Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac Disease Blood Test Positive, Lipase Levels Abnormal
0

2 posts in this topic

Hey everyone. I'm new. 24 yo male. I will start with a quick intro to my story. I have been having the "typical" GI symptoms of celiac disease since I was around 17. Struggled off and on with episodes of extreme GI sickness and then months of being mildly nauseous and gassy. I was always a thin kid, but since about 17, I couldn't put any weight on. Grew taller, stayed around the same weight. I was always just told I would "fill in" when I got to my early 20s. Here I am at 24 and still very underweight and getting more sick by the week it seems. Some days I feel like I'm dying. It wasn't until about 1 year or so ago that I started having neurological symptoms that my doctors began taking me serious instead of brushing me off as having anxiety. My right eye became blurry, I was extremely fatigued, muscle spasms, and so the neurologist I was referred to suspected MS. My MRI came back normal so he then suspected celiac since I fit the bill and he understands there is a correlation between celiac disease and other autoimmune diseases.That was a year ago. Since then I have finally been referred to a good gastroenterologist who ran some blood work a few weeks ago. I tested positive for celiac. I am scheduled to have the endoscopy in 2 days to FINALLY confirm this as celiac once and for all. It feels like I have been living an eternity in misery with no clue as to what is wrong with me.

My main question (and I read a little in another thread but I wanted to introduce myself and get some new answers going): Did anyone else's lipase levels come back abnormal when you did the celiac blood work? I am suspecting something is off with my pancreas on top of (or because of) my undiagnosed celiac disease...

Also, feel free to give me any advice or experiences with the endoscopy. A bit nervous :unsure:

0

Share this post


Link to post
Share on other sites


Ads by Google:

I just got a positive blood test too (I am 35 y/o female). I have to have the endo next week and I am nervous too, but everyone I talk to says it really isn't a big deal at all. My BIL who is not a fan of getting blood tests, etc has had 2 endo's and even he said it was OK.

Regarding the lipase levels, mine were normal, but my iron/ferritin has been way off for years now and I never knew why.

I didn't have any of the typical celiac digestive symptoms and really never even heard of this disease, so I am shocked by my positive blood test. I just have bad upper left quadrant pain and have been mildly gassy over the years when I eat "junk food". I think the anemia should have been my red flag. My main symptom that made me keep going back to Dr's was the left sided pain- also in the rib cage.

Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0