Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet Another Post About Fatigue


Guest jhmom

Recommended Posts

Guest jhmom

Ok ladies and gents, I have a question about fatigue:

I was diagnosed last Sept through enterolab and have been gluten free since 9/13/03.

Since I have been gluten-free for 4 months I thought some of these symptoms would be gone by now. Do any of you suffer from extreme fatigue? I worked one day last week for 4 hours, came home and was wiped out! :huh: I ended up in bed for the rest of the day resting. I can't do too much housework at one time bacause that wipes me out.

I do not take a multi-vitamin; I have to be careful because I am on thyroid replacement and cannot take anything with chromium in it, because it speeds up your metabolism.

I just want to feel normal. Any suggestions??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Talking about a brain fog, I totally forgot about the article about the 80mg of Vit B-6 for depression. I am going to try that maybe it will help with the fatigue too!

Guest shar4

Stacie,

After I was diagnosed, my doctor told me to continue to take the iron supplements, and then she had me start taking B12 injections and the difference was been nothing short of AMAZING. I have so much energy that I'm almost giddy, I'm sleeping better, and feeling better overall than I have in such a long time. I have to get one more B12 and then she is going to check my bloodwork again to see if my body will begin to be able to absorb it through the digestive tract or if I will continue to need the shots.

More details as they become available, and hope this helps.

sharon :lol:

Guest jhmom

Sharon:

Thanks for your reply, I will mention it to my docs. I go next week for some more bloodwork to check everything because the fatigue is bad. Thanks again

Guest eileen

I also get very fatigued. I am anemic and am hypothryoid. My md tried me on iron and i just got diarrhea most people get constipated not me and I am on thyroid supplement and have been for years. I think this all goes along with Celiac.

I am putting thing together now all the different symtoms, got them all.

I have to rest every day in the afternoon, but I don't sleep well at night either.

I am not sure but I think the fatigue goes along with everything else.

Thanks for mentioning the fatigue I though I was just getting old and having to nap every afternoon.

eileen :rolleyes:

tarnalberry Community Regular

besides vitamin levels, low testosterone can also make you very tired.

Guest jhmom

Hi Eileen:

I am also hypothyroid and been on meds for it since 1999. My levels have been good for a while and I go to the doc on a regular basis for it, so I don't think it's my thyroid. I think the fatigue is a part of this mysterious disease. I am having blood-work done tomorrow, I am interested to know how my iron level looks like.

I too have to rest in the afternoon, usually around 2-3.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tagger Rookie

I fell like I'm always fatigued. I have trouble with takinf Vit B because it gives me the "jitters". Does anyone elde experience this? Also, which Vit B am I suppoed to take B6 or B12?...Thanks..Tagger

  • 1 month later...
beelzebubble Contributor

hi all,

a synopsis: diagnosed 11 months ago via enterolab, been gluten free since, am hypothyroid-but i'm on meds and i tested normal a month ago, was borderline anemic and deficient in b vitamins and some others before diagnosis.

i am always so tired. i'm finding it really difficult to be productive. the fatigue can be overwhelming. i don't notice it so much when i'm at home, but i am completely and totally wiped out after 8 hours of work. i've only been working one day a week for the last few months, and even that knocks me out for a day or two. last week i worked two full days in a row and the next day i slept for 16 hours. is this usual? and is there anything i can do to help myself feel less tired?

most of my symptoms have subsided quite a bit, but the tiredness keeps hanging on. any thoughts?

carrie

seeking-wholeness Explorer

Carrie,

I wonder if you might be experiencing what's known as "adrenal exhaustion." You might want to do a Google search on the term. A website that I have found very informative is Open Original Shared Link. Nutritional support and some supplements (like pregnenolone for women or DHEA for men) can help a lot, but the specifics differ depending on each individual's present condition. I hope you find some helpful information in your search!

  • 3 months later...
chipsnsalsa Newbie

Beelzebubble, I have similar symptoms but they vary. Most weeks I have sustained energy throughout the day, but other weeks by 2PM I'm shot for the day. Even taking a nap doesn't help. I don't know what causes it, but it is frustrating and I'm sure related to celiac and/or the gluten-free diet. Have you had any luck diagnosing and/or treating yourself since you posted on 3/17?

  • 2 months later...
CoolCat1 Rookie

I would like to know too. I am still tired and can't get to sleep at night. I work mornings only. I sometimes rest afternoons for awhile but whether I do or not I can' t get to sleep unless I use a sleeping pill. I had Iron injections when I was anemic in May. I am still low normal and have been gluten-free for 2 months.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.