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Who Is The Best Person To Check Vitamin Levels?


megsybeth

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megsybeth Enthusiast

I'm very recently diagnosed with celiac and I kind of took the express train to treatment with the gluten-free diet. I posted on another thread but basically I started researching celiac during the testing of my 4yo son. I was shocked to see myself so clearly in a lot of the descriptions. I emailed my primary doctor and she ordered a celiac panel which came back positive (conclusive levels). I still haven't gotten in to see her (I was diagnosed three days ago) and she wanted to refer me to a gi, still will I guess. But I emailed her and asked if I could go gluten-free because I am breast feeding. Right now I can't wean because it is very emotionally jarring in my experience and I just can't go on nursing him with gluten in my system knowing that doing that might have stunted his brother's growth and development already.

My primary is great and said she understood and that she should technically have me go for biopsy after staying on gluten but in my case I could go gluten-free.

So will the GI check my vitamin levels? Primary? Who is the best person to ask?

Thanks!

Megan


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mommyof4 Apprentice

Your primary care doctor should be able to check your vitamin levels...you could certainly mention it to the G.I.doctor when you meet with him/her. Also, are they scheduling a biopsy pretty soon? I only ask because going gluten-free can change the results depending on how much damage is already done & how quickly you heal.

I understand the fear with nursing...I nursed all 4 of my babies(last one 8 years ago) & I was very likely undiagnosed Celiac then. I am almost 1 year post-diagnosis. Just relax though, you are heading in the right direction.

I didn't see your earlier post, is your 4 year old Celiac? I made that assumption.

GottaSki Mentor

Sounds like you have a great primary - I'd ask her to order the tests. That way you'll have the results when you consult with GI and if you are deficient you can start supplementing to help from becoming more deficient.

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    • knitty kitty
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    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
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    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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