Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New


KNG

Recommended Posts

KNG Newbie

Hi everyone,

My name is Katie. I'm 21 and I found out a few days ago that I am gluten intolerant (I did the enterolab test). I'm not really sure what compelled me to take it. Just a feeling, I guess. I mean, I've always felt a little bloated but I have never had extreme symptoms like a lot of other people.

Anyway, going gluten-free is going to be a big challenge for me. I like to eat out a lot and now I can't have my favorite foods, which sucks. Especially since I know my friends will continue to go to these places without me. They don't understand that I can't eat gluten anymore, even though I always have. It's getting annoying. It's not like this is some diet fad I'm doing or whatever.

I guess my biggest challenge will be figuring out what to eat. I tried some glutino (I think) bread and wow...it's pretty terrible. So dry and almost stale tasting!

Anyway, I look forward to meeting you all, and learning from you!

Katie :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi Katie, and welcome to the board.

Yes, probably the biggest challenge a person who is gluten intolerant faces is not the obvious one of eating gluten free, but in dealing with the reactions from friends and family to your gluten free status :rolleyes: We have all walked that particular parth, and sometimes it can seem like you are walking a tightrope. They have all seen you hoeing into gluten goodies previously, so what has changed? Well, what has changed is your body's reaction to gluten, which has been progressively becoming more unpleasant to the point that you investigated why, and you have now found out that the reaction is a harmful one which coujld lead to more serious problems in the future if you continue to eat it, so therefore you must eliminate it - all of it!! That is really all the explanation that is needed, and you do not have to make excuses. And yes, they will probably go to those places without you :( but if you handle it well and they are 'good' friends they should start to be respectful of your needs too and let you choose a place where you will feel safe eating.

Evenutally you will learn how to make substitutes for practically every goody that you are having to give up (although good bread is a problem - have you tried Udi's or Rudi's?? they make good sandwick style bread (often you will find it in the freezer section, sometimes fresh). We have a wonderful recipe section on the forum where you can find how to make practically anything you are used to (and lots of things you are not yet used to). But eating out is always going to be a bit problematic, particularly at your stage of life where hanging out with friends at fast food restaurants is so BIG!

One necessity of getting by is to always have food with you - in your purse, in your car, have a stash of food readily available so that if you find yourself in a situation where there is nothing you can eat you will not have to starve while watching everyone else eat. Things like nuts, trail mix, Lara and Kind bars, dried fruits will stand you in good stead. Another coping mechanism when you know you will be going to some place where you can't eat is to eat before you go and then just buy a drink (or if it is safe, some french fries). Taking a dinner plate of food with you to a meal at the home of friends and family is perfectly acceptable and less stressful than eating food cooked by someone who doesn't 'quite' understand gluten free and cross-contamination - which is probably the riskiest eating.

Anyway, again welcome and settle in and take a look around. This place is packed with useful information and friendly people who will give you a helping hand. :)

Marilyn R Community Regular

I welcome you to, Katie!

Forum members/moderators are going to start wondering if I'm working for Against The Grain. Their bagels and pizza are so good! It may just be my older oven, but I bake the pizza for about 5 minutes longer than it says to, and let it rest for a few minutes before slicing. I don't feel like I'm missing out on anything when I have that product. And the bread you have may be good toasted. (Toaster not grilled.) You can still have BLT's!.

  • 1 month later...
JonsLoveBugg Newbie

Hi Katie-

I know at first it's pretty depressing and you feel like your never going to be able to eat good foods ever again but that's not the case!

I have bought enzymes that are supposed to help me digest gluten but I'm honestly terrified to take them! And I alway tell my hubby (who is constantly trying to get me to take them to just try!) but I always say once I think of a food that I loved being gluten filled that I ant get gluten free then I'll take them for that. (because being sick for a week isn't worth some mediocre gluten filled snack! ) but to be honest there is no food that is gluten filled that I can't get gluten free that is just as good!

As far as bread goes, yeah that sucks... But I've found that Schar makes the best bread closest to gluten filled. And no it's not frozen! If you have a wegmans grocery store try there or go on glutenfreely.com or even amazon and you can order it! It's the best. And against the grain ANYTHING is amazing!!!!!!! There rolls taste like donuts if you just microwave them and add butter! Why would I eat gluten with those?!?!

Good luck!

Natalie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.