Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

For Those Of You That Are Soy Sensitive...
0

7 posts in this topic

I am self diagnosed (and don't really care to have the "official" diagnosis) and have been gluten free a little over 1 month. I am beginning to suspect that I have additional intollerances as well. I cut out dairy a few days ago because I noticed my stomach would hurt after my morning coffee (with half and half.) I am now suspecting soy as well after I ate some tofu last night because I was up at 2 am with a headache and a bad stomachh ache. Also last night I noticed my ankles were swollen - something that was resolved going gluten free.

So, if you react to soy are your reactions similar?

0

Share this post


Link to post
Share on other sites


Ads by Google:

For me it depends on the type of soy I eat. Soy flour, soy milk or basically any straight form of soy (edamame, tofu, etc) will give me bad cramping like you are describing. Soybean oil or light soy cc gives me headaches. I also have swollen hands, swollen ankles and joint pain and fatigue when I eat soy on a regular basis. It may be that you are soy sensitive and it wouldn't hurt to try cutting it out as well. You can always try adding some back in again in a few months to test it.

0

Share this post


Link to post
Share on other sites

UGH...I was really hoping that I wouldn't have to do an elimination diet but it seems that might be the only way. I'm afraid that my DH is being to think that I am just making up these extra food intollerances for attention since I am no longer sick all the time from gluten.

Why is it that all these additional food intollerances are so severe now that we have cut out the gluten? Is it because we just felt bad all the time we never noticed it? Are our systems MORE sentitive to it now that we have begun healing from gluten? I got glutened off of a gluten free menu the other day and I actually THREW UP before I even left the restaurant! I have NEVER thrown up from celiac disease before :(

0

Share this post


Link to post
Share on other sites

i am trying my best to avoid soy because it aggravates Grave's antibodies.. BUT- its in freaking EVERYTHING- even my beloved gluten-free Chipotle :(

anyways... not sure of my reactions- i seem to react to different forms of soy... i used to eat tofu and gluten-free soy sauce with no reactions... and miso soup too... but some soy byproducts in salad dressings or prepared meals give me allergic reactions, and a hot nausea ... and then soy flour used in gluten-free baked goods has always given me mild crampy gas. its weird- MOST legumes give me semi painful gas... yet like i said before- tofu, and miso soup had never bothered me.

??

0

Share this post


Link to post
Share on other sites

When we first give up gluten it is such a relief to our bodies that they put the antibody guards on leave and leave some sentinel enforcers behind just in case we forget ourselves. If these sentinel guards come in contact with gluten they come down on it very hard - your body says "Oh no, I thought I got rid of that stuff. Give it the chop" :D:lol:

Yes, the reaction can be much stronger than previously.

The additional intolerances start showing up for a couple of reasons. 1. the response to the gluten was so overwhelming to your body that it was too feeble to complain about the other things and if it did they were just little voices crying in the wilderness; 2. the gluten has given you what is called a leaky gut, which lets larger particles of food into the bloodstream than it should. These large particles are not recognized by the body as friend, so become foe and the body sets up an autoimmune response in an attempt to get rid of them. Anything you eat a lot of is a candidate to become an intolerance so try to keep you diet as varied as possible (within your food limitations, that is :D )

0

Share this post


Link to post
Share on other sites




Mushroom you are amazing.

To the OP:

My symptoms are slight headache-

not the migraine I get with gluten.

And...swelling...my face, eyelids, ankles, feet and hands are visibly swollen if I eat any of the soy...

I'm still puzzling out reactions too, but so far I can tell these are definitely related to soy.

Sometimes D..but no stomache ache..weird.

Good luck and hope you feel better soon.

0

Share this post


Link to post
Share on other sites

For me, I have vertigo,ringing in my ears ,brain fog and other neurological symptoms. I also have digestive issues, the hole in the gut feeling,cramping ect... The one that concerns me the most is blood in my stool. That only happens when I eat something with soy in it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined