Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet Another Post About Fatigue

Guest jhmom

By Guest jhmom
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest jhmom
Guest jhmom
Posted

Ok ladies and gents, I have a question about fatigue:

I was diagnosed last Sept through enterolab and have been gluten free since 9/13/03.

Since I have been gluten-free for 4 months I thought some of these symptoms would be gone by now. Do any of you suffer from extreme fatigue? I worked one day last week for 4 hours, came home and was wiped out! :huh: I ended up in bed for the rest of the day resting. I can't do too much housework at one time bacause that wipes me out.

I do not take a multi-vitamin; I have to be careful because I am on thyroid replacement and cannot take anything with chromium in it, because it speeds up your metabolism.

I just want to feel normal. Any suggestions??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

Talking about a brain fog, I totally forgot about the article about the 80mg of Vit B-6 for depression. I am going to try that maybe it will help with the fatigue too!

Guest shar4
Guest shar4
Posted

Stacie,

After I was diagnosed, my doctor told me to continue to take the iron supplements, and then she had me start taking B12 injections and the difference was been nothing short of AMAZING. I have so much energy that I'm almost giddy, I'm sleeping better, and feeling better overall than I have in such a long time. I have to get one more B12 and then she is going to check my bloodwork again to see if my body will begin to be able to absorb it through the digestive tract or if I will continue to need the shots.

More details as they become available, and hope this helps.

sharon :lol:

Guest jhmom
Guest jhmom
Posted

Sharon:

Thanks for your reply, I will mention it to my docs. I go next week for some more bloodwork to check everything because the fatigue is bad. Thanks again

Guest eileen
Guest eileen
Posted

I also get very fatigued. I am anemic and am hypothryoid. My md tried me on iron and i just got diarrhea most people get constipated not me and I am on thyroid supplement and have been for years. I think this all goes along with Celiac.

I am putting thing together now all the different symtoms, got them all.

I have to rest every day in the afternoon, but I don't sleep well at night either.

I am not sure but I think the fatigue goes along with everything else.

Thanks for mentioning the fatigue I though I was just getting old and having to nap every afternoon.

eileen :rolleyes:

tarnalberry Community Regular
tarnalberry
Posted

besides vitamin levels, low testosterone can also make you very tired.

Guest jhmom
Guest jhmom
Posted

Hi Eileen:

I am also hypothyroid and been on meds for it since 1999. My levels have been good for a while and I go to the doc on a regular basis for it, so I don't think it's my thyroid. I think the fatigue is a part of this mysterious disease. I am having blood-work done tomorrow, I am interested to know how my iron level looks like.

I too have to rest in the afternoon, usually around 2-3.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tagger Rookie
tagger
Posted

I fell like I'm always fatigued. I have trouble with takinf Vit B because it gives me the "jitters". Does anyone elde experience this? Also, which Vit B am I suppoed to take B6 or B12?...Thanks..Tagger

  • 1 month later...
beelzebubble Contributor
beelzebubble
Posted

hi all,

a synopsis: diagnosed 11 months ago via enterolab, been gluten free since, am hypothyroid-but i'm on meds and i tested normal a month ago, was borderline anemic and deficient in b vitamins and some others before diagnosis.

i am always so tired. i'm finding it really difficult to be productive. the fatigue can be overwhelming. i don't notice it so much when i'm at home, but i am completely and totally wiped out after 8 hours of work. i've only been working one day a week for the last few months, and even that knocks me out for a day or two. last week i worked two full days in a row and the next day i slept for 16 hours. is this usual? and is there anything i can do to help myself feel less tired?

most of my symptoms have subsided quite a bit, but the tiredness keeps hanging on. any thoughts?

carrie

seeking-wholeness Explorer
seeking-wholeness
Posted

Carrie,

I wonder if you might be experiencing what's known as "adrenal exhaustion." You might want to do a Google search on the term. A website that I have found very informative is Open Original Shared Link. Nutritional support and some supplements (like pregnenolone for women or DHEA for men) can help a lot, but the specifics differ depending on each individual's present condition. I hope you find some helpful information in your search!

  • 3 months later...
chipsnsalsa Newbie
chipsnsalsa
Posted

Beelzebubble, I have similar symptoms but they vary. Most weeks I have sustained energy throughout the day, but other weeks by 2PM I'm shot for the day. Even taking a nap doesn't help. I don't know what causes it, but it is frustrating and I'm sure related to celiac and/or the gluten-free diet. Have you had any luck diagnosing and/or treating yourself since you posted on 3/17?

  • 2 months later...
CoolCat1 Rookie
CoolCat1
Posted

I would like to know too. I am still tired and can't get to sleep at night. I work mornings only. I sometimes rest afternoons for awhile but whether I do or not I can' t get to sleep unless I use a sleeping pill. I had Iron injections when I was anemic in May. I am still low normal and have been gluten-free for 2 months.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
    2. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
    3. Jmartes71
      - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Oops! @Staticgypsy, I’ll get the book! Thank you!
    5. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Seeking advice on potential gluten challenge

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was man...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748
    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      Gluten tester

      By Jmartes71 · Posted

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.