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Has Anyone Had A 0 On The Ttg Blood Test?

no-more-muffins

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no-more-muffins Apprentice
no-more-muffins
Posted

I am seriously confused by some of my results. The more I have been researching things the more I think my blood tests may not be valid. I have heard that having a 0 on the tTG test seems suspicious, and that everyone pretty much has at least some tTG present if they sufficiently make IgA.

My total IgA was 115, (normal range 68-378)

My tTG was 0 (range 0-19 being normal)

I got tests from enterolab for gluten sensitivity that came back as a 6 (anything over a 10 is positive.)

My symptoms:

weight loss, short stature, failure to grow as a child, late puberty, anxiety, depression, eczema, constant nausea, frequent loose BM, hand tremors, joint pain, headaches, insomnia, fatigue, menstrual irregularities, periodontal disease, endometriosis (14 years ago).

I have seen improvement with a gluten-free diet.

My 21 month old dd was positively diagnosed at enterolab as having gluten sensitivity (18 units on the test).

Anyone have any insight on this? I can't figure out why my gluten tests at enterolab could be negative.

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Switch2GF Rookie
Switch2GF
Posted

Blood tests are not the "official" way to diagnose, they are just an easy first step.

My dad's blood work also came up with a 0. They determined that some people's body just don't produce the antibody that they are looking for.

An endoscopy is the true way of diagnosing. If you and your doc want to be 100% sure, then this is the next step. Best of luck!

darlindeb25 Collaborator
darlindeb25
Posted
An endoscopy is the true way of diagnosing. If you and your doc want to be 100% sure, then this is the next step.

This is not necessarily true either. A good share of doctors miss a diagnosis with the endoscopy. either they do not know what they are looking at, or they do not get enough samples, so many varitables.

Recently, Dr. Peter Green stated a positive blood test is proof. This is something new from him. I think soon, we will hear many new thoughts on gluten intolerance/celiac disease.

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      By knitty kitty · Posted

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
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      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

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      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
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