Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Bronchitis

giselle

By giselle
in Related Issues & Disorders

Recommended Posts

giselle Newbie
giselle
Posted

Hi everyone,

I am new here, I am SO grateful to have found this board because I feel like I am on the verge of falling apart. In brief, I wanted to know if anyone has had the experience of getting repeated episodes of bronchitis, asthmatic bronchitis, or other similiar illnesses while still ingesting wheat and gluten. I am too sick to begin to explain everything, but I am only just beginning to go wheat free. I developed chronic bronchitis over a year ago and have had so many antibiotics/inhalers, etc. and I keep relapsing. I am very frightened from being so sick and weak. My life is in standstill, I can barely function or think. Sorry for the poor writing.

I am newly diagnosed and overwhelmed. Very depressed and teary. But most of all, the bronchitis is scaring me because of how sick it makes me and my doc says I will get resistant to meds if we arent careful. I am about to have a sputum culture done as well.

I would be so very grateful for any feedback.

Completely overwhelmed, giselle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Eloisa
Guest Eloisa
Posted

Giselle,

Sorry you feel so bad but I completely understand. I used to get chronic sinus infections and my husband used to get chronic bronchitus all the time. I know that having celiac disease weakens your immune system therefore you get sick easily and its takes longer to get well. I just want to let you know that there is hope in this. I take Reliv shakes which are nutritional supplement that are taken in liquid form and since I've taken them I no longer have sinus issues that turned into infections. I've completely gotton off of all my sinus medications and have not had a sinus infection since I've been on Reliv. My husband who was sceptical about taking anything finally went to a Reliv meeting and heard all the great health stories and was convinced to start taking Reliv. Since him being on it, he has not had any bronchial infections and is off his sinus meds as well. He also suffered from old athletic injuries (knee, broken vertibre, broken bones and arthiritus) and had severe intestinal damage in his early twenties. When he started taking Reliv he initially started because of all of the aches and pains he had from injuries but wound up benefiting from all other issues his body has been going through.

Eloisa

cdford Contributor
cdford
Posted

Also, if you use a hot tub regularly, be sure to tell your doctor as this can sometimes trigger infections that react like bronchitis.

Guest nini
Guest nini
Posted

yeah, prior to being dx and going gluten-free, I used to get upper respiratory infections and bronchitis ALL the time. Seems like I would just get off of treatment for one and BOOM along came another one.

anewsprue Newbie
anewsprue
Posted

Hello all, don't know if it's celiac disease related but I just got out of the hospital on Monday after being admitted with pneumonia and pleurisy. I still hurt, can't breathe well at times but feel a little better overall. I think my immune system has left the building, it's just been a very tough year. :(

giselle Newbie
giselle
Posted
  • Author

Hi everyone,

Thanks for the great replies and info. I just got the results of my culture back and found I have Viral Chronic Bronchitis. It's good that I got a second opinion because I had been given 4 different very long courses of powerful antibiotics over the last year. My second doc said I was lucky to have not developed a resistant strep infection (MRSA), scary stuff.

After reading other posts here, it seems I have a severe case of fibro "fog" (also have fibromyalgia like several of you) and I guess that is why I am so mentally overwhelmed about where to begin in starting my wheat/gluten free diet.

I am happy to hear that many of you got relief from your bronchitis after starting the diet, so I guess I have some hope now. Perhaps I should go to the thread about the diet and see how others got going.

Thanks again for your efforts in helping me. In friendship, giselle

  • 1 month later...
BellaSara Newbie
BellaSara
Posted

I was having autoimmune problems and had chronic bronchitis all winter long. I decided to try the gluten free diet to see if it would help. After about five days I was doing good and my bronchitis was starting to heal. I went and I bought what I was told to be gluten free spelt bread. After about 3 pieces I got very tired and took a nap. My bronchitis came back full force and I was immobilized for a week. I also got a very bad case of plurisy which I still have slightly. All from three pieces of bread.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mouse Enthusiast
mouse
Posted

For MANY years I would get Bronchitis so severly that I would end up as a patient in the hospital or intensive care. I had an 18 hour window to get on antibiotics before I ended up in the hospital. And of course this would always happen on a weekend LOL. Had the pneumonia shot and exactly 2 weeks later I had pneumonia and again landed in the hospital. Two years later I had a very rare and painful pneumonia and ended up in the hospital. Went from intensive care to cardiac intensive care. 6 days after I was admitted I had lung surgery. I was there two weeks and that was when my husband started talking about early retirement and to get me out of the cold. A long bout of allergy attacks would trigger Bronchitis and my doctor gave me potent antibiotics to keep on hand. Since I have been gluten-free (year and a half) I have not used an Epi-Pen and had one bout of Bronchitis the beginning of this year. It was Asthmatic Bronchitis and required a trip to the emergency room with lots of meds fed intraveniously - BUT, I was not hospitalized. This has been the best year and a half that I have had with only relative minor asthma problems (except for the one just mentioned. This beats the last 15 years. So, I think that going gluten-free made a big difference in all of this.

Armetta :D

Misa Rookie
Misa
Posted

Bronchitis was actually the reason I started to investigate celiac disease B) I got really bad coughing spells everytime I ate gluten grains. It took a while for me to see the connection, but one day after yet another coughing attack I suddenly said to a friend; Iget this everytime I eat bread. Saying it out loud made me think of course and just after the first gluten-free day my coughing stopped and hasn't returned in six weeks now..... :P

It just blows me away how many symptoms can be gluten-related.

Misa :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous...
    3. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    4. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.