Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Begging For Help - Mil Can't Absorb Potassium


Don Mills Diva

Recommended Posts

Don Mills Diva Newbie

Hi,

I am so hoping that someone can help me.

My beloved mother-in-law has been celiac for many years and was very recently diagnosed with cancer of the lymph nodes. She had her first chemo treatment a week ago and had severe side effects that has necessiatated her hospitalization.

One of the major problems is that her body cannot seem to hold onto potassium and right now the doctors can't figure out why or how to counteract it. They are currently trying to figure things out but cannot proceed with further chemo treatments for her cancer until her potassium count is at a normal level and will stay there.

This is not a ? of her not getting the potasssium - she has been taking a supplement and is currently on a drip - it's a ? of why her body refuses to hold onto it.

Any and all insights are gratefully accepted - we are sick with worry.

Thanks in advance,

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, whatever you find out, it might be difficult to convince the doctors of it. Since they don't already know the answer, that suggests it isn't in the medical literature, so I'd suggest gathering a lot of data and evidence to present to them.

The first thing which comes to mind is that deficiencies in other nutrients may be causing the loss of potassium. Magnesium is one such possibility. Also, the type of potassium supplement may also need to be changed.

Here are some articles on potassium, which will hopefully help you:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Take note of what this says about Angiotension Converting Enzyme:

Open Original Shared Link

I hope this helps. Please ask any questions you may have, and let us know what happens!

Mother of Jibril Enthusiast

Potassium is tricky, because it's not a typical vitamin/mineral where you can just add more. From what I understand, sodium and potassium are the two main electrolytes that control the flow of water in and out of your cells (osmosis). If your potassium is low, then your sodium is probably high (and vice versa). One of the symptoms of Addison's disease, for example, is high levels of potassium... which is why people with that condition tend to crave salt. One of the "treatments" for Addison's is purposefully adding extra salt to your diet, which forces the potassium back into balance.

I'm sorry your MIL is having such a difficult time! Obviously, cancer and cancer treatment is very stressful on the body... could she be having a problem with her adrenal glands?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,487
    • Most Online (within 30 mins)
      7,748

    Karen Murphy
    Newest Member
    Karen Murphy
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.