Posted 10 June 2011 - 06:40 AM
So there goes my trial of dapsone for a diagnosis plan. So, either the meds didn't work (not the right dose or didn't take it long enough) or it just isn't DH. I'm so frustrated!
Posted 10 June 2011 - 01:41 PM
It is my understanding that if a DH patient can tolerate Dapsone, relief happens in 2 or 3 days. That was my experience. It took about three days, the itching was mostly gone and I started healing. It took about a month for all the bad side effects to kick in and force me to stop taking the drug.
Posted 10 June 2011 - 05:12 PM
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Posted 11 June 2011 - 04:47 AM
I had a really bad case and within 2 weeks gluten free I stopped getting new lesions and the ones I had were slowly healing. After 2 years gluten-free a breakout went from being the first glutened symptom to the point where I would only get a small blister or two that would heal quickly without leaving those lingering purple scars.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
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