for misalignments. Mine causes pain in my left jaw(tmj), left side of back, left shoulder and left arm. I have all these exercises to do regularly and they help.

  • 2 weeks later...
nanafur Newbie
nanafur
Posted

How freaky, you are having the exact same symptoms I have had for a long time. Please let me know if you learn anything new!

My MD told me a few months ago that he thought the dizziness had something to do with a dumping syndrome where you stomach doesn't empty right causing too much blood to go to the stomach to aid digestion. I'm not sure if its right but my dizziness does get worse when I eat a lot. I've been having TMJ treatment from chiropractor and special dentist for years and its helped with the jaw and neck pain but not for the shoulder, chest and side. I did recently get diagnosed with a couple of ulcers (they were bleeding a little and hurting a lot!). I can tell now that the chest, back, shoulder and side pain definitely get worse when the ulcer hurts so I've been thinking they may be related. My GI doc thinks I've had the ulcers for a long time so maybe they were causing the pain all along.

I just don't know what connects them all. I'm starting to believe its bacterial overgrowth or candida. I have been keeping a small food log and I can tell that the pain, dizziness and palpitations get a lot worse after I eat cheese but I just can't stop eating cheese. I have been diagnosed with a milk allergy so maybe its just the cheese alone, but I don't think so. My dairy cravings get worse every day so I'm thinking that the bacteria inside me is living off dairy. I plan on cutting out dairy to see if that helps.

I also looked up B12 in my vitamin book and it helps with nerve pain. YOu will be more prone to pain if you are deficient which most people with any food allergies or intolerance are. Shortage of B12 also causes fatigue.

  • 1 year later...
nyctexangal Rookie
nyctexangal
Posted

I have cosotchondritis (chest pain). I was just diagnosed with Celiac as well 2 weeks ago. I have the nerve pain in my hands, arms, and right rib cage and fatigue as well. Booo. I'm learning that when I take B12 vitamins, the pain is far less and I'm less fatigued.

I was taking 1500 mcg of B-12's and changed my daily vitamins brand last week and my pain has gotten worse. Just checked the label- only 80 mcg of B-12- eek! :blink: Headed now to get more B vitamins so that the pain will subside while I'm healing. yay! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,020
    • Most Online (within 30 mins)
      7,748
    Ericaa
    Newest Member
    Ericaa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.