Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Glutening?


kitgordon

Recommended Posts

kitgordon Explorer

I got glutened by some sweetened nuts at a friend's house (didn't look at the label - duh! smacks self in head!) nearly 3 weeks ago. Next day started with my usual GI symptoms, then a few days later I started getting what I thought were mosquito bites on my feet, but as new ones kept arriving around my elbows and knees and on my hands, I realized it is probably DH, which I've never had before. New blisters are still popping up 3 weeks later. Is it likely this is still a reaction to the nuts, or should I suspect something else I am eating? Any guesses on how long it is likely to last? And any suggestions on home remedies that help? The itching is miserable, but I don't want to go deal with incompetent doctors or take potent medications with possible side effects if I can help it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

The reaction can last anywhere from a few days, to a few weeks, to a few months. DH can be sensitive to iodine which can cause the antibodies to remain active in the skin. you may have to limit iodine in order to heal. If you find that you do have to limit iodine, Thyca.com is the low iodine diet. You can use regular salt and stop using iodized salt to see if that helps some.

For relief of pain and itching you can get Walgreens brand of Pain Relieving Ointment that has Benzocaine in it. Solarcaine or Bactine also work. It is only temporary relief though, and you have to reapply often, but it can get you through the bad nights.

DH is very sensitive to cross contamination. Be sure you are very careful now and if you haven't already you will want to check your personal products too.

Your description of this is very much in line with DH.

Limit iodine, get super strict on gluten free, apply pain relieving ointment.

It took me two years to heal my DH, but the reactions from a glutening only last a few weeks now, and they are not nearly as bad as they were. It usually occurs within one week of an accidental glutening. I have had to limit iodine to heal DH.

I hope you feel better soon.

squirmingitch Veteran

What eatmeat said!

kitgordon Explorer

Thank you for the suggestions and well-wishes :) . I did get a benzocaine cream, and it is more helpful than the hydrocortisone I had been using. I also am switching to non-iodized salt, to see if that helps. I hope I don't need to go as far as the low iodine diet; it looks awfully restrictive (as if gluten free isn't tough enough, right?). I am normally very careful about my food, but I guess I'd better rethink my personal products. That hasn't been in issue for me in the past, but maybe it is going to be now.

squirmingitch Veteran

It's possible that you could just do low iodine diet for 2 weeks & that will be enough to make it lay down for you. But you may want to use non iodized salt from here on out. And sea salt has iodine so just get the plain old non iodized salt.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.