Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Glutening?


kitgordon

Recommended Posts

kitgordon Explorer

I got glutened by some sweetened nuts at a friend's house (didn't look at the label - duh! smacks self in head!) nearly 3 weeks ago. Next day started with my usual GI symptoms, then a few days later I started getting what I thought were mosquito bites on my feet, but as new ones kept arriving around my elbows and knees and on my hands, I realized it is probably DH, which I've never had before. New blisters are still popping up 3 weeks later. Is it likely this is still a reaction to the nuts, or should I suspect something else I am eating? Any guesses on how long it is likely to last? And any suggestions on home remedies that help? The itching is miserable, but I don't want to go deal with incompetent doctors or take potent medications with possible side effects if I can help it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

The reaction can last anywhere from a few days, to a few weeks, to a few months. DH can be sensitive to iodine which can cause the antibodies to remain active in the skin. you may have to limit iodine in order to heal. If you find that you do have to limit iodine, Thyca.com is the low iodine diet. You can use regular salt and stop using iodized salt to see if that helps some.

For relief of pain and itching you can get Walgreens brand of Pain Relieving Ointment that has Benzocaine in it. Solarcaine or Bactine also work. It is only temporary relief though, and you have to reapply often, but it can get you through the bad nights.

DH is very sensitive to cross contamination. Be sure you are very careful now and if you haven't already you will want to check your personal products too.

Your description of this is very much in line with DH.

Limit iodine, get super strict on gluten free, apply pain relieving ointment.

It took me two years to heal my DH, but the reactions from a glutening only last a few weeks now, and they are not nearly as bad as they were. It usually occurs within one week of an accidental glutening. I have had to limit iodine to heal DH.

I hope you feel better soon.

squirmingitch Veteran

What eatmeat said!

kitgordon Explorer

Thank you for the suggestions and well-wishes :) . I did get a benzocaine cream, and it is more helpful than the hydrocortisone I had been using. I also am switching to non-iodized salt, to see if that helps. I hope I don't need to go as far as the low iodine diet; it looks awfully restrictive (as if gluten free isn't tough enough, right?). I am normally very careful about my food, but I guess I'd better rethink my personal products. That hasn't been in issue for me in the past, but maybe it is going to be now.

squirmingitch Veteran

It's possible that you could just do low iodine diet for 2 weeks & that will be enough to make it lay down for you. But you may want to use non iodized salt from here on out. And sea salt has iodine so just get the plain old non iodized salt.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,852
    • Most Online (within 30 mins)
      7,748

    Mamabear66
    Newest Member
    Mamabear66
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.