Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel So Stupid. Please Help Me...

Guest spruette

By Guest spruette
in Coping with Celiac Disease

Recommended Posts

Guest spruette
Guest spruette
Posted

This is by far the worst gluten attack I have ever had. I am so dumb too. I totally was careless, and didn't think.

This weekend while working around the house, my husband was eating some canned kipper fish. I, stupidly without even thinking (old mind set in) and I said, "Give me a bite." I was working in the kitchen and wasn't even aware of what I did until today. I took a bite of the fish smothered in some sauce, and didn't think anything of it.

Yesterday my body weight jumped five pounds. I feel so sore and bloated like crazy. My stomach muscles actually hurt from the bloating. My legs are literally touching each other and I just feel terrible. Today I gained 4 more pounds. I am filling up with water. It is just awful. I have had incidents similar before I knew I was Celiac, but this is just awful.

I hear that when someone is gluten free for a loooooooong time, when they get glutened it is REALLLLLLY bad. Worse than ever. Could this be happening to me? My body is just so sore. Yesterday, I literally felt drugged. I have been taking Centrum A-Zinc and it's been great. Until this act of stupidity. It wasn't even like I accidentally did it, I just didn't even think about it. Ugh, I am so mad at myself.

Anyhoo, what can I expect? Am I going to just keep gaining more and more water weight?? This is really terrible. Please tell me what can help with all this water weight and what can I do to clean this out of me sooner. This is the worse one yet. Mainly because I feel so dumb for doing it so blindly. Not even with a second's thought. I need help on this one. so please, please please reply! Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi Spruette:

Yes, it is true that the longer you are gluten free, the worse your gluten accidents get. I hope the worst is over for you and each day now will get a bit better.....

By the way, I absolutely LOVE your avatar!! THAT IS SOOOO COOL!!!!!

Karen

KaitiUSA Enthusiast
KaitiUSA
Posted

Well some people get worse reactions and more sensitive the longer they are gluten free. I know that's what happened to me. I didn't notice it at first but now I get reactions bad with the slightest amount.

Feel better soon...we all make gluten mistakes...we just have to learn from them

Carriefaith Enthusiast
Carriefaith
Posted

Yes, my gluten reactions are definatley worse than they were before. For me, the reactions are bad for the first week or so, and then it takes about another week to feel better again. So, 2 weeks... I think that is the norm. The best thing to do is to try and get lots of rest and let your body heal. Try and eat things that aren't hard on your stomach like rice, and bananas. You may want to ask your doctor about the water weight if it continues to be a problem, you may have a kidney problem...

Yesterday, I literally felt drugged.
I feel the same way when I have gluten.
Guest gfinnebraska
Guest gfinnebraska
Posted

I swell up 10 lbs. as well when being glutened. It is a total drag, but it does go away. In a few days (week) you will start to feel the swelling leave. You should "pass" a lot of the gas, etc. that is making you bloat as well. Hang in there... It isn't fun, but it will pass. You might try staying away from carbs and dairy while you are trying to heal. Try just eating fruit, veggies and protein. I know that helps me. Drink plenty of water and wait it out.

We all make stupid mistakes, so don't beat yourself over the head about it. When I was first going gluten-free, I would eat something without thinking and run to the sink to spit it out! Ha! We've all been there, done that!!! :)

I hope you feel better soon. Take care...

lovegrov Collaborator
lovegrov
Posted

What you're having certainly cpuld be a gluten reaction, but I wanted to point out that while some people start having terrible reactions, some people's reactions don't change and others even have milder reactions. As with all else in celiac, it depends on the person.

richard

Guest spruette
Guest spruette
Posted

Wow, you all are awesome!

Today I am dizzy - a common thing I have with celiac, believe it or not. And I have been to the potty like 15 times, not just number 2 - mostly number 1. TMI, I know. But the water is leaving. I am down six pounds already. However, I feel TERRIBLE! My body is sooooo shaky and I am cold/hot and weak. I can't believe I did this. I guess this is my just reward, huh? LOL! Sorry, at a point of delerium with my sense of humor.

gfinnebraska, thank you! thank you! thank you! I was just freaking myself out. I kept picturing myself looking like verusa bulk from willy wonka you know when she gets all round? Oh, I was so scared. It helps sooooo much to know that someone else out there understands. I mean you have absolutely NO idea how much your post lifted me up!! Not that I am happy you suffer this way too. however, it's always less lonely feeling when someone has been there.

You all are terrific. Really. Here my post has only been up like 12 hours, 8 of those being sleeping hours, and you are all responding so helpfully. Thank you soooo much! You are the best for helping me through this GA!

(((HUGS)))) to my fellow Celiacs!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest spruette
Guest spruette
Posted

Oh, almost forgot. Sorry, Karen, I am a bit foggy minded right now.

Thank you for the compliment on my avatar. It was fun to make. Putting that big ol' bust sign through the wheat field felt liberating! ROFL!!

Take care! And Thank you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    3. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
    5. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748
    kygirlsusan
    Newest Member
    kygirlsusan
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.