So, What Do I Do Now?
Posted 11 April 2012 - 06:10 AM
Posted 11 April 2012 - 09:06 AM
First off I must say you found a very wise doctor directing you to this site...There is a wealth of info here.. It does take time to go through it all...& process...
Not sure where in Ohio you reside but there are several nice places to shop. Jungle Jim's.Cinncinati, RaisinRack in Columbus & Canton. Whole Foods, & Trader Joe's , mustard Seed, Heinen's plus many more.....
I suggest taking steps or phases in learning the gluten-free lifestyle.Start out with natural gluten-free foods you know ie: naked meats, veggies, fruits, fish.You can add your own seasoning to flavor.. McCormick is one that clearly labeds...Do not eat anything with marinades, gravies, steak dust,coatings....once you learn what is safe then you will be able to understand the ingredient list & make safe choices...
Buy a couple of mixes to hold you over until you feel good about baking yourself& also so you don't feel food deprived. Boxed cookies , pretzels &things like that..Many chips are gluten-free such as Lays, doritos, corn chips.. BUt always read the labelas ingredients change...Stay away from add-ins such Breyers IceCream is gluten-free but when cookies are added init becomes not safe...
There are several great support groups in parts of Ohio. Check out the CSA& GIG sites for locations..
Another decision you will need to decide on is if you will have a totally gluten-free household or a shared kitchen...a family decision!
If a shared kitchen is the way you will go then you need to clean out & make a separate space for your gluten-free food...Check your cooking pots & pans, cutting board, plastic utensils, teflon coated things, toaster, hand mixer, bread maker.any of these items that are scratched or damaged in any way needs to be replaced & new ones keep apart for your gluten-free cooking..I use color coded for my gluten-free utensils & keep in a separate drawer....
If you enjoy baking & have the time homemade is less pricey& the way to go. Some do not have the luxury of time or care to become a gluten-free susie homemaker...Here is a short list of some of the better flour blends.....
BetterBatter(site has loads of recipes
Domata Living Flour
Authenic flour (super fine white & or brown rice flour)( regular ground makes for a more gritty end product..
There is also hidden gluten in many products.ie: beer, soy sauce, malt
Depending on how sensitive you are or will become some other areas to check is pet food,
Take your time tolearn the basics then move on to another step. By not over-whelming yourself & learn as you go you will have less chance of making mistakes & getting ill. Mishaps do happen along this road but again use those as learning curves & don't beat yoursel up..
Most important is don't cheat & get in that habit...that is why it is so important to have a good supply /variety of gluten-free foods you can eat... so you never feel deprived..
This journey can cause symptoms just as it would when you would loose a loved one.. All normal it's okay to be angry, sad, & denial but don't let it take over.. You control this disease - don't let it control you..
This is the best thing to have because it reqires no chemo, no radiation, no deadly drugs, no injections, nothing but a diet change..how lucky we are!!!!! Be positive
Let us know your questions...
Posted 11 April 2012 - 10:34 AM
Posted 11 April 2012 - 11:46 AM
Mamaw has given you "the list" of things to look out for. If you have any questions along the way be sure to ask.
Most of us are happy for our DX at first. It validates the symptoms we've had. The happy part wears off a bit as we realize all of the changes we have to make. It can be pretty depressing when you go grocery shopping if you think of the things you can't have. Instead, focus on the things you can have and shop the outer perameter of the store for fresh veggies and fruits, unprocessed meats, seafood, eggs, and dairy if you tolerate it.
Many of us find that we do better if we skip milk and dairy at first. Once you've done some healing, you can add it back in.
Posted 11 April 2012 - 11:50 AM
Posted 12 April 2012 - 04:35 PM
I came here a year ago today, when I was diagnosed and overwhelmed, just like you. A year later I feel better than I ever dreamed it was possible to feel! You will make many mistakes along the road to becoming gluten free, (some of them painful!) but don't get discouraged. It is a learning process. Eventually, it will all become second nature. This weekend I am attending my first wedding since being dx (along with both of my kids who were dx) It is out of town, require 2 nights in a hotel, so I have had to do some homework regarding where and what to eat, and as usual, we will be toting a cooler of food with us. Yes, going out and visiting friends is a bit more of a hassle than it used to be. But it isn't an end-of-the-world type hassle you will come to find out. And the rewards of waking up every day feeling WONDERFUL make it well worth the extra effort!!!
Congratulations on your diagnosis- and I mean it! Your life is about to get a whole lot better!!
Posted 12 April 2012 - 04:49 PM
Dairy Free since 01/2011
Posted 12 April 2012 - 07:09 PM
...and my girls are IVF/ICSI/PGS babies (there was NO way I'd have gotten pregnant without LOTS of intervention...which also contributes to the suspicion that I have Celiac).
For what it's worth, we LOVED Dr. Schoolcraft at Colorado Center for Reproductive Medicine. His statistics are excellent, he listens, and he altered his protocol to fit what we wanted/needed.
Wishing you a smooth transition to a gluten-free life!
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