Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Saw A Dietician The Other Day...

Superfudge

By Superfudge
in Coping with Celiac Disease

Recommended Posts

Superfudge Rookie
Superfudge
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarolinaKip Community Regular
CarolinaKip
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

I can relate, I have been in some type of pain everyday since Nov 09. I was dx in May wih Celiac. My dr gave me some handouts, but it was my dietitian who only does gluten-free that was my biggest help in the beginning. She was amazing! She and my dr office both suggested this forum for me. When everyone looks at me like I'm crazy and thinks I'm nuts about CC, this forum helps me know I'm not alone.

Link to comment
Share on other sites
Fozzie Newbie
Fozzie
Posted

I saw a Dietician at the hospital a week ago, and honestly she had nothing to tell me that I didn't already know, all thanks to this forum! This is such a great resource, and everyone I've encountered here is so helpful and friendly. My Celiac diagnosis was really overwhelming at first. I got a phone call saying my blood tests confirmed the initial biopsy, and THAT'S IT. No follow up, not even a stinking hand out. :huh: Finding this site and forum is the only thing that got me through this, and I just wanted to thank all of you! Your advice has been right on, and as you all know, there is nothing like realizing you are not the only one out there with all these weird symptoms. Thank you!!

After being dx in Feb I askked for a referral to a dietician and received a call last week for an appointment. That was usefull :( ! I said "thank you but I already have the info That I need" thanks to this forum and some digging myself. You need to be proactive with this situation. I managed to find a cooworker who is a dietician and celiac ( I didn't know) and she gave me tips on where to shop etc.. Having acess to a search through the university library has provided a plethora of info but this site has been the most informative

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,987
    • Most Online (within 30 mins)
      7,748
    happydays
    Newest Member
    happydays
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Waiting for urgent referral.

      By trents · Posted

      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...