Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel So Stupid. Please Help Me...

Guest spruette

By Guest spruette
in Coping with Celiac Disease

Recommended Posts

Guest spruette
Guest spruette
Posted

This is by far the worst gluten attack I have ever had. I am so dumb too. I totally was careless, and didn't think.

This weekend while working around the house, my husband was eating some canned kipper fish. I, stupidly without even thinking (old mind set in) and I said, "Give me a bite." I was working in the kitchen and wasn't even aware of what I did until today. I took a bite of the fish smothered in some sauce, and didn't think anything of it.

Yesterday my body weight jumped five pounds. I feel so sore and bloated like crazy. My stomach muscles actually hurt from the bloating. My legs are literally touching each other and I just feel terrible. Today I gained 4 more pounds. I am filling up with water. It is just awful. I have had incidents similar before I knew I was Celiac, but this is just awful.

I hear that when someone is gluten free for a loooooooong time, when they get glutened it is REALLLLLLY bad. Worse than ever. Could this be happening to me? My body is just so sore. Yesterday, I literally felt drugged. I have been taking Centrum A-Zinc and it's been great. Until this act of stupidity. It wasn't even like I accidentally did it, I just didn't even think about it. Ugh, I am so mad at myself.

Anyhoo, what can I expect? Am I going to just keep gaining more and more water weight?? This is really terrible. Please tell me what can help with all this water weight and what can I do to clean this out of me sooner. This is the worse one yet. Mainly because I feel so dumb for doing it so blindly. Not even with a second's thought. I need help on this one. so please, please please reply! Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi Spruette:

Yes, it is true that the longer you are gluten free, the worse your gluten accidents get. I hope the worst is over for you and each day now will get a bit better.....

By the way, I absolutely LOVE your avatar!! THAT IS SOOOO COOL!!!!!

Karen

KaitiUSA Enthusiast
KaitiUSA
Posted

Well some people get worse reactions and more sensitive the longer they are gluten free. I know that's what happened to me. I didn't notice it at first but now I get reactions bad with the slightest amount.

Feel better soon...we all make gluten mistakes...we just have to learn from them

Carriefaith Enthusiast
Carriefaith
Posted

Yes, my gluten reactions are definatley worse than they were before. For me, the reactions are bad for the first week or so, and then it takes about another week to feel better again. So, 2 weeks... I think that is the norm. The best thing to do is to try and get lots of rest and let your body heal. Try and eat things that aren't hard on your stomach like rice, and bananas. You may want to ask your doctor about the water weight if it continues to be a problem, you may have a kidney problem...

Yesterday, I literally felt drugged.
I feel the same way when I have gluten.
Guest gfinnebraska
Guest gfinnebraska
Posted

I swell up 10 lbs. as well when being glutened. It is a total drag, but it does go away. In a few days (week) you will start to feel the swelling leave. You should "pass" a lot of the gas, etc. that is making you bloat as well. Hang in there... It isn't fun, but it will pass. You might try staying away from carbs and dairy while you are trying to heal. Try just eating fruit, veggies and protein. I know that helps me. Drink plenty of water and wait it out.

We all make stupid mistakes, so don't beat yourself over the head about it. When I was first going gluten-free, I would eat something without thinking and run to the sink to spit it out! Ha! We've all been there, done that!!! :)

I hope you feel better soon. Take care...

lovegrov Collaborator
lovegrov
Posted

What you're having certainly cpuld be a gluten reaction, but I wanted to point out that while some people start having terrible reactions, some people's reactions don't change and others even have milder reactions. As with all else in celiac, it depends on the person.

richard

Guest spruette
Guest spruette
Posted

Wow, you all are awesome!

Today I am dizzy - a common thing I have with celiac, believe it or not. And I have been to the potty like 15 times, not just number 2 - mostly number 1. TMI, I know. But the water is leaving. I am down six pounds already. However, I feel TERRIBLE! My body is sooooo shaky and I am cold/hot and weak. I can't believe I did this. I guess this is my just reward, huh? LOL! Sorry, at a point of delerium with my sense of humor.

gfinnebraska, thank you! thank you! thank you! I was just freaking myself out. I kept picturing myself looking like verusa bulk from willy wonka you know when she gets all round? Oh, I was so scared. It helps sooooo much to know that someone else out there understands. I mean you have absolutely NO idea how much your post lifted me up!! Not that I am happy you suffer this way too. however, it's always less lonely feeling when someone has been there.

You all are terrific. Really. Here my post has only been up like 12 hours, 8 of those being sleeping hours, and you are all responding so helpfully. Thank you soooo much! You are the best for helping me through this GA!

(((HUGS)))) to my fellow Celiacs!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest spruette
Guest spruette
Posted

Oh, almost forgot. Sorry, Karen, I am a bit foggy minded right now.

Thank you for the compliment on my avatar. It was fun to make. Putting that big ol' bust sign through the wheat field felt liberating! ROFL!!

Take care! And Thank you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. hjayne19
      - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Insomnia help

      Hi @trents Thanks for the reply. I appreciate it. I have been on an iron supplement for 4 years. (Started at Ferratin at 6) and has always sat around 20-30s. I also have been a high level athlete so I’m sure that doesn’t help. I will sometimes get readings around 50 but haven’t stopped my supplement so assuming it can be from taking it the day befor...
    2. cristiana
      - cristiana replied to cristiana's topic in Related Issues & Disorders
      2

      Healthy diet leading to terrible bloating

      @trents - THANK YOU, that is a really helpful and interesting post. I have had fairly extreme symptoms. Being a veteran hypochondriac I've been imagining all sorts and what you say makes me think I've probably been up to my usual catastrophizing! That said, I foresee another colonoscopy appointment if things don't settle down soon., and if I have...
    3. trents
      - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Insomnia help

      Welcome to the celiac.com community, @hjayne19! Because of the damage done to the villous lining of the small bowel by celiac disease's inflammatory process, absorption of nutrients from our diet is generally compromised and over time it is typical for those with celiac disease to develop nutritional deficiencies. Your low ferritin is evidence of that...
    4. trents
      - trents replied to cristiana's topic in Related Issues & Disorders
      2

      Healthy diet leading to terrible bloating

      Making significant changes in our diets, even when it is in, what would we are told by the experts, a healthy direction, can be upsetting to our system until it adjusts. To make an analogy, it's like beginning an exercise regiment when we don't ease into it gradually. That's one thing that occurs to me as a response. And I think as we get up in years this...
    5. Scott Adams
      0

      Easy Gluten-Free Sweet and Sour Chicken: A Takeout Classic Made Safe at Home

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,935
    • Most Online (within 30 mins)
      7,748
    Lisan4g
    Newest Member
    Lisan4g
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @trents Thanks for the reply. I appreciate it. I have been on an iron supplement for 4 years. (Started at Ferratin at 6) and has always sat around 20-30s. I also have been a high level athlete so I’m sure that doesn’t help. I will sometimes get readings around 50 but haven’t stopped my supplement so assuming it can be from taking it the day before.  Also get muscle twitches too which maybe is pointing to some other deficiency.    My magnesium vitamin B and D were all normal right before going gluten free but I’m also reading more about zinc and the different types of b vitamins that may affect some symptoms as well. So will have to look into that. When can iron stores expect to replenish? Does it take awhile? 
    • cristiana
      Healthy diet leading to terrible bloating

      By cristiana · Posted

      @trents - THANK YOU, that is a really helpful and interesting post. I have had fairly extreme symptoms. Being a veteran hypochondriac I've been imagining all sorts and what you say makes me think I've probably been up to my usual catastrophizing!    That said, I foresee another colonoscopy appointment if things don't settle down soon., and if I have got diverticulosis I guess that is how they will find out. I've just checked some statistics and I had no idea until I googled the condition that such a large percentage of the UK population has diverticulosis, i.e. 50 per cent by the age of 50, and that diverticulitis itself - i.e.  inflammation of the diverticular - affects 5-25 per cent of the population.  Oddly enough I knew a young woman with it and she told me years ago that it felt like there was a baby's foot wedged into her stomach at times, just like when she was expecting a baby, and this is exactly how it feels to me at times (although I realise as a man you will not be familiar with this sensation!)   I also do have an umbilical hernia which I think plays me up. On your other earlier points - I have read elsewhere that sudden intake of fibre can cause a lot of discomfort.  It reminds me of the time I swapped a chocolate bar with a muesli bar with apricots in an effort to be healthy, and there was a stone in it which broke my tooth!  No pain no gain I suppose!  And re: new intolerances, that too is very likely.   I will start keeping a food diary and my husband has today bought me some peppermint tea, hopefully that might help disperse some of the bloating! Thank you.    
    • trents
      Insomnia help

      By trents · Posted

      Welcome to the celiac.com community, @hjayne19! Because of the damage done to the villous lining of the small bowel by celiac disease's inflammatory process, absorption of nutrients from our diet is generally compromised and over time it is typical for those with celiac disease to develop nutritional deficiencies. Your low ferritin is evidence of that. We generally advise those who have been newly diagnosed to invest in some high quality and high potency gluten-free vitamin and mineral supplements to address this. We're talking about more than a multivitamin. We usually advise B-complex, D3 (5-10k IU daily), zinc, and magnesium glycinate. In particular, magnesium can be helpful for sleep issues and the glycinate form is important as it is assimilates much better than a lot of common forms you see on supermarket shelves which are formulated more for shelf-life than the are for assimilation. Has your ferritin rebounded yet? You may also need an iron supplement if you aren't on one already. Do you have Costco stores near you? Costco's Kirkland Signature brand and Nature Made brand of vitamins and supplements are good quality, economical choices and will be labeled gluten-free on the packaging if they are.
    • trents
      Healthy diet leading to terrible bloating

      By trents · Posted

      Making significant changes in our diets, even when it is in, what would we are told by the experts, a healthy direction, can be upsetting to our system until it adjusts. To make an analogy, it's like beginning an exercise regiment when we don't ease into it gradually. That's one thing that occurs to me as a response. And I think as we get up in years this becomes more and more true. We become less adaptable to change. The other thing that occurs to me is that you may have added in things, that though they are nutritionally dense, may be things that you as an individual may have some degree of intolerance to. You mention nuts and citrus. Those are packed with nutrition but also high in histamines. And citrus is not only high in histamines but is also a histamine liberator. I know from personal experience there are some things I can eat occasionally, in limited amounts and I'm okay. But if I eat them too often or consume large servings they will give me an upset tummy or a migraine attack or both. And you might also look at the possibility that you have developed diverticular disease. Nuts and seeds are a no no for that I understand.
    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi! I am a recently diagnosed celiac and my first post here.    hoping for some help. I initially didn’t have any gastric symptoms before diagnosis. Mostly night sweats almost every night and bad insomnia. Sometimes 1-3 hours before falling asleep but mostly waking at 4 am and not able to fall asleep. I felt like a zombie. I have also had low Ferratin for years. Sleeping got a little better I also realized I wasn’t eating enough carbs after working with a dietician.    it’s been 3 months gluten free. I definitely am on the more sensitive side I would say. I get really bad panic/doom anxiety which was bad before diagnosis and has since improved but comes in waves. Now my insomnia has been bad again and looking for some advice. I try to keep a strict routine morning and night. But can’t seem to turn my brain off even though I’m exhausted.    Anyone else going through something similar? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.