Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Broken Bone
0

5 posts in this topic

Just wondering what ya'll think...

I broke my leg a year ago last March. I just went gluten-free 3 weeks ago because of a positive blood test (tTG, though my doc still thinks I don't have celiac disease!), and feel significant improvements overall (although I'm having a rough tummy day today).

Do you think I might have problems with bone density/osteoporosis which contributed to my broken leg? After all, I broke it just tripping on a crack in the sidewalk while walking rather slowly. I thought at the time that it was odd it should have broken so easily. How can I get my doc to order a bone density test if he doesn't even think I have celiac disease?

Furthermore, BTW, one of the most amazing things about going gluten-free is that many of the extra-intestinal symptoms I had began to improve immediately. I had trichotillomania (a form of obsessive-compulsive disorder in which I pulled out my hair), keratinosis (lots of rough red bumps on my arms), asthma/allergies, narcolepsy, sleep apnea, acid reflux, Bipolar disorder, joint pain, chronically puffy face, ADD and forgetfulness, carpel tunnel syndrome (I even had to stop playing piano and flute, plus had regular shots in my wrists), inguinal hernia, and chronic tonsillitis. I was diagnosed with adenomyosis and had my uterus removed two months ago, but now I wonder if that was a mistake! My IBS-diarrhea symptoms come and go still.

Thanks again,

Kate

0

Share this post


Link to post
Share on other sites


Ads by Google:

My goodness! You've had a heck of a time! I can understand somewhat though, I've had my bout of medical problems. Heart, endocrine, nerological, and tons of bone issues.

About osteoperosis. There are two things you should be aware of. One is that Celiacs often absorb too little zinc. Zinc contributes to calcium absorbtion by the bones, so if you are worried, I would take some zinc, and some NATURAL calcium. I take 50 mg of zinc/ day. Calcium is harder to take because your body only can absorb 200 mg (I think... but don't quote me) at a time. I take two calcium tablets per day, to make sure I get enough into the blood stream.

Calcium's absorbtion is also hindered by caffiene, so drink as little as possible. Another way to increase bone density is to do some weight bearing exersice, such as walking, running, jump roping, etc. Jump roping is an excellent way to burn calories, by the way, but it can be challanging with carple tunnel.

The other thing that worries me is that you have no uterus. This can often throw off one's hormone balance, since your body knows you aren't able to reproduce anymore. Hormones, especially estrogen in women, are a gigantic part of calcium absorbtion. In menopause, we lose these hormones, and our bone density decreases. I am not sure if you are getting enough estrogen, etc, but make sure that you do! It will help with bone density.

I hope that helps. Sorry to ramble!

0

Share this post


Link to post
Share on other sites

Doesn't really matter how slow you were walking, but more on how you fell. But if you're concerned about it, do get a test. If nothing else, it'll be a good baseline to use for reference later!

Speedy bone-mending! (Don't forget to take a calcium/magneisum supplement! You need the magnesium (and vit D) for the calcium to do it's job.)

0

Share this post


Link to post
Share on other sites

Some hospitals do inexpensive bone density screens as a community service. Check with your local hospital to see if they offer anything like this.

0

Share this post


Link to post
Share on other sites

Musikate,

Hello. If your leg broke that easily, you obviously need a bone density test. Can you see a rheumatologist without a referral from your doctor? If so, I would try to do that. If not, I would request a referral from your primary care physician and get that done asap. Any good rheumie will check your bone density,your vitamin d and calcium levels,hormones, plus some other stuff I don't know about - if they don't it's negligence and you should find yet another doctor. I have osteopenia and have been given a lot of good advice and meds for it since finding out about it. The sooner you start working with it the better your outcome will be. Good luck and take care.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,385
    • Total Posts
      920,613
  • Topics

  • Posts

    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,455
    • Most Online
      1,763

    Newest Member
    JLeigh
    Joined