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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dapsone Fail
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4 posts in this topic

Tried Dapsone for six days to see if it would help, but could not take the side effects. If it's even possible, I was actually itchier on the meds, had numbness in hands and feet, insomnia some nights, zombie-like stupor most of the day. I would rather be itchy and have all my faculties working, thank you very much.

So there goes my trial of dapsone for a diagnosis plan. So, either the meds didn't work (not the right dose or didn't take it long enough) or it just isn't DH. I'm so frustrated!

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It sounds like you had a bad reaction to the Dapsone. Some people get a rash from it. How ironic, you are trying to treat a rash and you get one instead.

It is my understanding that if a DH patient can tolerate Dapsone, relief happens in 2 or 3 days. That was my experience. It took about three days, the itching was mostly gone and I started healing. It took about a month for all the bad side effects to kick in and force me to stop taking the drug.

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Why not get a biopsy for DH?

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Dapsone can be a pretty toxic med. IMHO it was irresponsible of your doctor to give you a 'trial' as a form of diagnosis. See if you can get of biopsy done by a derm who is familiar with DH. They need to biopsy the area next to an active lesion not the lesion itself and the lab needs to be looking for DH. If you strongly suspect DH then the best 'med' for it is the diet. Some see a lessening of new lesions pretty quickly although you have to be very strict with the diet, including topicals, for the antibodies to leave the skin. Until those antibodies have left the skin it will take very little gluten to flare the rash but over time the breakouts will be less severe.

I had a really bad case and within 2 weeks gluten free I stopped getting new lesions and the ones I had were slowly healing. After 2 years gluten-free a breakout went from being the first glutened symptom to the point where I would only get a small blister or two that would heal quickly without leaving those lingering purple scars.

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