Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel So Stupid. Please Help Me...

Guest spruette

By Guest spruette
in Coping with Celiac Disease

Recommended Posts

Guest spruette
Guest spruette
Posted

This is by far the worst gluten attack I have ever had. I am so dumb too. I totally was careless, and didn't think.

This weekend while working around the house, my husband was eating some canned kipper fish. I, stupidly without even thinking (old mind set in) and I said, "Give me a bite." I was working in the kitchen and wasn't even aware of what I did until today. I took a bite of the fish smothered in some sauce, and didn't think anything of it.

Yesterday my body weight jumped five pounds. I feel so sore and bloated like crazy. My stomach muscles actually hurt from the bloating. My legs are literally touching each other and I just feel terrible. Today I gained 4 more pounds. I am filling up with water. It is just awful. I have had incidents similar before I knew I was Celiac, but this is just awful.

I hear that when someone is gluten free for a loooooooong time, when they get glutened it is REALLLLLLY bad. Worse than ever. Could this be happening to me? My body is just so sore. Yesterday, I literally felt drugged. I have been taking Centrum A-Zinc and it's been great. Until this act of stupidity. It wasn't even like I accidentally did it, I just didn't even think about it. Ugh, I am so mad at myself.

Anyhoo, what can I expect? Am I going to just keep gaining more and more water weight?? This is really terrible. Please tell me what can help with all this water weight and what can I do to clean this out of me sooner. This is the worse one yet. Mainly because I feel so dumb for doing it so blindly. Not even with a second's thought. I need help on this one. so please, please please reply! Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi Spruette:

Yes, it is true that the longer you are gluten free, the worse your gluten accidents get. I hope the worst is over for you and each day now will get a bit better.....

By the way, I absolutely LOVE your avatar!! THAT IS SOOOO COOL!!!!!

Karen

KaitiUSA Enthusiast
KaitiUSA
Posted

Well some people get worse reactions and more sensitive the longer they are gluten free. I know that's what happened to me. I didn't notice it at first but now I get reactions bad with the slightest amount.

Feel better soon...we all make gluten mistakes...we just have to learn from them

Carriefaith Enthusiast
Carriefaith
Posted

Yes, my gluten reactions are definatley worse than they were before. For me, the reactions are bad for the first week or so, and then it takes about another week to feel better again. So, 2 weeks... I think that is the norm. The best thing to do is to try and get lots of rest and let your body heal. Try and eat things that aren't hard on your stomach like rice, and bananas. You may want to ask your doctor about the water weight if it continues to be a problem, you may have a kidney problem...

Yesterday, I literally felt drugged.
I feel the same way when I have gluten.
Guest gfinnebraska
Guest gfinnebraska
Posted

I swell up 10 lbs. as well when being glutened. It is a total drag, but it does go away. In a few days (week) you will start to feel the swelling leave. You should "pass" a lot of the gas, etc. that is making you bloat as well. Hang in there... It isn't fun, but it will pass. You might try staying away from carbs and dairy while you are trying to heal. Try just eating fruit, veggies and protein. I know that helps me. Drink plenty of water and wait it out.

We all make stupid mistakes, so don't beat yourself over the head about it. When I was first going gluten-free, I would eat something without thinking and run to the sink to spit it out! Ha! We've all been there, done that!!! :)

I hope you feel better soon. Take care...

lovegrov Collaborator
lovegrov
Posted

What you're having certainly cpuld be a gluten reaction, but I wanted to point out that while some people start having terrible reactions, some people's reactions don't change and others even have milder reactions. As with all else in celiac, it depends on the person.

richard

Guest spruette
Guest spruette
Posted

Wow, you all are awesome!

Today I am dizzy - a common thing I have with celiac, believe it or not. And I have been to the potty like 15 times, not just number 2 - mostly number 1. TMI, I know. But the water is leaving. I am down six pounds already. However, I feel TERRIBLE! My body is sooooo shaky and I am cold/hot and weak. I can't believe I did this. I guess this is my just reward, huh? LOL! Sorry, at a point of delerium with my sense of humor.

gfinnebraska, thank you! thank you! thank you! I was just freaking myself out. I kept picturing myself looking like verusa bulk from willy wonka you know when she gets all round? Oh, I was so scared. It helps sooooo much to know that someone else out there understands. I mean you have absolutely NO idea how much your post lifted me up!! Not that I am happy you suffer this way too. however, it's always less lonely feeling when someone has been there.

You all are terrific. Really. Here my post has only been up like 12 hours, 8 of those being sleeping hours, and you are all responding so helpfully. Thank you soooo much! You are the best for helping me through this GA!

(((HUGS)))) to my fellow Celiacs!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest spruette
Guest spruette
Posted

Oh, almost forgot. Sorry, Karen, I am a bit foggy minded right now.

Thank you for the compliment on my avatar. It was fun to make. Putting that big ol' bust sign through the wheat field felt liberating! ROFL!!

Take care! And Thank you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Water filters are a potential problem for Celiac Disease

      Library paste and paper mache. I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering. Just have to boycott the brands that effect you. Gatorade drinks all have...
    2. YoshiLuckyJackpotWinner888
      - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Water filters are a potential problem for Celiac Disease

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If...
    3. Scott Adams
      - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, ...
    4. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2...
    5. Scott Adams
      - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,573
    • Most Online (within 30 mins)
      7,748
    Willo
    Newest Member
    Willo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Water filters are a potential problem for Celiac Disease

      By Wheatwacked · Posted

      Library paste and paper mache.  I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering.  Just have to boycott the brands that effect you.  Gatorade drinks all have either gums, modified starches or stevia that might be affecting you.  Looking for energy or hydration try Red Bull.  It has the vitamins, minerals, antioxidant Taurine, sugar and glucose to process the sugar from mouth to ATP and clean up. Taurine is essential for protecting mitochondria from damage, such as from reactive oxygen species (ROS) or calcium overload. If you are exclusively drinking bottled water you may want to consider taking Lithium Orotate 5 mg.  We need about 1 mg a day of Lithium and mostly it is gotten from ground water.  Lithium deficiency can cause anxiety and suicide.  I find it helpful. Lithium in the public water supply and suicide mortality in Texas: Journal of Psychiatric Research Is Lithium a Micronutrient? From Biological Activity and Epidemiological Observation to Food Fortification
    • YoshiLuckyJackpotWinner888
      Water filters are a potential problem for Celiac Disease

      By YoshiLuckyJackpotWinner888 · Posted

      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      Reverse Osmosis (RO) Water

      By Scott Adams · Posted

      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      Yeast extract

      By Scott Adams · Posted

      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Scott Adams · Posted

      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.