Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Afford Doctor


jbunds

Recommended Posts

jbunds Newbie

i have never actually been diagnosed with celiacs because i cant afford the tests and i dont have insurance, but i have talked to a lot of people that have it or is close to someone that does, and ive done a lot of research, and i stay away from the things i know my body doesnt like. i havent been able to eat wheat for about 4 1/2 years now, however beer has never bothered me until recently, about 5 1/2 months ago i had to stop drinking it because of the headaches, tiredness, and gut pains. it was a harsh realization to come to since i love beer, and i was always wondering about it but just kept goin with it cause it didnt ever seem to cause me problems until recently. the hardest part about this is that i work at a micro brewery, and my main concern is that if i actually have celiacs if just working there and being around the small amounts of malt and barley and wheat that could be in the air could cause damage? and also i have heard that if you "cheat" and cause damage that that could in turn cause you to have other food intolerances? i also heard that if this does happen you can eventually reintroduce the other foods back into your diet? i recently can no longer eat rice or dairy or eggs and its really hard to find things to eat!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Welcome to the board.

Yes, if you have damaged your small intestine with gluten you develop what is called leaky gut syndrome which can let partially digested molecules of food into the blood stream which the autoimmune system does not recognize as "self" and attacks. This sets up an intolerance of that food after repeated exposure, and will keep happening until you heal your leaky gut. This is done by a very strict gluten free diet, by avoiding those foods that you are reacting to, and for most of us taking a good probiotic which can be purchased from a health food store or vitamin shop - ask for help to make sure it doesn't contain gluten. Some people also take L-glutamine to heal their leaky guts.

It is best to avoid any food you have reacted to for 6-12 months before you try to reintroduce it to your diet. Your length of healing time may vary.

I don't know if you are directly handling the grains in the brewery. If you are you need to do a lot of handwashing. If not, it is not like a bakery where there are fine flour particles flying through the air, so you may be alright.

It sounds like, diet-wise, you need to become a meat, potatoes and veg man :D

jbunds Newbie

Welcome to the board.

Yes, if you have damaged your small intestine with gluten you develop what is called leaky gut syndrome which can let partially digested molecules of food into the blood stream which the autoimmune system does not recognize as "self" and attacks. This sets up an intolerance of that food after repeated exposure, and will keep happening until you heal your leaky gut. This is done by a very strict gluten free diet, by avoiding those foods that you are reacting to, and for most of us taking a good probiotic which can be purchased from a health food store or vitamin shop - ask for help to make sure it doesn't contain gluten. Some people also take L-glutamine to heal their leaky guts.

It is best to avoid any food you have reacted to for 6-12 months before you try to reintroduce it to your diet. Your length of healing time may vary.

I don't know if you are directly handling the grains in the brewery. If you are you need to do a lot of handwashing. If not, it is not like a bakery where there are fine flour particles flying through the air, so you may be alright.

It sounds like, diet-wise, you need to become a meat, potatoes and veg man :D

thanks so much! i would love to be able to eat rice again ha! i am guessing i did some damage by drinking beer. and its hard not to cheat when your around people that can eat whatever they want, but since the rice thing i have been very good and cant really think of a time i have cheated at all in about six months so i am going to just keep it really strict. i dont work directly with the grains, i just work in the front store so thats good i really like my job ha! thanks so much again!

mushroom Proficient

You're more than welcome. Oh, by the way, good news - there is gluten free beer :D (brewed from sorghum grain usually). Ask for Redbridge or Bard's Tale (I think it's called). There's also Green's but Redbridge seems to be the most popular.

jbunds Newbie

yes i have tried red bridge! its pretty good! but its just a little pricey, im used to getting beer for free haha! i did however start brewing my own hard apple cider a few months ago, and its really good too, and ive been experimenting with different juices, its fun!

chrissygirl0668 Rookie

hi

i love beer and woodchuck's apple cider beer. yuuuuummmy

however, i thought beer would be my hardest thing and for all you have to go thru with this disease, it's the easiest to eliminat that and kettle one lol

new to this and not digging it at allllll.... the gluten-free beers are mainly (to what I know and check out are lagers) tooo strong for me and major calories. have any insight. i can't imagine sitting on the beach and cannot pop back a couple

chrissygirl0668 Rookie

[you can eat rice, success rice and minute rice, totally ok for you to eat; im italian great cook (if i do say so myself) the gluten-free pasta are disgusting. the success rice and minute rice (which you can get anywhere and are so affordable vs. gluten-free disgusting rice) works. However, reading your posts..... i MISS MY BEER. BIG TIME. I GET IT...... BIGTIME. not looking forward to everyone at beach sucking down the beers. I also not digging gluten-free beers and calories. so i tried to do a little wine wine spritzer as well as rum. i can consume beer all day, no problems, drinking rum with diet coke all day. omg..... suckadoos


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jbunds Newbie

haha ya drinking liqour regularly really takes a toll! it sucks for sure! thats why i started brewing. i have no idea what the calorie content is for it though ha. but i am drinking less than i used to and that is always good even if its kinda boring some times haha. how is it that i could eat those two rices?? im intrigued!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,411
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.