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If It Isn't Just Gluten, What Is It?


Aqua

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Aqua Newbie

I have been suffering from various weird symptoms of what I think must be various vitamin deficiencies


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mushroom Proficient

It is quite possible that if you used your same utensils and same bread pan that you cross-contaminated your gluten free loaf with gluten crumbs which are very hard to get rid of. Porous utensils (think wooden and plastic), cutting boards,etc., can all harbor gluten.

kittty Contributor

Burping can be a side effect of GERD - are you still having other GERD symptoms?

Celiac or gluten intolerance could be causing your GERD, but it would take a while to clear up after going gluten free. GERD or GERD-like symptoms can also be caused by some medications.

Do you have other gastro symptoms when you eat dairy, like diarrhea?

bartfull Rising Star

Aqua, you need to read the thread, "Newbie 101". It'll teach you all of the places gluten can hide. As Mushroom said, it could very well be cross contamination. Pans, utensils, your toaster, all of these things can hold gluten.

Aqua Newbie

Thanks for all your replies :)

I do not think it can be cross-contamination since I have used all the equipment for other things since I last used them with gluten and have not become ill - I use the same pots and pans for everything and cook 3 meals a day with them, none of which have made me sick.

I also have not had any other gastro symptoms from dairy, just burping and pooping a little more often. I still get GERD symptoms from time-to-time, but they didn't really accompany the burping from the bread today. Belching is at least fairy minor - socially awkward but nothing that is going to cause too much pain!

shadowicewolf Proficient

i'm putting my money on the flour blend. Have you used it before?

Also, vitamins and whatnot can occasionally contain gluten.

koz158 Apprentice

Are you still experiencing gum infections and loss of bone density in my teeth, constant rashes and allergic reactions, sleeping 12+ hours a night, foggy mind, sores in the corner of my mouth, depression and anxiety, sciatic pains, dry skin, poor circulation, hair loss and weak nails? Or have these symptoms started to show improvement?

Something to consider if you have only improved in some area is eliminating Sodium Laure Sulfate (SLS) from your environment. It is in a lot of stuff and will overwork your immune system (check tooth paste, hand soap, shampoo, bubble bath, and even some prescriptions). This may help with dry skin, the sores in your mouth, increase the strength of your hair (maybe nails, not sure) and decrease the overall inflammation level of your body and help decrease fatigue.

Insofar as loss of bone density, if you are having trouble absorbing calcium then you may have damage to the upper part of your intestine, where celiac does the most damage. Supplementing calcium may be a good start as well as digestive enzymes to help your system break down any fat soluble vitamins you might not be absorbing as well (Vit D or magnesium shortages can also cause decreased bone density).

Hope this helps.


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GFinDC Veteran

It would be good to get the blood testing for celiac disease done before going gluten-free. The antibodies start dropping off after you go gluten-free and are harder or impossible to detect. The gluten-free diet is not an instant cure though, it can take months (or years) for the GI system to heal and symptoms to go away. In the beginning of the gluten-free diet it is not unusual to have somewhat random reactions to foods that may not be gluten reactions at all. Your digestive system is irritated and raw inside and things just don't work right in that condition. That doesn't mean you shouldn't be careful and try to eliminate all traces of gluten though. A whole foods diet with no processed foods is a good way to start the gluten-free diet.

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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