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For Those Of You That Are Soy Sensitive...

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Posted 08 February 2011 - 07:21 AM

I am self diagnosed (and don't really care to have the "official" diagnosis) and have been gluten free a little over 1 month. I am beginning to suspect that I have additional intollerances as well. I cut out dairy a few days ago because I noticed my stomach would hurt after my morning coffee (with half and half.) I am now suspecting soy as well after I ate some tofu last night because I was up at 2 am with a headache and a bad stomachh ache. Also last night I noticed my ankles were swollen - something that was resolved going gluten free.

So, if you react to soy are your reactions similar?
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Posted 08 February 2011 - 07:56 AM

For me it depends on the type of soy I eat. Soy flour, soy milk or basically any straight form of soy (edamame, tofu, etc) will give me bad cramping like you are describing. Soybean oil or light soy cc gives me headaches. I also have swollen hands, swollen ankles and joint pain and fatigue when I eat soy on a regular basis. It may be that you are soy sensitive and it wouldn't hurt to try cutting it out as well. You can always try adding some back in again in a few months to test it.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)



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Posted 08 February 2011 - 08:24 AM

UGH...I was really hoping that I wouldn't have to do an elimination diet but it seems that might be the only way. I'm afraid that my DH is being to think that I am just making up these extra food intollerances for attention since I am no longer sick all the time from gluten.

Why is it that all these additional food intollerances are so severe now that we have cut out the gluten? Is it because we just felt bad all the time we never noticed it? Are our systems MORE sentitive to it now that we have begun healing from gluten? I got glutened off of a gluten free menu the other day and I actually THREW UP before I even left the restaurant! I have NEVER thrown up from celiac disease before :(
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Posted 08 February 2011 - 10:54 AM

i am trying my best to avoid soy because it aggravates Grave's antibodies.. BUT- its in freaking EVERYTHING- even my beloved gluten-free Chipotle :(

anyways... not sure of my reactions- i seem to react to different forms of soy... i used to eat tofu and gluten-free soy sauce with no reactions... and miso soup too... but some soy byproducts in salad dressings or prepared meals give me allergic reactions, and a hot nausea ... and then soy flour used in gluten-free baked goods has always given me mild crampy gas. its weird- MOST legumes give me semi painful gas... yet like i said before- tofu, and miso soup had never bothered me.

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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(




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Posted 08 February 2011 - 11:24 AM

When we first give up gluten it is such a relief to our bodies that they put the antibody guards on leave and leave some sentinel enforcers behind just in case we forget ourselves. If these sentinel guards come in contact with gluten they come down on it very hard - your body says "Oh no, I thought I got rid of that stuff. Give it the chop" :D :lol:

Yes, the reaction can be much stronger than previously.

The additional intolerances start showing up for a couple of reasons. 1. the response to the gluten was so overwhelming to your body that it was too feeble to complain about the other things and if it did they were just little voices crying in the wilderness; 2. the gluten has given you what is called a leaky gut, which lets larger particles of food into the bloodstream than it should. These large particles are not recognized by the body as friend, so become foe and the body sets up an autoimmune response in an attempt to get rid of them. Anything you eat a lot of is a candidate to become an intolerance so try to keep you diet as varied as possible (within your food limitations, that is :D )
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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Posted 08 February 2011 - 12:08 PM

Mushroom you are amazing.

To the OP:

My symptoms are slight headache-

not the migraine I get with gluten.

And...swelling...my face, eyelids, ankles, feet and hands are visibly swollen if I eat any of the soy...

I'm still puzzling out reactions too, but so far I can tell these are definitely related to soy.

Sometimes D..but no stomache ache..weird.

Good luck and hope you feel better soon.
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Healing is a matter of time, but it is sometimes also a matter of opportunity.



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Posted 08 February 2011 - 01:31 PM

For me, I have vertigo,ringing in my ears ,brain fog and other neurological symptoms. I also have digestive issues, the hole in the gut feeling,cramping ect... The one that concerns me the most is blood in my stool. That only happens when I eat something with soy in it.
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Gluten free Oct/09
Soy free Nov/10


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