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Yet Another Post About Fatigue


Guest jhmom

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Guest jhmom

Ok ladies and gents, I have a question about fatigue:

I was diagnosed last Sept through enterolab and have been gluten free since 9/13/03.

Since I have been gluten-free for 4 months I thought some of these symptoms would be gone by now. Do any of you suffer from extreme fatigue? I worked one day last week for 4 hours, came home and was wiped out! :huh: I ended up in bed for the rest of the day resting. I can't do too much housework at one time bacause that wipes me out.

I do not take a multi-vitamin; I have to be careful because I am on thyroid replacement and cannot take anything with chromium in it, because it speeds up your metabolism.

I just want to feel normal. Any suggestions??


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Guest jhmom

Talking about a brain fog, I totally forgot about the article about the 80mg of Vit B-6 for depression. I am going to try that maybe it will help with the fatigue too!

Guest shar4

Stacie,

After I was diagnosed, my doctor told me to continue to take the iron supplements, and then she had me start taking B12 injections and the difference was been nothing short of AMAZING. I have so much energy that I'm almost giddy, I'm sleeping better, and feeling better overall than I have in such a long time. I have to get one more B12 and then she is going to check my bloodwork again to see if my body will begin to be able to absorb it through the digestive tract or if I will continue to need the shots.

More details as they become available, and hope this helps.

sharon :lol:

Guest jhmom

Sharon:

Thanks for your reply, I will mention it to my docs. I go next week for some more bloodwork to check everything because the fatigue is bad. Thanks again

Guest eileen

I also get very fatigued. I am anemic and am hypothryoid. My md tried me on iron and i just got diarrhea most people get constipated not me and I am on thyroid supplement and have been for years. I think this all goes along with Celiac.

I am putting thing together now all the different symtoms, got them all.

I have to rest every day in the afternoon, but I don't sleep well at night either.

I am not sure but I think the fatigue goes along with everything else.

Thanks for mentioning the fatigue I though I was just getting old and having to nap every afternoon.

eileen :rolleyes:

tarnalberry Community Regular

besides vitamin levels, low testosterone can also make you very tired.

Guest jhmom

Hi Eileen:

I am also hypothyroid and been on meds for it since 1999. My levels have been good for a while and I go to the doc on a regular basis for it, so I don't think it's my thyroid. I think the fatigue is a part of this mysterious disease. I am having blood-work done tomorrow, I am interested to know how my iron level looks like.

I too have to rest in the afternoon, usually around 2-3.


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tagger Rookie

I fell like I'm always fatigued. I have trouble with takinf Vit B because it gives me the "jitters". Does anyone elde experience this? Also, which Vit B am I suppoed to take B6 or B12?...Thanks..Tagger

  • 1 month later...
beelzebubble Contributor

hi all,

a synopsis: diagnosed 11 months ago via enterolab, been gluten free since, am hypothyroid-but i'm on meds and i tested normal a month ago, was borderline anemic and deficient in b vitamins and some others before diagnosis.

i am always so tired. i'm finding it really difficult to be productive. the fatigue can be overwhelming. i don't notice it so much when i'm at home, but i am completely and totally wiped out after 8 hours of work. i've only been working one day a week for the last few months, and even that knocks me out for a day or two. last week i worked two full days in a row and the next day i slept for 16 hours. is this usual? and is there anything i can do to help myself feel less tired?

most of my symptoms have subsided quite a bit, but the tiredness keeps hanging on. any thoughts?

carrie

seeking-wholeness Explorer

Carrie,

I wonder if you might be experiencing what's known as "adrenal exhaustion." You might want to do a Google search on the term. A website that I have found very informative is Open Original Shared Link. Nutritional support and some supplements (like pregnenolone for women or DHEA for men) can help a lot, but the specifics differ depending on each individual's present condition. I hope you find some helpful information in your search!

  • 3 months later...
chipsnsalsa Newbie

Beelzebubble, I have similar symptoms but they vary. Most weeks I have sustained energy throughout the day, but other weeks by 2PM I'm shot for the day. Even taking a nap doesn't help. I don't know what causes it, but it is frustrating and I'm sure related to celiac and/or the gluten-free diet. Have you had any luck diagnosing and/or treating yourself since you posted on 3/17?

  • 2 months later...
CoolCat1 Rookie

I would like to know too. I am still tired and can't get to sleep at night. I work mornings only. I sometimes rest afternoons for awhile but whether I do or not I can' t get to sleep unless I use a sleeping pill. I had Iron injections when I was anemic in May. I am still low normal and have been gluten-free for 2 months.

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    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
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