Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel So Stupid. Please Help Me...

Guest spruette

By Guest spruette
in Coping with Celiac Disease

Recommended Posts

Guest spruette
Guest spruette
Posted

This is by far the worst gluten attack I have ever had. I am so dumb too. I totally was careless, and didn't think.

This weekend while working around the house, my husband was eating some canned kipper fish. I, stupidly without even thinking (old mind set in) and I said, "Give me a bite." I was working in the kitchen and wasn't even aware of what I did until today. I took a bite of the fish smothered in some sauce, and didn't think anything of it.

Yesterday my body weight jumped five pounds. I feel so sore and bloated like crazy. My stomach muscles actually hurt from the bloating. My legs are literally touching each other and I just feel terrible. Today I gained 4 more pounds. I am filling up with water. It is just awful. I have had incidents similar before I knew I was Celiac, but this is just awful.

I hear that when someone is gluten free for a loooooooong time, when they get glutened it is REALLLLLLY bad. Worse than ever. Could this be happening to me? My body is just so sore. Yesterday, I literally felt drugged. I have been taking Centrum A-Zinc and it's been great. Until this act of stupidity. It wasn't even like I accidentally did it, I just didn't even think about it. Ugh, I am so mad at myself.

Anyhoo, what can I expect? Am I going to just keep gaining more and more water weight?? This is really terrible. Please tell me what can help with all this water weight and what can I do to clean this out of me sooner. This is the worse one yet. Mainly because I feel so dumb for doing it so blindly. Not even with a second's thought. I need help on this one. so please, please please reply! Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi Spruette:

Yes, it is true that the longer you are gluten free, the worse your gluten accidents get. I hope the worst is over for you and each day now will get a bit better.....

By the way, I absolutely LOVE your avatar!! THAT IS SOOOO COOL!!!!!

Karen

KaitiUSA Enthusiast
KaitiUSA
Posted

Well some people get worse reactions and more sensitive the longer they are gluten free. I know that's what happened to me. I didn't notice it at first but now I get reactions bad with the slightest amount.

Feel better soon...we all make gluten mistakes...we just have to learn from them

Carriefaith Enthusiast
Carriefaith
Posted

Yes, my gluten reactions are definatley worse than they were before. For me, the reactions are bad for the first week or so, and then it takes about another week to feel better again. So, 2 weeks... I think that is the norm. The best thing to do is to try and get lots of rest and let your body heal. Try and eat things that aren't hard on your stomach like rice, and bananas. You may want to ask your doctor about the water weight if it continues to be a problem, you may have a kidney problem...

Yesterday, I literally felt drugged.
I feel the same way when I have gluten.
Guest gfinnebraska
Guest gfinnebraska
Posted

I swell up 10 lbs. as well when being glutened. It is a total drag, but it does go away. In a few days (week) you will start to feel the swelling leave. You should "pass" a lot of the gas, etc. that is making you bloat as well. Hang in there... It isn't fun, but it will pass. You might try staying away from carbs and dairy while you are trying to heal. Try just eating fruit, veggies and protein. I know that helps me. Drink plenty of water and wait it out.

We all make stupid mistakes, so don't beat yourself over the head about it. When I was first going gluten-free, I would eat something without thinking and run to the sink to spit it out! Ha! We've all been there, done that!!! :)

I hope you feel better soon. Take care...

lovegrov Collaborator
lovegrov
Posted

What you're having certainly cpuld be a gluten reaction, but I wanted to point out that while some people start having terrible reactions, some people's reactions don't change and others even have milder reactions. As with all else in celiac, it depends on the person.

richard

Guest spruette
Guest spruette
Posted

Wow, you all are awesome!

Today I am dizzy - a common thing I have with celiac, believe it or not. And I have been to the potty like 15 times, not just number 2 - mostly number 1. TMI, I know. But the water is leaving. I am down six pounds already. However, I feel TERRIBLE! My body is sooooo shaky and I am cold/hot and weak. I can't believe I did this. I guess this is my just reward, huh? LOL! Sorry, at a point of delerium with my sense of humor.

gfinnebraska, thank you! thank you! thank you! I was just freaking myself out. I kept picturing myself looking like verusa bulk from willy wonka you know when she gets all round? Oh, I was so scared. It helps sooooo much to know that someone else out there understands. I mean you have absolutely NO idea how much your post lifted me up!! Not that I am happy you suffer this way too. however, it's always less lonely feeling when someone has been there.

You all are terrific. Really. Here my post has only been up like 12 hours, 8 of those being sleeping hours, and you are all responding so helpfully. Thank you soooo much! You are the best for helping me through this GA!

(((HUGS)))) to my fellow Celiacs!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest spruette
Guest spruette
Posted

Oh, almost forgot. Sorry, Karen, I am a bit foggy minded right now.

Thank you for the compliment on my avatar. It was fun to make. Putting that big ol' bust sign through the wheat field felt liberating! ROFL!!

Take care! And Thank you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Russ H
      - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease...
    2. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread.
    3. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores).
    4. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

      This sounds very similar to the neuropathic pain I experienced with type two diabetes. Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6. These are vitamins frequently found to be low in people with pre-diabetes and diabetes. Remember that blood tests...
    5. trents
      - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

      Welcome to the celiac.com community, @Amiah! First of all, you would do well to post your question in one of the appropriate community forums rather than in a blog. It will get more attention that way. Now as to your question, there are some other things that can cause elevated igg antibodies besides celiac disease. Various infections, mostly. For...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,582
    • Most Online (within 30 mins)
      7,748
    Kim RS
    Newest Member
    Kim RS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Russ H · Posted

      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      Terrible Neurological Symptoms

      By Scott Adams · Posted

      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.