Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If Looks Could Kill


Adalaide

Recommended Posts

Adalaide Mentor

I'd be dead. My husband had an appointment today with his endocrinologist today and I always tag along so I know firsthand what I need to know. Over the last few years he has been having increasing trouble controlling his blood sugar. During this time he has also had increasing bowel issues. Last fall he was told he has IBS. His mother is constantly weak, tired and has been battling lymphoma for many years.

So, unable to keep my mouth shut as the doctor offered suggestions I asked if it was possible that celiac could contribute to his increasing troubles with his spikes and lows. The doctor filled out the paperwork for blood work while my husband glared at me. Now I wouldn't wish celiac on anyone, but I also don't want to spend a decade watching my husband die of cancer while losing his feet a toe at a time and counting the days til he ends up on dialysis. (Okay, morbid but I this sort of thing just pops in my head.)

As an extremely picky eater, he would have significantly more trouble adjusting to a gluten free diet than I did. The doctor did suggest that even if the blood tests are negative that it wouldn't hurt to go gluten free and see if symptoms improve and if they do to try a little gluten again and if he gets sick again that it's obviously celiac. He mentioned that it's far easier today than it would have been a decade ago, although I doubt my husband finds that encouraging. (I could have kissed him, I didn't imagine I'd ever talk to a doctor who knows half as much as my limited knowledge of celiac.) All that's left for me to do is convince my husband, regardless of the test results, to go through with at least trying a gluten free diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I would have done the same in your shoes. Those symptoms are just too closely related to gluten intolerance/celiac.

Kisses to that endo!! :lol:

However, since you are already gluten-free, converting the two of them will not be more work for you, in fact it will be less. (As I recall, MIL lives with you guys?)

Ask him to give it a go (no cheating!) for one month. That's it.

Make some special treats and he'll be hooked on gluten-free foods.

Bet him his blood sugars and bowel issues start to resolve.

and I bet....You will win this bet. :)

Adalaide Mentor

I wish she lived with us, but no, it's her house. She wouldn't entertain the idea of making these changes in her life and frankly we don't have the kind of relationship where I would be even remotely comfortable talking to her about it. She's still convinced that all of my health problems are because of my bunny.

Right now I'm just hoping the test results come back positive. If they don't my husband will probably spout off about how I'm wrong (even though I'm not) and that will be the end of that. I did make Rice Krispie treats tonight which are one of his favorite snacks, hopefully I'll convert him one way or another. The logistics will be much easier but it'll be like trying to feed a picky toddler. :lol:

AVR1962 Collaborator

Good for you Adalaide, I don't know why some people wnat to close their ears but you are opening to options, options which are all good to investigate. My husband's health is not as good as it could be, has had a life-long issue with allergies and just keeps taking meds. I have repeated aske him if her thought about actually finding out what is causing hime issues and he repeatedly drgas his feet.

If the results don't come back positive and he starts with the "I told you so," at least you now know and there is no longer the guessing game.

Juliebove Rising Star

Have they looked at possible gastroparesis? I have it. It can make blood sugar very hard to control. Mine started out with bowel troubles and then progressed to throwing up.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748

    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.