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Metabolism?


PadmeMaster

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PadmeMaster Apprentice

I'm *not* a big eater. I'll snack (a lot) but I have a tendency to do things like one week on one week off jsut because of money issues. Lately, though, I've been eating 2-3 meals a day.. By 10pm I'm absolutely staving, so go to bed to avoid eating a late night snack. Then, Saturday, my body went haywire. I typically will have a spell of unending hunger for one day once a month (and normally I attempt to satisfy that hunger, too). But it's not been one day and it's not the right time of month. So... Also, I've had a headache since about this time yesterday. It went away with caffeine (extreme; I had a Monster Energy drink) but is now returning. It feel like a miniature migraine (as strange as that may sound).

So I'm confused and not sure what to do.. Last time I had this kind of hunger, I was 14 and could eat 4 servings of whatever without gaining weight. Now I'm 18, have gained a ton (over 50 pounds since I was 14, though initially because of medicine) of weight, and am already limited to foods with a higher fat (or fruit/veggies. Brothers need higher fat and almost every processed food I pick up has higher fat).

To give an example on how crazy it is: This morning I ate approx 2.5 cups of farmer's pie (meat, a lot of peas, and mashed potatoes made extra fatty). It was about 30 minutes later that I felt hungry, and less than an hour when my stomach growled. For lunch, I have as many cherries as I wanted (my stomach gave signs of being done, so I stopped) and then less than a minute after putting up the cherries, my stomach demanded food, so I poured myself a bowl of pretzels (I'm getting 4 bowls out of my "family" sized bag of Glutino pretzels.. I don't share, either). I ate those and one gummy worm (Left over from last night.). I probably finished eating around 2 o'clock. My stomach is talking to me rudely (growling pretty loud and some minor pains) as if I haven't eaten since yesterday! I'm about to go bulk up our homemade chili and will probably eat two huge helpings of that, too. Oh, and calorie addition on there, I had that monster energy, too (at 7am). Yesterday was just as bad (I ate two huge servings of the farmer's pie for dinner at 7:00, and was still hungry before I went to bed at 9:30).

Part of my concern is feeding into this, even with mostly healthy foods (unlike today :P ) and gaining a lot of weight. I'm CURRENTLY 40-50 pounds overweight, and am wearing my mom's pants that she can't fit into anymore because everything I have is too small. So I can't gain enough more to knock me into 18s! But this constant hunger is bugging me..

Also: I have been CC'd in the last week, and am currently feeling the repercussions of having milk in the last few days (*cough* yesterday), but I've never had extreme hunger from the one before (and the other is new).

TIA!


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organicmama Contributor

How long have you been gluten-free and CF?

PadmeMaster Apprentice

I've been gluten free for a year (as of sometime this month). Cf is casein? I've not managed cf yet. Goal is to not touch it again. I'm having a little trouble but will get on track. I'll go to whole foods sometime this week, which will help.

Marilyn R Community Regular

I had ravenous hunger for a few months after going gluten-free. Instead of empty snacks like pretzels, you might like to try whole nuts for a snack. The really satisfy the hunger and quiet the beast. (Your stomach.) I'm underweight but really sensitive, so the gluten-free Foods at the grocery didn't work for me.

Another wierd thing that I discovered is that I crave meat from the bone. There is something strangely satisfying about eating bone marrow or any meat on the bone. Or you can boil meat bones with veggies to make your own stock to cook rice in, or make soups.

I suspect that it has something to do with a need for calcium, which I couldn't absorb previously. Have you had your vitamin levels checked lately? That might be worthwhile.

PadmeMaster Apprentice

No, I haven't had my vitamin levels checked, although mom was reading something the other day and commented about our D intake.. So I might get it checked because I just read something that said too much D was dangerous.. lol

Thanks :)

eatmeat4good Enthusiast

When I looked at gummy worms for my son, they had gluten in them. Read that package.

Try filling up on protein not the potatoes. Protein is more satisfying and you can eat as much as you like or need without gaining weight. Cooked vegetables, fruit and veggies...if you stick mainly to that and minimize rice and potatoes (and pretzels) you won't gain so fast. Carbs have a way of making you want more. I try to keep it at around 30 g carbs a day and I feel way better. But if I eat a bunch of carbs...for sure the next day I am hungry as a bear...not for good food...but for carbs or sugar. Feed your body when it's hungry but not on carbs.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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