Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If It Isn't Just Gluten, What Is It?


Aqua

Recommended Posts

Aqua Newbie

I have been suffering from various weird symptoms of what I think must be various vitamin deficiencies


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It is quite possible that if you used your same utensils and same bread pan that you cross-contaminated your gluten free loaf with gluten crumbs which are very hard to get rid of. Porous utensils (think wooden and plastic), cutting boards,etc., can all harbor gluten.

kittty Contributor

Burping can be a side effect of GERD - are you still having other GERD symptoms?

Celiac or gluten intolerance could be causing your GERD, but it would take a while to clear up after going gluten free. GERD or GERD-like symptoms can also be caused by some medications.

Do you have other gastro symptoms when you eat dairy, like diarrhea?

bartfull Rising Star

Aqua, you need to read the thread, "Newbie 101". It'll teach you all of the places gluten can hide. As Mushroom said, it could very well be cross contamination. Pans, utensils, your toaster, all of these things can hold gluten.

Aqua Newbie

Thanks for all your replies :)

I do not think it can be cross-contamination since I have used all the equipment for other things since I last used them with gluten and have not become ill - I use the same pots and pans for everything and cook 3 meals a day with them, none of which have made me sick.

I also have not had any other gastro symptoms from dairy, just burping and pooping a little more often. I still get GERD symptoms from time-to-time, but they didn't really accompany the burping from the bread today. Belching is at least fairy minor - socially awkward but nothing that is going to cause too much pain!

shadowicewolf Proficient

i'm putting my money on the flour blend. Have you used it before?

Also, vitamins and whatnot can occasionally contain gluten.

koz158 Apprentice

Are you still experiencing gum infections and loss of bone density in my teeth, constant rashes and allergic reactions, sleeping 12+ hours a night, foggy mind, sores in the corner of my mouth, depression and anxiety, sciatic pains, dry skin, poor circulation, hair loss and weak nails? Or have these symptoms started to show improvement?

Something to consider if you have only improved in some area is eliminating Sodium Laure Sulfate (SLS) from your environment. It is in a lot of stuff and will overwork your immune system (check tooth paste, hand soap, shampoo, bubble bath, and even some prescriptions). This may help with dry skin, the sores in your mouth, increase the strength of your hair (maybe nails, not sure) and decrease the overall inflammation level of your body and help decrease fatigue.

Insofar as loss of bone density, if you are having trouble absorbing calcium then you may have damage to the upper part of your intestine, where celiac does the most damage. Supplementing calcium may be a good start as well as digestive enzymes to help your system break down any fat soluble vitamins you might not be absorbing as well (Vit D or magnesium shortages can also cause decreased bone density).

Hope this helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

It would be good to get the blood testing for celiac disease done before going gluten-free. The antibodies start dropping off after you go gluten-free and are harder or impossible to detect. The gluten-free diet is not an instant cure though, it can take months (or years) for the GI system to heal and symptoms to go away. In the beginning of the gluten-free diet it is not unusual to have somewhat random reactions to foods that may not be gluten reactions at all. Your digestive system is irritated and raw inside and things just don't work right in that condition. That doesn't mean you shouldn't be careful and try to eliminate all traces of gluten though. A whole foods diet with no processed foods is a good way to start the gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.