Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neg. Blood Result With Stomach Pains Present

sarahnaser

Recommended Posts

sarahnaser Rookie
sarahnaser
Posted

hello i am new to this board. hope everyone is doing well. my daughter will be 6 in April. she has had food allergies to wheat, eggs, food colors chicken , fish. so her diet is very minimal. now she has developed a new set of problems. the stomach aches. . In sept she started full day kG. so she eats when she come home but everything gives her a stomach ache. I stopped the dairy hoping things will improve but she still has pains.

The doctors suspect celiac disease. they did the blood test (IGA) but it came out neg. we are in New jersey. Is the entrolab gene test for all the US residents? HOW about the proth... lab. i read about those 2 labs in other posts. Other than the stool test what else can the doctor check? any one with similiar problems?

plus can i have some hints on breakfast food( without egg pls)? she doesn't like the packaged gluten-free foods. i tried some with her since she has the wheat allergy.

sarah N

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

how about apples and peanut butter?

Guest jhmom
Guest jhmom
Posted

Hi Sara, welcome!!! :D

I read where your daughter has an allergy to wheat but is she currently on a gluten-free diet?? If not that could explain the stomach pain she is experiencing. Even after going gluten-free she may still have some stomach pain for a few weeks/months. It must take a while for all the toxins (gluten) to get out of our system. I have been gluten-free since Sept and still have the occasional pains as well as my 8-year-old daughter. ;)

Just because the blood test your doctor ordered came back negative does not mean your daughter does not have celiac disease/gluten sensitivity. Some people go many years and endure many blood test and medical procedures only to be told the results are negative. It takes a while for the damage to occur and for it to show up in the blood. But there is another way, as you have read about Enterolab, Dr. Fine which has celiac disease came up with the stool panel test which he says is more sensitive than the blood, so the test are very accurate!!! You can order the Enterolab tests from anywhere in the States. They ship Via Airborne Express and add the shipping charges to your total.

As far as breakfast ideas, (cold cerals) Rice Crunch-Ems or Corn Crunch-Ems, Vans makes a wonderful gluten-free/WF dairy free frozen waffle, frsh fruit, gluten-free bagles.

I wish you luck and hope you find some answers soon!

wdavie Newbie
wdavie
Posted

Rice pudding is one of my daughters favorite breakfasts.

Wendy

JsBaby-G Newbie
JsBaby-G
Posted

Sarah,

I want to recommend that your doctor perform an endoscopy, since that will give you a definitive answer to the Celiac question but it is so intrusive and I don't wish it on anyone much less a 5 year old. Good Luck ;)

SadiesMomma Apprentice
SadiesMomma
Posted

Hun, I have come to know that some doctors just dont get Celiac because they dont know much about it, it is a hiding disease.. most people who have it probably dont know they do... Mine for surely doesnt! Research some doctors specifically in Celiac and see if you can get a referral to one of them.

Just cause the test is negative doesnt mean she doesnt have celiac disease, thats what happened to me.... I was given a blood test and they said I was just eating dairy but i new better because i was on a gluten-free diet and already starting to feel a little better over time.

As for breakfast foods ... i am allergic to it all. Wheat, eggs, dairy, soy, corn, and nuts... So I feel your pain. I used to starve for breakfast foods like french toast and eggs but no more....

I have come to love these breakfast foods.......

"Food For Life" brand Rice Breads. They are wonderful. I toast it and put a little water on it so some sugar and McCormic cinnamon can stick to it. Its a lot better than nothing and actualy doesnt taste half bad. www.foodforlife.com

I also have found that Dole all natural yellow cling sliced peaches (in a plastic jar) are great. It is all natural... no corn syrup in it so if your allergic to corn it will be a new addition to your food list. www.dole.com

Nabisco has a well known cream of wheat cereal... Which we CAN'T eat but they do also have a Cream of Rice cereal that is wonderful. It is gluten gree, fat free, and cholesterol free.... A little water added to make it not as thick and some sugar makes it a great morning treat. www.creamofwheat.com

As for breakfast drinks.. I wouldn't survive without my Celestial Seasons Decaffinated Green tea. www.celestialseasonings.com

hope these help you! :-) good eating!

sarahnaser Rookie
sarahnaser
Posted
  • Author

thanks to everyone that replied. i will try the suggestions. B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    2. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

      @HectorConvector, Please try adding Niacin to your supplements. Low Niacin has a connection with suicidal ideation. Been here, done that. Niacin made me feel better mentally and physically. Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together. I know this works...
    3. Scott Adams
      - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojda...
    4. Scott Adams
      - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s help...
    5. Scott Adams
      - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Schar's products contain wheat!

      By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,618
    • Most Online (within 30 mins)
      7,748
    R Johnson
    Newest Member
    R Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Posts

    • trents
      Terrible Neurological Symptoms

      By trents · Posted

      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Gluten-Mimicking Proteins that can affect some Celiac individuals.

      By Scott Adams · Posted

      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
    • Scott Adams
      Schar's products contain wheat!

      By Scott Adams · Posted

      By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.