Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet Another Post About Fatigue


Guest jhmom

Recommended Posts

Guest jhmom

Ok ladies and gents, I have a question about fatigue:

I was diagnosed last Sept through enterolab and have been gluten free since 9/13/03.

Since I have been gluten-free for 4 months I thought some of these symptoms would be gone by now. Do any of you suffer from extreme fatigue? I worked one day last week for 4 hours, came home and was wiped out! :huh: I ended up in bed for the rest of the day resting. I can't do too much housework at one time bacause that wipes me out.

I do not take a multi-vitamin; I have to be careful because I am on thyroid replacement and cannot take anything with chromium in it, because it speeds up your metabolism.

I just want to feel normal. Any suggestions??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Talking about a brain fog, I totally forgot about the article about the 80mg of Vit B-6 for depression. I am going to try that maybe it will help with the fatigue too!

Guest shar4

Stacie,

After I was diagnosed, my doctor told me to continue to take the iron supplements, and then she had me start taking B12 injections and the difference was been nothing short of AMAZING. I have so much energy that I'm almost giddy, I'm sleeping better, and feeling better overall than I have in such a long time. I have to get one more B12 and then she is going to check my bloodwork again to see if my body will begin to be able to absorb it through the digestive tract or if I will continue to need the shots.

More details as they become available, and hope this helps.

sharon :lol:

Guest jhmom

Sharon:

Thanks for your reply, I will mention it to my docs. I go next week for some more bloodwork to check everything because the fatigue is bad. Thanks again

Guest eileen

I also get very fatigued. I am anemic and am hypothryoid. My md tried me on iron and i just got diarrhea most people get constipated not me and I am on thyroid supplement and have been for years. I think this all goes along with Celiac.

I am putting thing together now all the different symtoms, got them all.

I have to rest every day in the afternoon, but I don't sleep well at night either.

I am not sure but I think the fatigue goes along with everything else.

Thanks for mentioning the fatigue I though I was just getting old and having to nap every afternoon.

eileen :rolleyes:

tarnalberry Community Regular

besides vitamin levels, low testosterone can also make you very tired.

Guest jhmom

Hi Eileen:

I am also hypothyroid and been on meds for it since 1999. My levels have been good for a while and I go to the doc on a regular basis for it, so I don't think it's my thyroid. I think the fatigue is a part of this mysterious disease. I am having blood-work done tomorrow, I am interested to know how my iron level looks like.

I too have to rest in the afternoon, usually around 2-3.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tagger Rookie

I fell like I'm always fatigued. I have trouble with takinf Vit B because it gives me the "jitters". Does anyone elde experience this? Also, which Vit B am I suppoed to take B6 or B12?...Thanks..Tagger

  • 1 month later...
beelzebubble Contributor

hi all,

a synopsis: diagnosed 11 months ago via enterolab, been gluten free since, am hypothyroid-but i'm on meds and i tested normal a month ago, was borderline anemic and deficient in b vitamins and some others before diagnosis.

i am always so tired. i'm finding it really difficult to be productive. the fatigue can be overwhelming. i don't notice it so much when i'm at home, but i am completely and totally wiped out after 8 hours of work. i've only been working one day a week for the last few months, and even that knocks me out for a day or two. last week i worked two full days in a row and the next day i slept for 16 hours. is this usual? and is there anything i can do to help myself feel less tired?

most of my symptoms have subsided quite a bit, but the tiredness keeps hanging on. any thoughts?

carrie

seeking-wholeness Explorer

Carrie,

I wonder if you might be experiencing what's known as "adrenal exhaustion." You might want to do a Google search on the term. A website that I have found very informative is Open Original Shared Link. Nutritional support and some supplements (like pregnenolone for women or DHEA for men) can help a lot, but the specifics differ depending on each individual's present condition. I hope you find some helpful information in your search!

  • 3 months later...
chipsnsalsa Newbie

Beelzebubble, I have similar symptoms but they vary. Most weeks I have sustained energy throughout the day, but other weeks by 2PM I'm shot for the day. Even taking a nap doesn't help. I don't know what causes it, but it is frustrating and I'm sure related to celiac and/or the gluten-free diet. Have you had any luck diagnosing and/or treating yourself since you posted on 3/17?

  • 2 months later...
CoolCat1 Rookie

I would like to know too. I am still tired and can't get to sleep at night. I work mornings only. I sometimes rest afternoons for awhile but whether I do or not I can' t get to sleep unless I use a sleeping pill. I had Iron injections when I was anemic in May. I am still low normal and have been gluten-free for 2 months.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,602
    • Most Online (within 30 mins)
      7,748

    Dale S
    Newest Member
    Dale S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.