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Symptoms (Or Lack There Of)

Angel M

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Angel M Rookie
Angel M
Posted

I have another post regarding my diagnosis, but I wanted to post my symptoms questions separately because the other post was so long. I have been gluten free for about 6 months, but I haven't noticed any changes in the way I feel. I don't think I felt bad before going gluten free. I know that some people don't necessarily have symptoms or maybe have symptoms that are hard to notice. I think that makes it difficult in knowing if you are taking in any gluten. There has been one time that I'm 100% sure I could have experienced cross contamination. This occurred when I used the non gluten free peanut butter jar at home, not realizing that was the jar I was using. I didn't notice any symptoms after this happened. Also, I would imagine that at some point in the last 6 months when I've been out to eat, I've been exposed to gluten. I just have a hard time believing that I am perfect at never accidentally eating something that has been in contact with gluten.

So, I feel a little frustrated because I could be eating something that is still damaging my intestines, but I'll never know because I don't recognize any symptoms. Maybe I'm not in tune with my body enough? I was gluten free when I went through my testing (You can read my other post to understand my testing process.), so I wonder if I should try to eat a normal diet for a short time to see if I notice a difference. I don't think I will though.

Is there any one else who has not noticed a difference after going gluten free? How do you ensure that you aren't taking in any gluten? Or do you just do the best you can when ordering at restaurants?

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GFinDC Veteran
GFinDC
Posted

Hi,

Yes, there are other people on the board who are "silent celiacs". I am not sure how they deal with it, except to just be careful. Not an easy answer I guess. Maybe some of them will jump in to discuss. If you search on "silent celiac" you may find other threads about it.

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      Test interpretations

      By Scott Adams · Posted

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      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
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    • MicG
      Test interpretations

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      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
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