Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neg. Blood Result With Stomach Pains Present


sarahnaser

Recommended Posts

sarahnaser Rookie

hello i am new to this board. hope everyone is doing well. my daughter will be 6 in April. she has had food allergies to wheat, eggs, food colors chicken , fish. so her diet is very minimal. now she has developed a new set of problems. the stomach aches. . In sept she started full day kG. so she eats when she come home but everything gives her a stomach ache. I stopped the dairy hoping things will improve but she still has pains.

The doctors suspect celiac disease. they did the blood test (IGA) but it came out neg. we are in New jersey. Is the entrolab gene test for all the US residents? HOW about the proth... lab. i read about those 2 labs in other posts. Other than the stool test what else can the doctor check? any one with similiar problems?

plus can i have some hints on breakfast food( without egg pls)? she doesn't like the packaged gluten-free foods. i tried some with her since she has the wheat allergy.

sarah N


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

how about apples and peanut butter?

Guest jhmom

Hi Sara, welcome!!! :D

I read where your daughter has an allergy to wheat but is she currently on a gluten-free diet?? If not that could explain the stomach pain she is experiencing. Even after going gluten-free she may still have some stomach pain for a few weeks/months. It must take a while for all the toxins (gluten) to get out of our system. I have been gluten-free since Sept and still have the occasional pains as well as my 8-year-old daughter. ;)

Just because the blood test your doctor ordered came back negative does not mean your daughter does not have celiac disease/gluten sensitivity. Some people go many years and endure many blood test and medical procedures only to be told the results are negative. It takes a while for the damage to occur and for it to show up in the blood. But there is another way, as you have read about Enterolab, Dr. Fine which has celiac disease came up with the stool panel test which he says is more sensitive than the blood, so the test are very accurate!!! You can order the Enterolab tests from anywhere in the States. They ship Via Airborne Express and add the shipping charges to your total.

As far as breakfast ideas, (cold cerals) Rice Crunch-Ems or Corn Crunch-Ems, Vans makes a wonderful gluten-free/WF dairy free frozen waffle, frsh fruit, gluten-free bagles.

I wish you luck and hope you find some answers soon!

wdavie Newbie

Rice pudding is one of my daughters favorite breakfasts.

Wendy

JsBaby-G Newbie

Sarah,

I want to recommend that your doctor perform an endoscopy, since that will give you a definitive answer to the Celiac question but it is so intrusive and I don't wish it on anyone much less a 5 year old. Good Luck ;)

SadiesMomma Apprentice

Hun, I have come to know that some doctors just dont get Celiac because they dont know much about it, it is a hiding disease.. most people who have it probably dont know they do... Mine for surely doesnt! Research some doctors specifically in Celiac and see if you can get a referral to one of them.

Just cause the test is negative doesnt mean she doesnt have celiac disease, thats what happened to me.... I was given a blood test and they said I was just eating dairy but i new better because i was on a gluten-free diet and already starting to feel a little better over time.

As for breakfast foods ... i am allergic to it all. Wheat, eggs, dairy, soy, corn, and nuts... So I feel your pain. I used to starve for breakfast foods like french toast and eggs but no more....

I have come to love these breakfast foods.......

"Food For Life" brand Rice Breads. They are wonderful. I toast it and put a little water on it so some sugar and McCormic cinnamon can stick to it. Its a lot better than nothing and actualy doesnt taste half bad. www.foodforlife.com

I also have found that Dole all natural yellow cling sliced peaches (in a plastic jar) are great. It is all natural... no corn syrup in it so if your allergic to corn it will be a new addition to your food list. www.dole.com

Nabisco has a well known cream of wheat cereal... Which we CAN'T eat but they do also have a Cream of Rice cereal that is wonderful. It is gluten gree, fat free, and cholesterol free.... A little water added to make it not as thick and some sugar makes it a great morning treat. www.creamofwheat.com

As for breakfast drinks.. I wouldn't survive without my Celestial Seasons Decaffinated Green tea. www.celestialseasonings.com

hope these help you! :-) good eating!

sarahnaser Rookie

thanks to everyone that replied. i will try the suggestions. B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,362
    • Most Online (within 30 mins)
      7,748

    NAC
    Newest Member
    NAC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...