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If It Isn't Just Gluten, What Is It?


Aqua

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Aqua Newbie

I have been suffering from various weird symptoms of what I think must be various vitamin deficiencies


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mushroom Proficient

It is quite possible that if you used your same utensils and same bread pan that you cross-contaminated your gluten free loaf with gluten crumbs which are very hard to get rid of. Porous utensils (think wooden and plastic), cutting boards,etc., can all harbor gluten.

kittty Contributor

Burping can be a side effect of GERD - are you still having other GERD symptoms?

Celiac or gluten intolerance could be causing your GERD, but it would take a while to clear up after going gluten free. GERD or GERD-like symptoms can also be caused by some medications.

Do you have other gastro symptoms when you eat dairy, like diarrhea?

bartfull Rising Star

Aqua, you need to read the thread, "Newbie 101". It'll teach you all of the places gluten can hide. As Mushroom said, it could very well be cross contamination. Pans, utensils, your toaster, all of these things can hold gluten.

Aqua Newbie

Thanks for all your replies :)

I do not think it can be cross-contamination since I have used all the equipment for other things since I last used them with gluten and have not become ill - I use the same pots and pans for everything and cook 3 meals a day with them, none of which have made me sick.

I also have not had any other gastro symptoms from dairy, just burping and pooping a little more often. I still get GERD symptoms from time-to-time, but they didn't really accompany the burping from the bread today. Belching is at least fairy minor - socially awkward but nothing that is going to cause too much pain!

shadowicewolf Proficient

i'm putting my money on the flour blend. Have you used it before?

Also, vitamins and whatnot can occasionally contain gluten.

koz158 Apprentice

Are you still experiencing gum infections and loss of bone density in my teeth, constant rashes and allergic reactions, sleeping 12+ hours a night, foggy mind, sores in the corner of my mouth, depression and anxiety, sciatic pains, dry skin, poor circulation, hair loss and weak nails? Or have these symptoms started to show improvement?

Something to consider if you have only improved in some area is eliminating Sodium Laure Sulfate (SLS) from your environment. It is in a lot of stuff and will overwork your immune system (check tooth paste, hand soap, shampoo, bubble bath, and even some prescriptions). This may help with dry skin, the sores in your mouth, increase the strength of your hair (maybe nails, not sure) and decrease the overall inflammation level of your body and help decrease fatigue.

Insofar as loss of bone density, if you are having trouble absorbing calcium then you may have damage to the upper part of your intestine, where celiac does the most damage. Supplementing calcium may be a good start as well as digestive enzymes to help your system break down any fat soluble vitamins you might not be absorbing as well (Vit D or magnesium shortages can also cause decreased bone density).

Hope this helps.


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GFinDC Veteran

It would be good to get the blood testing for celiac disease done before going gluten-free. The antibodies start dropping off after you go gluten-free and are harder or impossible to detect. The gluten-free diet is not an instant cure though, it can take months (or years) for the GI system to heal and symptoms to go away. In the beginning of the gluten-free diet it is not unusual to have somewhat random reactions to foods that may not be gluten reactions at all. Your digestive system is irritated and raw inside and things just don't work right in that condition. That doesn't mean you shouldn't be careful and try to eliminate all traces of gluten though. A whole foods diet with no processed foods is a good way to start the gluten-free diet.

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    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
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    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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