Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel So Stupid. Please Help Me...

Guest spruette

By Guest spruette
in Coping with Celiac Disease

Recommended Posts

Guest spruette
Guest spruette
Posted

This is by far the worst gluten attack I have ever had. I am so dumb too. I totally was careless, and didn't think.

This weekend while working around the house, my husband was eating some canned kipper fish. I, stupidly without even thinking (old mind set in) and I said, "Give me a bite." I was working in the kitchen and wasn't even aware of what I did until today. I took a bite of the fish smothered in some sauce, and didn't think anything of it.

Yesterday my body weight jumped five pounds. I feel so sore and bloated like crazy. My stomach muscles actually hurt from the bloating. My legs are literally touching each other and I just feel terrible. Today I gained 4 more pounds. I am filling up with water. It is just awful. I have had incidents similar before I knew I was Celiac, but this is just awful.

I hear that when someone is gluten free for a loooooooong time, when they get glutened it is REALLLLLLY bad. Worse than ever. Could this be happening to me? My body is just so sore. Yesterday, I literally felt drugged. I have been taking Centrum A-Zinc and it's been great. Until this act of stupidity. It wasn't even like I accidentally did it, I just didn't even think about it. Ugh, I am so mad at myself.

Anyhoo, what can I expect? Am I going to just keep gaining more and more water weight?? This is really terrible. Please tell me what can help with all this water weight and what can I do to clean this out of me sooner. This is the worse one yet. Mainly because I feel so dumb for doing it so blindly. Not even with a second's thought. I need help on this one. so please, please please reply! Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi Spruette:

Yes, it is true that the longer you are gluten free, the worse your gluten accidents get. I hope the worst is over for you and each day now will get a bit better.....

By the way, I absolutely LOVE your avatar!! THAT IS SOOOO COOL!!!!!

Karen

KaitiUSA Enthusiast
KaitiUSA
Posted

Well some people get worse reactions and more sensitive the longer they are gluten free. I know that's what happened to me. I didn't notice it at first but now I get reactions bad with the slightest amount.

Feel better soon...we all make gluten mistakes...we just have to learn from them

Carriefaith Enthusiast
Carriefaith
Posted

Yes, my gluten reactions are definatley worse than they were before. For me, the reactions are bad for the first week or so, and then it takes about another week to feel better again. So, 2 weeks... I think that is the norm. The best thing to do is to try and get lots of rest and let your body heal. Try and eat things that aren't hard on your stomach like rice, and bananas. You may want to ask your doctor about the water weight if it continues to be a problem, you may have a kidney problem...

Yesterday, I literally felt drugged.
I feel the same way when I have gluten.
Guest gfinnebraska
Guest gfinnebraska
Posted

I swell up 10 lbs. as well when being glutened. It is a total drag, but it does go away. In a few days (week) you will start to feel the swelling leave. You should "pass" a lot of the gas, etc. that is making you bloat as well. Hang in there... It isn't fun, but it will pass. You might try staying away from carbs and dairy while you are trying to heal. Try just eating fruit, veggies and protein. I know that helps me. Drink plenty of water and wait it out.

We all make stupid mistakes, so don't beat yourself over the head about it. When I was first going gluten-free, I would eat something without thinking and run to the sink to spit it out! Ha! We've all been there, done that!!! :)

I hope you feel better soon. Take care...

lovegrov Collaborator
lovegrov
Posted

What you're having certainly cpuld be a gluten reaction, but I wanted to point out that while some people start having terrible reactions, some people's reactions don't change and others even have milder reactions. As with all else in celiac, it depends on the person.

richard

Guest spruette
Guest spruette
Posted

Wow, you all are awesome!

Today I am dizzy - a common thing I have with celiac, believe it or not. And I have been to the potty like 15 times, not just number 2 - mostly number 1. TMI, I know. But the water is leaving. I am down six pounds already. However, I feel TERRIBLE! My body is sooooo shaky and I am cold/hot and weak. I can't believe I did this. I guess this is my just reward, huh? LOL! Sorry, at a point of delerium with my sense of humor.

gfinnebraska, thank you! thank you! thank you! I was just freaking myself out. I kept picturing myself looking like verusa bulk from willy wonka you know when she gets all round? Oh, I was so scared. It helps sooooo much to know that someone else out there understands. I mean you have absolutely NO idea how much your post lifted me up!! Not that I am happy you suffer this way too. however, it's always less lonely feeling when someone has been there.

You all are terrific. Really. Here my post has only been up like 12 hours, 8 of those being sleeping hours, and you are all responding so helpfully. Thank you soooo much! You are the best for helping me through this GA!

(((HUGS)))) to my fellow Celiacs!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest spruette
Guest spruette
Posted

Oh, almost forgot. Sorry, Karen, I am a bit foggy minded right now.

Thank you for the compliment on my avatar. It was fun to make. Putting that big ol' bust sign through the wheat field felt liberating! ROFL!!

Take care! And Thank you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,563
    • Most Online (within 30 mins)
      7,748
    joniverse
    Newest Member
    joniverse
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By knitty kitty · Posted

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Second chance

      By Mari · Posted

      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By cristiana · Posted

      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By trents · Posted

      Yes, that is the suggestion.
    • Wheatwacked
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Wheatwacked · Posted

      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.