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Is Celiac A Possibilty?

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Posted 09 October 2012 - 09:35 AM

Biopsy is the only way to be absolutely sure, but if the blood test was positive, and with all your symptoms, your doctor should be kind enough to diagnose you as Celiac. If you really want to know for sure, you can schedule a biopsy and start eating gluten free after it's done.
But, with all you've been through all ready, I'd say don't bother unless your doctor insists (which he didn't). it's better than you start feeling better and healing sooner rather than later.
Definitely get your daughter tested. If she has it, then your mother likely does too. (My mom, me, and my sister all have it, as well as aunts and uncles on BOTH sides of my family). You should also recommend that your siblings, if you have any, get tested too.

With any luck, you'll be feeling much better by the time your wedding comes around (Congratulations), and if your daughter can start gluten-free now, she should heal up quite quickly and have a healthy life.

Good luck!
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~ Be a light unto yourself. ~ - The Buddha

- Gluten-free since March 2009 (not officially diagnosed, but most likely Celiac). Symptoms have greatly improved or disappeared since.
- Soy intolerant. Dairy free (likely casein intolerant). Problems with eggs, quinoa, brown rice

- mild gastritis seen on endoscopy Oct 2012. Not sure if healed or not.
- Family members with Celiac: Mother, sister, aunt on mother's side, aunt and uncle on father's side, more being diagnosed every year.

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Posted 09 October 2012 - 03:48 PM

Hi Jen,

Celiac can cause nuerolgical damage resulting in what is called gluten ataxia. Gluten ataxia is when the antibodies attack parts of the brain and can cause trouble walking etc. Some people develop leg muscle spasms etc from the nerve damage. Celiac also can cause what are called UBO's (unidentified bright spots) on an MRI of the brain. Your brother and mom may have those, just a guess. The possible list of symptoms for celiac is about 300, and covers every part of the body. The nuerolgical symptoms of celiac seem to take longer to resolve than the GI symptoms. Otherwise it is a lot of fun tho. :)
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

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