Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia With Itchy, Antsy Bottoms Of Feet?

Tidings

By Tidings
in Related Issues & Disorders

Recommended Posts

Tidings Explorer
Tidings
Posted

Hi folks,

Have noticed several threads about Celiac/gluten intolerance and insomnia, and wanted to post something specific about Insomnia and FEET...

Have been plagued with insomnia ever since acquiring C.F.S. (over two decades ago), but lately the insomnia is coupled with the most annoying ITCHING and "ANTSY" (TINGLING) STUFF going on in the BOTTOMS OF MY FEET. I don't know if this is related to food intolerance(s) or maybe related to some problems with my SPINE (have degenerative disc areas in cervical (neck) spine and lumbar areas). Once this FOOT THING gets started, it can keep me awake all night. It is not like the intense ITCHING that goes on along the SHINS when I've been toxified with problem food substances. It is more like a nerve-related "tingling." Hard to describe.

Last "night" I finally fell asleep about 6:00 a.m. this morn, and only after taking some of the Hyland's "INSOMNIA" sublingual tablets! This can go on many nights a week, and then I might luck out and have one good night of fairly peaceful sleep (for me, good sleep is about 3-4-5 hours without having to get up multiple times).

Just wondering if others have this BOTTOM OF THE FEET thing and if so, have you figured out what's causing it or what might alleviate it?

Thanks in advance for any replies.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

are you a celiac? or gluten intolerant? how long have you been gluten free? have you had your B12 levels checked??

alot of gluten intolerant people and celiacs get numbness/tingling in their hands &/or feet due to LOW levels of B12. my sis in law had a B12 level of 211 and she was dizzy and had the tingling in her hands and feet.

ALSO-> Restless Leg Syndrome has sometimes been an issue for Celiacs.

maybe you need to get your vit.B12 & vit.D levels checked- those are the most common vitamin deficiencies in Celiacs.

Tidings Explorer
Tidings
Posted
  • Author

Hi cassP,

Answered your questions via Messenger. And yes, last couple of blood tests did show Vitamin D deficiency and have been taking supplements. Don't think the tests done a few days ago addressed B12, so will have to get that tested.

I also heard that Quinine/tonic water can calm restless legs and am thinking maybe it'd calm restless FEET, too...

  • 3 weeks later...
Tidings Explorer
Tidings
Posted
  • Author

Quick followup on this thread:

As soon as I stopped the Lisinopril, the itchy/twitchy feet thing stopped, so I'm pretty sure that was the source of the restless FEET syndrome that caused so much insomnia. Am trying to do daily walking to address blood pressure, and maybe it will also help with the sleep problem... Time'll tell!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748
    Butch68
    Newest Member
    Butch68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.