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Itching With Gluten Intolerance

tippi2birds

By tippi2birds
in Coping with Celiac Disease

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tippi2birds Newbie
tippi2birds
Posted

I have an internal itch on right side abdomen for about a year now. Comes and goes, recently told I had a gluten intolerance and possible other food intolerance or allergies although haven't had the money to get tested. Just wanted to know if this was normal, also in the same area sometimes I feel a pinching like discomfort inside. Thanks!

  • 1 month later...
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JWSJ Newbie
JWSJ
Posted

Strange you mention that itch. I used to get it regularly. I thought it was related to my appendix.

But, I don't remember having it since I've been gluten free.

Di2011 Enthusiast
Di2011
Posted

Hi tippi2birds,

I'd had these for years. Now (after a 9month stint working in a bakery, quit May 2011) I have all over dermatitis (probably dermatitis herpetiformis associated with gluten intolerance). The itch sometimes felt a bit like a nerve tingle for me. Now that I have been full blown skin itch/blister I wish I'd known earlier what the cause was. I hope you are eating gluten free and be aware of other triggers for the skin problems (see the Dermatitis Herpetiformis forum here on celiac.com).

Roda Rising Star
Roda
Posted

I get a pinching sensation in my upper abdomen just right of my epigastric region but not quite the RUQ. The best way I can explain it is that is feels like a rubber band is pulling and I feel the tension as the tighter it is stretched. I developed this 15 months after I went gluten free. I do sometimes get minor discomfort, sometimes slight pain in the same area or RUQ. I had my gallbladder evaulated Feb. 2010 and I didn't have any stones, but had a slightly underfunctioning gallbladder. I got the same sensation when they injected me with the CCK the medicine that mimics a fatty meal to stimulate the gallbladder. I still get this occasionally and I can directly relate it to to much fat consumption. I do have a threshold, but sometimes it is hard to pinpoint exactly what that threshold is. I definately know when I have consumed to much though. :P I do think the gallbladder function has gotten worse, but I'm not really in any pain per se, so I don't have any plans to do anything about the gallbladder at this time.

  • 4 months later...
trayne91 Apprentice
trayne91
Posted

This is totally killing me right now. Right side upper quadrant itches like mad with nothing there, but also hurts inside. It's driving me mad today. :angry:

Found an old topic on that same thing.

jeanzdyn Apprentice
jeanzdyn
Posted

I have experienced this too. It is an itching sensation, apparently internal, in the abdomen area. It is occasionally accompanied by pain the same area.

It makes me crazy sometimes, I have to really work to ignore it. I think it is occuring less often now, as I have been gluten free for 5 months.

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    • trents
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      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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    • cristiana
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      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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