Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Clueless...


lPa1nl

Recommended Posts

lPa1nl Newbie

Well first off, Hi to everyone on the forum, I am new here. I am posting here mainly out of pure hope that I might be able to gain some knowledge. My girlfriend of 4 years and I are planning on moving in together in my house. She was found to have this disease about 16 months ago. Along with her trying to be gluten-free she also has severe problems with sugar and corn products. So lets just say it makes it interesting when we try and go out to eat and or cook something at home. I have become pretty good at reading ingredient labels and scouring the internet for Girlfriend friendly recipes that I can cook for her.

I must say she does post on this forum (Hi Honey!), and that the last 8-12 months she has buckled down and stuck to these new restrictions and is doing great. I try my best to support her in every way I can but I guess its just hard for me to grasp this disease, mainly because I am only allergic to penicillin and have never had any serious health issues like this.

We have agreed that it would be in our best interests to have a gluten-free house. So given the fact that we are going to move into a house together and going to try and have kids. Is there anything you people might think I can do to make it easier on her to continue the progress she is making?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

That is very supportive of you. The best thing to do is keep the house gluten free to ensure she will not get sick. Are you going to follow the diet as well? If not you should mouthwash or something after eating so when you kiss her you do not contaminate her. The best thing you can do is continue to be supportive and encourage her with the progress she is making and help when you can. Coming here you can learn so much info of good gluten free products if you wanted to cook for her and other things...if you have any questions just ask.

lPa1nl Newbie

Yea, I also plan to follow the diet with her. It will make it allot easier if I follow along rather than bring in gluten-free products into the home and possibly contaminate her. I am thinking that especially if we have kids and they to need to be gluten-free. I have made stuffing for her at thanksgiving out of millet bread, so its possible will just take a little bit more effort on my part to help her out.

Guest Leidenschaft

A supportive spouse makes such a huge difference!! :rolleyes: Pat yourself on the back for your efforts so far, and definitely keep checking this site for support and info!

My hubby has been wonderfully supportive through my diagnosis, the grieving, and the change of lifestyle! He even makes sure the wine rack is always topped up (and he makes the wine too!), since I can't share a cold beer with him anymore! :angry::lol:

However, he does not live gluten-free, and that's completely fine too! We have our kitchen cupboards organized (and CLEARLY marked!) as Safe, gluten-free Products ONLY (mainly for inventory purposes, I don't have to hunt for my specialized items), and NOT Safe. There is only one little NOT Safe cupboard, and it's buffered by canned goods so there isn't any cross contamination from his Not Safe cupboard. We also have the Gluten Zone where he has his bread and toaster. I take responsibility to ensure that IF I am in his zone, I am extra careful, although he does clean up after himself quite well! :D The rest of the kitchen is mine to assume gluten-free... however I do keep a vigilant eye on things, especially the shared microwave.

I can honestly say that in 16 months of gluten-free living, I can not blame any gluten incidents on carelessness. :)

Being supportive and understanding when the celiac disease patient DOES get "glutenated" is also very important. He/She may feel like crap (no pun!) for days, or may just be mildly irritable and not even associate it with gluten.

It's a tough job being the SO of the celiac disease patient, sometimes it can be very frustrating, the extra time everything takes, dealing with the ignorance of others, and the occasional pity parties we are prone to... :(

Your "honey" can count herself among the lucky, and should give you a great big HUG! :lol:

Good luck!

kabowman Explorer

I am the only one in our house of 5 and while we have a "mostly" gluten-free house, we keep stuff like regular mac & cheese and frozen pizzas for the kids and hubby. All condiments are off limits to me so those are no problem with cross contamination. We also keep "normal" bread on hand (for the cost issue) which you have to watch. Anyway, I can go for weeks without a problem then all of a sudden, something that should be safe, makes me sick. Maybe the kids used one of the wooden utensils for the butter (soy and corn), maybe, the skillet didn't get clean enough, etc.

Clean out all cabinets as you move - throw away everything with corn and gluten. Keep a separate cabinet for your foods that may make her sick (my cabinet arrangement is the opposite since I am definitly the minority!!!) like cereal.

My husband cooks as much or more than I do and we don't make anything for the family that I cannot eat - if we do, like pizza night, mine goes first so the fumes from the yeast and cheese won't contaminate my pizza. All meals are gluten-free except for the rare sides or bisquits and gravy for one of the kids because, you just can't substitute some things!

Good luck and glad you guys seem to be on the right track...

tarnalberry Community Regular

Keep going as you're doing! You sound like you're very supportive and understanding of the challenges she's facing. The more you cook at home, the more you'll get a good grasp on easy, tasty, fun things to cook at home that are safe. Particularly with corn issues, you may need to do a lot of cooking from scratch, but with practice, it'll be easy to cook from scratch at home without taking hours.

You may want to replace some of the items in your kitchen so she doesn't get any contamination. Definitely replace the toaster and collander, but also look into replacing pots that may be difficult to clean (like cast iron) and wooden spoons.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.