Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If It Isn't Just Gluten, What Is It?


Aqua

Recommended Posts

Aqua Newbie

I have been suffering from various weird symptoms of what I think must be various vitamin deficiencies


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It is quite possible that if you used your same utensils and same bread pan that you cross-contaminated your gluten free loaf with gluten crumbs which are very hard to get rid of. Porous utensils (think wooden and plastic), cutting boards,etc., can all harbor gluten.

kittty Contributor

Burping can be a side effect of GERD - are you still having other GERD symptoms?

Celiac or gluten intolerance could be causing your GERD, but it would take a while to clear up after going gluten free. GERD or GERD-like symptoms can also be caused by some medications.

Do you have other gastro symptoms when you eat dairy, like diarrhea?

bartfull Rising Star

Aqua, you need to read the thread, "Newbie 101". It'll teach you all of the places gluten can hide. As Mushroom said, it could very well be cross contamination. Pans, utensils, your toaster, all of these things can hold gluten.

Aqua Newbie

Thanks for all your replies :)

I do not think it can be cross-contamination since I have used all the equipment for other things since I last used them with gluten and have not become ill - I use the same pots and pans for everything and cook 3 meals a day with them, none of which have made me sick.

I also have not had any other gastro symptoms from dairy, just burping and pooping a little more often. I still get GERD symptoms from time-to-time, but they didn't really accompany the burping from the bread today. Belching is at least fairy minor - socially awkward but nothing that is going to cause too much pain!

shadowicewolf Proficient

i'm putting my money on the flour blend. Have you used it before?

Also, vitamins and whatnot can occasionally contain gluten.

koz158 Apprentice

Are you still experiencing gum infections and loss of bone density in my teeth, constant rashes and allergic reactions, sleeping 12+ hours a night, foggy mind, sores in the corner of my mouth, depression and anxiety, sciatic pains, dry skin, poor circulation, hair loss and weak nails? Or have these symptoms started to show improvement?

Something to consider if you have only improved in some area is eliminating Sodium Laure Sulfate (SLS) from your environment. It is in a lot of stuff and will overwork your immune system (check tooth paste, hand soap, shampoo, bubble bath, and even some prescriptions). This may help with dry skin, the sores in your mouth, increase the strength of your hair (maybe nails, not sure) and decrease the overall inflammation level of your body and help decrease fatigue.

Insofar as loss of bone density, if you are having trouble absorbing calcium then you may have damage to the upper part of your intestine, where celiac does the most damage. Supplementing calcium may be a good start as well as digestive enzymes to help your system break down any fat soluble vitamins you might not be absorbing as well (Vit D or magnesium shortages can also cause decreased bone density).

Hope this helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

It would be good to get the blood testing for celiac disease done before going gluten-free. The antibodies start dropping off after you go gluten-free and are harder or impossible to detect. The gluten-free diet is not an instant cure though, it can take months (or years) for the GI system to heal and symptoms to go away. In the beginning of the gluten-free diet it is not unusual to have somewhat random reactions to foods that may not be gluten reactions at all. Your digestive system is irritated and raw inside and things just don't work right in that condition. That doesn't mean you shouldn't be careful and try to eliminate all traces of gluten though. A whole foods diet with no processed foods is a good way to start the gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,994
    • Most Online (within 30 mins)
      7,748

    KimberlyS
    Newest Member
    KimberlyS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.