Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eye Doctor Says It's Not Night Blindness


brendygirl

Recommended Posts

brendygirl Community Regular

We moved, so I went to a new eye doctor to replace my eyeglasses. I only have difficulty seeing at night or in the dark or when small writing is backlit, like on a projector. My other eye doctor called it night blindness, about 10 yrs. ago. I don't wear glasses on a daily basis, at work, reading, or in most activities. Just in the dark. If you read about celiac, a possible side effect is vitamin A deficiency (among many vitamin deficiencies, due to malabsorption), which causes night blindness. I was a health-conscious vegetarian before my celiac dx, so I ate TONS of veggies and vitamins.

Anyway, when I mentioned the words night blindness to this eye doctor, she said people like me with light colored eyes can have pain from bright light. She repeatedly told me that if I had dark eyes like her (and she pointed to her own eyes) that I wouldn't have the pain. Astonishing, how everyone in my famiy has light colored eyes, green or blue, and nobody else has this pain.

I am aware that there are many things that affect the eyes, like my great grandfather who has that white ring around the iris from high cholesterol, or diabetics who can lose their eyesight. How she cannot be aware of celiac, or its effects on her area of expertise, is beyond me. I told her I have celiac and she said, "What? Shell-ee-ac?" Then, instead of saying that she needed to look it up, she said no, that's not the reason, and you do not have night blindness.

Above all, my b.s. detector went off. She didn't have a clue, and the worst part about ignorance, is not having the integrity to say, I'm not aware of that, I should research it. Anyway, she tested me with lenses, in the dark, with the backlit letters, and I got my new glasses. That are for bad eyesight, but the kind that is only bad in the dark, I guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I have light colored eyes. Green, the color of split pea soup. I don't have eye pain on a regular basis, although at times I get blepharitis and that can cause pain. I do have something like night blindness. One eye Dr. said my eyes do not adjust to the light nearly as quickly as normal eyes would. For me the worst situation is going from bright light into darkness.

If I go to the movies, I need to get there early and get seated before the movie starts while there is still some light. My friend did not believe me and insisted that we go just minutes after the movie started. She wound up yanking me out of there after I stepped on and felt up people in an attempt to find an empty seat. That was an old theater that had a balcony. She wound up taking me up there where there were available seats. And she never questioned what I said again!

Another time, I went to the movies with my husband who also didn't believe me about the light. I had to leave for some reason. I can't remember now. I knew he was sitting near the back on the side. I patted some guy on the head, felt his curly hair and said, "Oh! You're not my husband!" My husband was not amused.

I also have extreme trouble walking outside at night time. I also have neuropathy in my feet and legs. The Dr. said I need visual cues to help me with my balance. And in the dark I don't have those things.

I remember going to some event at my daughter's school. The sidewalk was lit but i had to step from there into the shadow of my van. It was like stepping off into outer space. I had no idea where the ground was. I had to grab onto the van and feel my way around it. People were staring.

My brother also has light eyes. His are more of a greenish/light brown. He has pain in his eyes when he goes into the sunlight. I am not sure why. He has a lot of problems with his eyes. Used to be cross eyed but had an operation to correct it. But now when he gets sleepy, one eye will turn up. He is also farsighted in one eye and nearsighted in the other. So he has no depth perception.

tarnalberry Community Regular

I have light eyes and am rather light sensitive, but it's not just at night. I see no reason why you can't have light eyes and be night blind, even if it's more common for lighter eyed people to be more light sensitive.

wheeleezdryver Community Regular

my eyes are hazel, and i've had light sensitivity (but no nightblindness) since i was a teenager (if not longer). Sunglasses never worked well for me... yes, they protected my eyes from the sun, but could still feel the sharp glare of bright things.

i hate driving at night when it's raining... everything reflects off the wet pavement & it makes it hard to see.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.