Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Begging For Help - Mil Can't Absorb Potassium


Don Mills Diva

Recommended Posts

Don Mills Diva Newbie

Hi,

I am so hoping that someone can help me.

My beloved mother-in-law has been celiac for many years and was very recently diagnosed with cancer of the lymph nodes. She had her first chemo treatment a week ago and had severe side effects that has necessiatated her hospitalization.

One of the major problems is that her body cannot seem to hold onto potassium and right now the doctors can't figure out why or how to counteract it. They are currently trying to figure things out but cannot proceed with further chemo treatments for her cancer until her potassium count is at a normal level and will stay there.

This is not a ? of her not getting the potasssium - she has been taking a supplement and is currently on a drip - it's a ? of why her body refuses to hold onto it.

Any and all insights are gratefully accepted - we are sick with worry.

Thanks in advance,

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, whatever you find out, it might be difficult to convince the doctors of it. Since they don't already know the answer, that suggests it isn't in the medical literature, so I'd suggest gathering a lot of data and evidence to present to them.

The first thing which comes to mind is that deficiencies in other nutrients may be causing the loss of potassium. Magnesium is one such possibility. Also, the type of potassium supplement may also need to be changed.

Here are some articles on potassium, which will hopefully help you:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Take note of what this says about Angiotension Converting Enzyme:

Open Original Shared Link

I hope this helps. Please ask any questions you may have, and let us know what happens!

Mother of Jibril Enthusiast

Potassium is tricky, because it's not a typical vitamin/mineral where you can just add more. From what I understand, sodium and potassium are the two main electrolytes that control the flow of water in and out of your cells (osmosis). If your potassium is low, then your sodium is probably high (and vice versa). One of the symptoms of Addison's disease, for example, is high levels of potassium... which is why people with that condition tend to crave salt. One of the "treatments" for Addison's is purposefully adding extra salt to your diet, which forces the potassium back into balance.

I'm sorry your MIL is having such a difficult time! Obviously, cancer and cancer treatment is very stressful on the body... could she be having a problem with her adrenal glands?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    2. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    4. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748

    DJD
    Newest Member
    DJD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.